Pat viewed your e-mail about your problem. My Dr. told me to try Prevacid, and you can get over the counter now. It worked for me, you should talk to your Dr. about it. Greenie club member #48 Message----- Date: Saturday, February 20, 2010 8:33:19 pm To: "CMLHope" <[email protected]> From: "[email protected]" <[email protected]> Subject: [CMLHope] Re: More Questions About Gleevec
Thank you Marty for your prayer, and taking the time to try to give me some hope. I truly from my heart thank you. I am a living, still breathing human being but I am a MISERABLE living being. Every day....the gleevec is destroying me, I think, but I also have other health problems, I have emphysema, I am severely depressed, I am struggling financially...barely surviving, I have other personal issues going on within my family....and it's just every day is like the day before...I don't have any good days anymore so there is nothing to look forward to but more misery. I don't think I am a candidate for sprycel due to my lungs but that is an option I may have to try...and just hope for the best. I can't describe to you how bad I feel, how fatigued. Most people on gleevec gain weight, I lost weight, lost my appetite. Just simply trying to force down food is such a major task....food is revolting to me. The acid reflux is eating up my insides. I'm sorry I went into this much detail, this is things I shouldn't even be discussing here, I suppose. But thank you again for your comforting words. Love,Peace,Hope & Prayers, Pat On Feb 20, 10:15 am, Martin Gartenberg <[email protected]> wrote: > Hi Pat, > > So that you know, I am not on Gleevec or any other drug for CML. I had a > bone marrow transplant many years ago so > I can honestly tell you that I don't know what your going through. > > What I can tell you is that when you wrote "I can't go on like this much > longer, my quality of life is not worth what I'm going through". > > I just couldn't understand why you said that. You are a living breathing > human being that is loved by others that really care about you. Pat, I want > you to consider something: > > Let me use a child's See Saw as an example. There you are on one side of it, > and all of your troubles and problems are resting on your shoulders and > weighing you down. You are on the ground just sitting there in agony with no > way of being lifted up. > > Then some of the good things that are in your life start putting themselves > on the other side of that Child's See Saw. Things like your family, your > friends, anyone that cares for and about you. What happens then? You start > going up a bit, maybe even on an even plane for both sides of that Child's > See Saw. > > Don't look back Pat, always try to look forward and you will see that things > will get better for you, just keep on hanging in there because your still > alive to look forward. > > I have a special prayer that was given to me when I used to live in a > plastic bubble in the cancer ward of a hospital for many months, and I had > it pasted on the outside of that bubble facing inward. I would say this > prayer to myself all of the time, and I would never give up... NEVER! > > I would like you to also have it, and even as I read it today there are > tears in my eyes and a lump in my throat because of how very well I remember > what I went through, and how I am still here now to send it this to you. > > A PATIENT?S PRAYER > > Eternal GOD, source of healing, out of my distress I call upon you. Help me > to sense your presence at this difficult time. You have already sent me > gifts of your goodness: The skill of my physician, the concern of others who > help me, the compassion of those I love, and who love me. > > I pray that I may be worthy of all these, today and in the days to come. > Help me to banish all bitterness; *let not despair overcome me.* *Grant me > patience when the hours are heavy; give me courage whenever there is hurt or > disappointment. * > > Keep me trustful in your love, O GOD. Give me strength for today, and hope > for tomorrow. To your loving hands I commit my spirit when asleep and when > awake. You are with me; I shall not fear. Help me, O GOD, in my time of > need. > GOD bless you Pat, > > Marty > > On Sat, Feb 20, 2010 at 4:37 AM, [email protected] > <[email protected]>wrote: > > > First of all can anyone tell me if they know anything about K a.k.a. > > "I Ain't Finished Yet". She has been such a support and comfort to me > > for the 5 years I've had cml....my Gleevec fog, I just didn't realize > > I had not heard from her since the last day of Oct 2009. I sent her an > > email but it was returned. Please let me know if anyone has heard from > > her. > > In a previous post, I explained how I have never shaken the Gleevec > > side effects. I got one response from Kelly....is there anyone else in > > the group...please share your story with me. I can't go on like this > > much longer, my quality of life is not worth what I'm going through. > > Love,Peace,Hope & Prayers, Pat > > > -- > > [CMLHope] > > A support group ofhttp://cmlhope.com > > ------------------------------------------------- > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > >http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
