Welcome to the group Alan and so glad to meet you. Jeanie In a message dated 1/15/2010 7:16:19 P.M. Pacific Standard Time, [email protected] writes:
I am looking to hear from experienced CML warriors on what to expect during the first year of treatment in terms of quarterly BCR ABL tests and what is good and what is bad progress. I know the goal is a 3 log reduction eventually, but I am curious to find out whether that is likely to drop to that level (if it does) as a linear, monotonically decreasing function or as a something that comes down suddenly and unexpectedly in quarter three or four. I know everyone is different, I am interested in different experiences. Like Ahmed, I am a recent CML warrior, with a diagnosis in November 2009 as an unwelcome present on my 50th Birthday. My name is Alan and I'm from the US (Maryland). Chronic stage, no symptoms, high white count, the bone-marrow confirmed Ph Chromosome positive. Started Gleevec 400 mg on 11/24/2009. I have had no side effects as long as I eat and drink lots of water with the Gleevec. I'm grateful for that. I am hopeful that the Gleevec is as effective as it is tolerable for me. I did achieve a complete hematological response before Christmas (Dec 22), so my white counts and platelets, which had been elevated, are now in the normal range. That is also good but only the first station on this journey. I get my first quarterly BCR ABL (serum) test in February. What would be good progress from those who have been on this road before me? Thanks to anyone who has been there and cares to share their story of the first year of treatment. Alan
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