Can you try Sprycel?
It is working for me.
Jeanie<3
 
 
In a message dated 7/28/2010 11:02:23 P.M. Pacific Daylight Time,  
[email protected] writes:

 
Hello I've been on gleevec since it dame out a dI have gained terrably in  
the legs and have water blisters fron knees down including the toes.  The  
diareea is terrable  pure water.  eyes also are swollen.did your Dr  ok the 
switch or did you have to argue with him.  my Dr says to not  switch.  what 
to do, what to do?????  JUDY  


 
____________________________________
 From: "[email protected]"  <[email protected]>
To:  [email protected]
Sent: Tue, July 27, 2010 8:33:11  AM
Subject: [CMLHope] side  effects

I was on Gleevec for 4 1/2 yrs.  I was tired, retaining fluid  (pleural 
effusions and ascites) had those horrible swollen eyes, and worst of  all had 
the "bathroom issues".  That was the worst.  If I felt like  I had to go, I 
HAD to go, like immediately!  That is pretty much the  reason I retired from 
my much loved job of teaching.  Teachers just  CANNOT go to the bathroom 
whenever they want...something people never think  about.  Due to the pleural 
effusions and ascites, I was switched to  Tasigna two years ago.  I feel 
FANTASTIC!  I lost about 9 lbs. of  fluid--no dieting and I weigh 117 lbs. 
which 
is normal for me.  No  swollen eyes, have had ct scans that show NO pleural 
effusions or  ascites, and NO MORE "bathroom issues".  I have energy to 
walk daily  exercising my two beloved doggies, swim daily, jetski, waterski, 
and in  general live a normal active life.  If I had tried Tasigna earlier, I  
probably would not have retired when I did, but it's ok because I taught 
for  35 yrs., so have a decent pension to live on.  The only down side I have  
so far with Tasigna is the fasting required for taking the drug.  I work  
it out by usually taking the pills at about 10 am and 10 pm, so I can eat  
breakfast and also dinner when I want.  I'm on 800 mg.  per day.
 
Good luck!
Nancy in NY 
-- 
[CMLHope]
A support group of  http://cmlhope.com
-------------------------------------------------

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to  [email protected]
To unsubscribe from this group, send email to  
[email protected]
For more options, visit this group at  
http://groups.google.com/group/CMLHope



-- 
[CMLHope]
A support group of _http://cmlhope.com_ (http://cmlhope.com/) 
-------------------------------------------------

You  received this message because you are subscribed to the Google Groups  
"CMLHope" group.
To post to this group, send email to  [email protected]
To unsubscribe from this group, send email to  
[email protected]
For more options, visit this group at  
_http://groups.google.com/group/CMLHope_ 
(http://groups.google.com/group/CMLHope) 

-- 
[CMLHope]
A support group of http://cmlhope.com
-------------------------------------------------

You received this message because you are subscribed to the Google Groups 
"CMLHope" group.
To post to this group, send email to [email protected]
To unsubscribe from this group, send email to 
[email protected]
For more options, visit this group at http://groups.google.com/group/CMLHope

Reply via email to