Hi Pat, I think you should do exercises and also talk to your doctor if you can take glivec 4 times a day ( I mean four 100mg pills a day every 6 hours or so, instead of 400 mg once) . In that way you could eat just a small amount of food while taking only 100mg pill. I think that you should avoid take any medications to increase your appetite - please try to do everything you can - try new kind of foods and everything in order to avoid take more medications.
Good luck and keep going! God bless you. Ricardo On 6/1/08, Bob <[EMAIL PROTECTED]> wrote: > > > Pat, > > I have been fortunate to only have occasional mild nausea, but when it > happens, it seems to happen worse after a very low fat meal. My wife > has been trying to get us on to a healthier diet and I love the food, > but if I don't add some peanut butter or ice cream or something like > that, right before the gleevec, I'll feel queasy. I also always try > to take it right in the middle of dinner. I'll eat about half the > food, get a large glass of water and the pill, and then continue the > meal. Definately don't forget the water. > > Hope you can get it under control. > Bob > > > On May 30, 6:01 pm, "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> > wrote: > > Hello to my CML Family, I'm disappointed that there is so little > > activity in the group but I am just as much to blame as any of the > > rest of it. We need to not stray from the group because we are doing > > good. There are new members who need us just as we once needed each > > other. > > I want to address to the group, that after 4 years of basically > > holding my own on my PCR numbers, which I've never reached zero, my > > numbers are climbing back up. It is not that the Gleevec is not > > working, it is that I have lost my appetite completely, and I am > > barely able to eat much of anything and when I don't eat a good > > amount, I am not able to keep the Gleevec down. If you've never > > vomited up Gleevec, then you don't know what it is like but I can tell > > you, it is an awful experience. You cannot get the taste out of your > > mouth and it burns. So now on days when I cannot force any food down, > > I just don't take it or take maybe 200mg. > > I have explained to my CML specialist at Vandy that is my only problem > > with the Gleevec is lack of appetite and literally begged for > > something to enhance my appetite which he has not done. He wants to > > change my meds to Sprycel which I am going to be unable to do as it > > causes fluid retention around the lungs/and or heart and I have > > emphysema. He then mentioned another med, that I have to have have my > > heart checked prior to taking it, which may be an issue as I have > > hardening of the arteries. I was scheduled to see a heart specialist > > at Vandy today for a EKG which is not going to detect my problem. So I > > am going to get with my primary doctor and see if I can get him to get > > me in locally with a heart specialist. > > Anyway, my primary doctor gave me a med called peractin that is > > supposed to increase my appetite. I looked this up and the side > > effects are a mile long...longer than the Gleevec actually. I was so > > excited and now I am terrified to even try it. I am to take it at > > bedtime and the first side effect is allergic reaction which is > > fatal. > > Is anyone familiar with this medication? Or does anyone know of > > anything else that can be taken to increase appetite??? I was holding > > my own for the past 2 yrs. at 140lbs. I now weigh 124lbs. I am > > terrified that my numbers are rising...and starting to panic. Any info > > would be greatly appreciated. > > Love, Peace, Hope & Prayers, Pat (the TN turtle) > > > --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
