Hi Jeanie: I see everyone talking about different hospitals etc. I live in N.J.,and I have been to a few hospitals in NJ well they were deciding if I could get a BMT. Now thats back in 99.I really did not want one for fear of GVHD, and my doctors said NO because I had no match, and it just made my percentages worse to survive. My oncologist is a very good doctor, but I think he is getting older. He is still trying to handle what he did when he was younger, and personally I think its too much for him now. I never received the slips to go for further testing, and when I called his office I got the answering service. They are gone till Tues. for the holiday. I will just enjoy my weekend, and handle it next week. Everyone has been so kind, and answering my questions the best they can. Thank You for your prayers also. I do have a strong faith, and I have to keep believing there is a reason why I am still here. God Bless You Suzzie
--- On Fri, 8/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> Subject: [CMLHope] Re: hi potassium in blood? to suzzie To: [email protected] Date: Friday, August 29, 2008, 10:16 AM Hi Suzzie and so sorry to hear about your platelets. Mine are just the opposite; too high. The only time I had low platelets was in the beginning and they took me off all meds until they came back up. How are your WBC? Are you going to Moffit? I have been having a big problem with my potassium, to high. My PP was very concerned and said I might have to go into the hospital if they can't bring it down; well it came down, but they had me take more meds and it has made nauseous. I can't remember the name but it is a sweet liquid. I wonder why we have to tell our oncs what is happening to us; it seems they should be on it, but I know, I just had a visit with my Onc and I wanted him to do a PCR or something, and he said just wait until the potassium problem was solved; bottom line; after I left his office, I felt he had done nothing for me; no advice or etc. My WBC is 15 and I think he should have at least addressed that problem. I will keep you in my prayers, so hang in there Warrior and let me know what's happening, Blessings, Jeanie<3 In a message dated 8/28/2008 9:39:50 A.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hi Jeanie: We need to pray for each other. I am having a bad day too. My Platelet count is dropping steadily month bymonth. My Oncologist never picked-up on this, and I had to send him a Fax to show him the pattern. Now he wants me to get more testing. I need someone who has had this problem. You have been through so much yourself. Who would be a good one to ask. I sent a message to Trey, because one of the girls told me he probably could help. Suzzie It's only a deal if it's where you want to go. Find your travel deal here. --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
