I was started out on 70mg bid and that was to strong. It affected my bone marrow. Dr. said it looked like I had had a bone marrow transplant. So they waited for the marrow to recover and when ithe platlets started to recover after platlet transfusiuons, I was sent to the Medical College in Milwlaukee. The Drs confered with mine and decided to try the 20mg with the thought they could always adjust higher but it was never needed. I have been on this level for over 3 years now and am pcru most of the time. Sometimes there is a very small amount of cml visable but 9 times out of 10 I am undectable. My doctor does a pcr test every 3 months even though he said the recommended time frame is every 6 months, he just feels better keeping a close watch on it. That is ok with me. God has blessed me. I am very fortunate. Carolyn ----- Original Message ----- From: [email protected] To: [email protected] Sent: Wednesday, July 28, 2010 7:53 AM Subject: [CMLHope] to carolyn why the low dose?
Hi Carolyn, That is a low dose of Sprycel. I take two 50mgs daily. Why such a low dose? Yes tired if the word. Jeanie<3 In a message dated 7/27/2010 12:52:21 P.M. Pacific Daylight Time, [email protected] writes: I started out on Gleevec in 05 and was then switched to sprycel in 06. I am on only 20mg bid but I still am tired. I seem to need that 1/2 hour nap in the pm and I do fall asleep by 9pm. I wish I had more energy but what can I expect when I am turning 65 in a few days. I am just happy to be alive and cml is undectable most of the time. God Bless and keep you all. Carolyn dx 11-05 -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
