How ironic, I have issues with what I call "cysts" on my face. The Dr. lowered me to 70 mg per day since I had immediately gone into remission on 100 mg per. Well that pretty much did the trick. Now the outbreaks are much less frequent and much smaller when I do get an eruption.
On Aug 9, 2010, at 4:12 AM, Suzan Collins wrote: > > The doctor did try me on Sprycel but within the first week I broke out with > severe skin ulcers on my stomach but we did not connect the two together for > weeks because they had also given me so medicine for my bad back. So when my > doctor realized it he took me off and started me on Tasigna. > > > --- On Sun, 8/8/10, 73hunley <[email protected]> wrote: > > From: 73hunley <[email protected]> > Subject: [CMLHope] Re: remission > To: "CMLHope" <[email protected]> > Date: Sunday, August 8, 2010, 7:03 PM > > Suzan, I'm surprised you weren't placed on Sprycel first. That has > been the usual progression after gleevec. I was on gleevec for 5.5 > years before I started getting mutations that gleevec couldn't handle. > Sprycell is like 300 times stronger. I will say the side effects for > me were totally different than the gleevec. At this point I'm been on > the Sprycel for a little over a year and I'm still totally negative. > > P.S. I was diagnosed in Dec 2004 with a white count of 360,000. > > > On Aug 7, 6:09 am, Suzan Collins <[email protected]> wrote: > > Hello all I was dxed on June 4, 2004 at 98% positive. I was on Gleevec from > > then until Nov 2008 and was switched to Tasigna because of all the bad side > > effects I continued to suffer. I continue to have side effects with Tasigna > > but not as severe except now I get skin ulcers with the Tasigna. I lost 30 > > pounds right off the bat when I stopped the Gleevec which was good. HOWEVER > > my last fish test in July showed me at ZERO on the molecular level. WHOO. > > It has been a long journey as it is for all of us with side effects and all > > but what a BLESSING to get the good news. > > Suzan > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
