Thanks for the encouragement! Frank

--- On Sat, 5/9/09, C.M. Houtz <[email protected]> wrote:

From: C.M. Houtz <[email protected]>
Subject: Re: ***SPAMTAGPTD: [CMLHope] ? Enlarged Lymph Nodes in CML
To: [email protected]
Date: Saturday, May 9, 2009, 12:06 PM

Hi Frank.  Welcome to the group.  I know that it is a very frightening time 
for you.  I'm 70 years old, was diagnosed about 10 years ago, and have been

on every drug out there.  I am now on Tasigna...but was on Gleevec for 
years.  It just stopped working for me.  It does work for most people, so 
don't worry to much.  You can ask us any questions, and we'll try our
best 
to answer.  I personally don't keep track of my numbers (blood tests,
etc.). 
It's just another thing for me to worry about, so I choose to trust my 
Oncologist.  I've had him for 15 years...since my mastectomy and trust this

man with my life.  He tells me what I need to know.  This works for me.  Not 
everyone has this type of relationship with their Onc.  We've become 
friends.  I see him in a week and will let everyone know how it's going. 
You take care and let us know how it's going for you....Millie
----- Original Message ----- 
From: "Frank" <[email protected]>
To: "CMLHope" <[email protected]>
Cc: <[email protected]>
Sent: Thursday, April 23, 2009 5:49 AM
Subject: ***SPAMTAGPTD: [CMLHope] ? Enlarged Lymph Nodes in CML


>
> Thanks for the great info site! I'm a 75 yr. old male Dx with CML last
> week at the Mayo Clinic and referred back to an Onc. in N.C.for follow-
> up. I'll be seen next week and started on Gleevec 400mg./day. My
WBC's
> were 17,700 last week with 61% Neuts, 21% Lymphs,3% Monos, 2% Eos, 3
> %Basos,2% Metamyelocytes and 8% Myelocytes.NO BLASTS. Plats.
> 460,000.Hb 13.9, Hct 40.6. Previous Wbc's were 20 to 25,000. BM pos.by
> FISH for 97.8% BCR/ABL fusion. I have several questions. Last month I
> noticed several small slightly tender lymph nodes in my neck and
> axillae, but no other areas. I've read that swollen nodes are rare in
> CML. The PET scan last week showed pelvis and spine uptake, but none
> in the nodes, liver or spleen. Is this a problem? Also, I'm on Zocar
> 20mg per day and I understand this reacts adversely with Gleevec. I've
> heard Pravachol is better.? Comments. Finally, does anyone know a CML
> SPECIALIST near Asheville N.C. or in Greenville S.C.? Thank you for
> your patience with a Newbies first post. I'm very concerned, and would
> appreciate any other suggestions.Thank Frank
>
> >
>


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