Hi Skip and so glad you are back on some  treatment.
Trial and error seems to be the only way they can treat  us.
I am doing good on Tasigna so far, after a few ups and  downs.
I hope the new treatment works good for you.
Blessings,
Jeanie<3
In a message dated 12/30/2008 7:49:12 A.M. Eastern Standard Time,  
[email protected] writes:

I see  that a few of you have inquired about what is next for me.  First I 
was  without Internet and TV for over a week due to large storm, so I am sorry 
for  delay in answering.

My doctor said that he has to do something, so he  put me back on Nilotinib 
and his plan is to start me at a very low dose.   He started with 200mg a day 
and after two weeks he upped it to 400mg a day  split 200 in the morning and 
200 at night, we then will try in 3 weeks up once  more to 600?.  I have to 
have 
full blood work every Monday and CBC  Thursday, they are keeping a very close 
watch on my liver. I guess he is  trying his best by tinkering with the dose. 
Most of the other drugs I failed  due to side effects.  It is a trial and 
error situation, but on the other  hand I feel ok and still have a good quality 
of life.  

I wish to  thank all those who have e-mailed me and others who posted on 
these group with  good wishes.  I wish that Lottie was back up and around I 
miss 
her  emails

Thanks all 
SkipD
dx'ed 30++++ years  ago




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