Hi once again. Hope you all have a very healthy and happy New Years. Well my blood counts are about as low as they can go I need platelets about once or twice a week and every two weeks I receive 2 bags of HGB. My liver enzymes all shot through the roof. Gosh after a few days off Nilotinib I sure felt good. My doctor thinks if he can get my body to accept the drugs I should do well. I do caution anyone going on Dasatinib (sprycell) be careful of plural effusion http://jco.ascopubs.org/cgi/content/abstract/25/25/3908 I have to have a BCR test soon and a BMA so I will know more. My white count came up above 2.0 its now 2.8 and my ANC got off the floor of less then 200 to about 430. They were not happy when my wbc was 0.5 and ANC 150, So I guess I doing ok no real problems yet except with my ferritin count, It jumped to over 3000 but they now are to just over 1500, I know that is high but I get so many infusions that Exjade is having a hard time. So until the new year nothing new, I will be told if I go up in Nilotinib. Thanks for all your concern, Happy healthy New Year Skip dx'ed 30++++
--- On Wed, 12/31/08, Barb in AZ <[email protected]> wrote: From: Barb in AZ <[email protected]> Subject: [CMLHope] Re: What now? To: "CMLHope" <[email protected]> Date: Wednesday, December 31, 2008, 10:56 AM Hey Skip I think we discussed this before but the low dose of nilotinib has maintained my PCRU for a year. I take 400 mg once a day in the morning. So far, so good. I do still have side effects but nothing like gleevec. Good luck and I hope it continues. I forget, besides elevated liver levels, what was your CML status? Barb On Dec 30, 5:48 am, Skip Duffie <[email protected]> wrote: > I see that a few of you have inquired about what is next for me. First I was > without Internet and TV for over a week due to large storm, so I am sorry for > delay in answering. > > My doctor said that he has to do something, so he put me back on Nilotinib > and his plan is to start me at a very low dose. He started with 200mg a day > and after two weeks he upped it to 400mg a day split 200 in the morning and > 200 at night, we then will try in 3 weeks up once more to 600?. I have to > have full blood work every Monday and CBC Thursday, they are keeping a very > close watch on my liver. I guess he is trying his best by tinkering with the > dose. Most of the other drugs I failed due to side effects. It is a trial > and error situation, but on the other hand I feel ok and still have a good > quality of life. > > I wish to thank all those who have e-mailed me and others who posted on these > group with good wishes. I wish that Lottie was back up and around I miss her > emails > > Thanks all > SkipD > dx'ed 30++++ years ago --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
