Donna I was so glad to see the posts on this. I agree with all that has been said : mutations testing, dosage requirements and such are all important. I have a hard time understanding the 100 mg dosage his doctor suggested. But then I do not know the whole case. I have the brochures on gleevc that you could find anywhere on the novarti site if you would like to read on the protocol for the drug. I would send it to you if you like so that you don't waste time searching for it.
I took 400 mg for 5 years, had increasingly difficult side effects, and after a break, began tasigna. I have been incredibly lucky to remain undetectable for PH+. Tasigna is a good one for some of the mutations he may have. At any rate, read all you can, educate yourself and your husband, and ask lots of questions. Tasigna is nick named "super gleevec'. You have many options but the first one is a clear explanation from your doctor as to why he has Jim on 100 mg. Best of luck... Barb On Jul 13, 7:06 pm, Donna <[EMAIL PROTECTED]> wrote: > I want to thank all of you that responded to my post about Jim's FISH > test results. I am so dumb about some of these things. I plan to > respond to each of you personally in the next few days. I am doing > some checking and will put a call into Jim's dr. tomorrow. > > Thanks again. > Donna, wife of Jim > Dxd 6/99 --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
