Hi Suzzie,
I live in central New Jersey & my onc. is Dr. Stephen Young whom I
have a lot of confidence in. Having had two cancers I know what it is dealing
with doctors & office staffs that sometimes drop the ball when we need help.
I was diagnosed with CML in June 2005 & have been taking 400 mil of Gleevec
all along. Lately some of my blood work has been a little off but my doctor
keeps a close watch on what's going on with me. In regards to the BMT, I was
diagnosed at age 62 & a little to old for it. The good lord has taken care of
me as he is taking care of you & I'll pray for you and the rest of my
brothers & sisters that's fighting the good fight. God bless
Frank M, Kendall Pk, N.J.
In a message dated 8/31/2008 12:54:14 P.M. Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Hi Jeanie: I see everyone talking about different hospitals etc. I live in
N.J.,and I have been to a few hospitals in NJ well they were deciding if I
could get a BMT. Now thats back in 99.I really did not want one for fear of
GVHD, and my doctors said NO because I had no match, and it just made my
percentages worse to survive. My oncologist is a very good doctor, but I
think he
is getting older. He is still trying to handle what he did when he was
younger, and personally I think its too much for him now.
I never received the slips to go for further testing, and when I called
his office I got the answering service. They are gone till Tues. for the
holiday. I will just enjoy my weekend, and handle it next week. Everyone has
been so kind, and answering my questions the best they can. Thank You for
your prayers also. I do have a strong faith, and I have to keep believing
there is a reason why I am still here.
God Bless You
Suzzie
--- On Fri, 8/29/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: [CMLHope] Re: hi potassium in blood? to suzzie
To: [email protected]
Date: Friday, August 29, 2008, 10:16 AM
Hi Suzzie and so sorry to hear about your platelets.
Mine are just the opposite; too high.
The only time I had low platelets was in the beginning and they took me off
all meds until they came back up. How are your WBC?
Are you going to Moffit?
I have been having a big problem with my potassium, to high.
My PP was very concerned and said I might have to go into the hospital if
they can't bring it down; well it came down, but they had me take more meds
and
it has made nauseous. I can't remember the name but it is a sweet liquid.
I wonder why we have to tell our oncs what is happening to us; it seems they
should be on it, but I know, I just had a visit with my Onc and I wanted him
to do a PCR or something, and he said just wait until the potassium problem
was solved; bottom line; after I left his office, I felt he had done nothing
for me; no advice or etc. My WBC is 15 and I think he should have at least
addressed that problem.
I will keep you in my prayers, so hang in there Warrior and let me know
what's happening,
Blessings,
Jeanie<3
In a message dated 8/28/2008 9:39:50 A.M. Pacific Daylight Time,
[EMAIL PROTECTED] writes:
Hi Jeanie: We need to pray for each other. I am having a bad day too. My
Platelet count is dropping steadily month bymonth. My Oncologist never
picked-up on this, and I had to send him a Fax to show him the pattern. Now
he
wants me to get more testing. I need someone who has had this problem. You
have been through so much yourself. Who would be a good one to ask. I sent a
message to Trey, because one of the girls told me he probably could help.
Suzzie
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