I do not post very often but this one called out to me. While my cml is undectable with medications, which I have taken faithfully everyday for five years, it is my understanding that if I go off meds it will surface again in a heartbeat. It bothers me when I see people taking a medication vacation. I am so grateful for the response I have had I would never chance going off. I know it is expensive but we find a way to pay our share. I am so grateful for prescription insurance. If you don't have that there are ways to get some help through either the drug company or the Leukemia society. ' By saying he is 100 cancer free does give a false sense of security. We are not 100% cancer free, but we are so lucky to live in a age were this monster of a disease can be kept under control as you said with close monitoring and frequent blood tests. God Bless you all. Carolyn ----- Original Message ----- From: [email protected] To: [email protected] Sent: Saturday, February 05, 2011 7:25 PM Subject: Re: [CMLHope] Re: Kareem Abdul Jabbar...100% cancer free?
Anyone that thinks they are "100% Cancer Free" and say the following are saying two different things: He told The Times' Broderick Turner at the time that the long-term prognosis regarding his health was good and that he could manage his condition by taking oral medication on a daily basis, consulting his specialist every other month and frequently getting his blood analyzed. This is what all us CLMers do and we are not "Cancer Free" we are in remission until we stop taking the meds. It's amazing how quickly the numbers go up when you stop the medication. Lenda ----- Original Message ----- From: "sweetbluemusic2002" <[email protected]> To: "CMLHope" <[email protected]> Sent: Saturday, February 5, 2011 4:37:18 PM Subject: [CMLHope] Re: Kareem Abdul Jabbar...100% cancer free? Here's one of the articles on it. http://lakersblog.latimes.com/lakersblog/2011/02/kareem-abdul-jabbar-tweets-that-hes-100-cancer-free.html I'm a little concerned after reading this. I explain to my family and friends all the time that while being on the daily medication is keeping the CML at bay, it's not a cure. I think his announcement is a dangerous one if anyone with CML reads it and thinks they can simply go off their meds because their numbers are good. From my understanding you're right a BMT is the only known cure... and while some have gone off their meds and their numbers have stayed low... that is not the typical result. I wish someone would write more information about it! Did he do a trial? -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
