Wow! Carolyn, 20 mgs twice a day, how great. I am on 100 mgs on dose daily and my last BMA came back negative to CML in the bone marrow but my doctor said there was some of the disease left and that it could come back at any time. It seems that our oncs are all so different. Mine hasn't had a PCR test done yet, but he wants to do BMA every 3 months and yours wants to go by the PCR test--go figure. I was diagnosed in 04 and was on Gleevec for about 5 years-it failed and I went on Tasigna and it also failed after about 8 months. I am now on Sprycel for about 6 months and seem to be doing good on it. So glad you are dong so well. Blessings Jeanie< In a message dated 1/16/2010 7:55:21 A.M. Pacific Standard Time, [email protected] writes:
Hi Alan I am a 64 year old grandma from Wisconsin. I was diagnosed in 11-05. I was started on Gleevec and did well but was one of the very few who had liver problems because of the Gleevec. I went into liver function failure. Fortuantely the liver is a remarkable organ that regenerates and heals. I was switched to sprycel and it took awhile to find the dosage that I could tolerate. I have now been on sprycel 20mg twice a day for almost 3 years and have been pcru for over 2 years. I have very few side effects to the sprycel. As to what to expect from the first year, we all seem to be different depending upon our onocologist and their practices. During the first year, I saw my ono at least once a week for blood work for 6 months. Then it started to decrease, and now I see him only every 3 months for blood workups. He does the pcr test every three months.. I have had 3 bone marrow taps but he doesn't see any in the future and the pcr test is so accurate. We are lucky to be at this stage in the researce for a cure for cml. I feel we are on the edge of eradicating this monster. For awhile I was consumed with the disease and that is all I could focus on but life goes on and soon thing will get back to almost normal. Best of Luck to you. [email protected] ----- Original Message ----- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
