Good morning, Suzieq,
What you described about your left ear is what I have had since I was diagnosed in 2002. I am on 20mg of Sprycell only, maintain my PCRU but that ear still feels like there is water in it. When I was on Gleevic and Prednisone was the first time I noticed it and had been checked out by an ear, nose, and throat doctor and nothing was found to justify that problem. I notice that it appears when I eat certain foods (especially sugar and carbs) and am tired. One of my Sprycell side effects is pleural effusion and find that the water in my ear could be a sign of that as well. When I take a water pill 'lasik' it goes away. Even with a low dose of Sprycell I do get light aches and pains but mostly when it is damp and/or very tired. In the meantime, I wish you powerful healing energy. Warm regards, Rita (Montreal) _____ From: [email protected] [mailto:[email protected]] On Behalf Of [email protected] Sent: March-06-11 5:38 AM To: Digest Recipients Subject: [CMLHope] Digest for [email protected] - 2 Messages in 1 Topic Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics * Problems with teeth <> [2 Updates] Topic: Problems with teeth <http://groups.google.com/group/cmlhope/t/826eb9d285e8fd83> Suzieq <[email protected]> Mar 05 03:04PM -0800 ^ <> Hi Jeanie: Good to hear from you. Ya, I notice that the symptoms come and go. Thank the Lord for that. I remember how that in the beginning, I had those deep freeze type chills.......not any more. That was probably during the first six to eight months. Same with the bad diarrhea & nausea. I still get those from time to time, but nothing like that 1st year. The only thing that seems to hang around the whole time has been the bone, joint, & muscle pain. Muscle cramps still but not as often. I think I'm going to go see my primary doc this coming week and have my ears and sinuses checked. I am beginning to think I may have an inner ear infection or something. My left ear bothers me at times & feels as if it may have water in it. My 81 yr. old mother said she needs to go have her check up, so I may make an appointment to see Kelly at the same time. (she's the nurse practitioner for our doc and we like her better, LOL) Blessings to all, Suzieq ANGELYN ESDERS <[email protected]> Mar 05 08:46PM -0800 ^ <> Your mention of deep freeze chills really caught my eye. I had 3 episodes of that before my diagnosis (I was diagnosed with CML in 2000). I would shake with cold, and my skin HURT as though I was trapped in a deep freeze. Neither hot tea, nor blankets could get me warm. I told my family doctor and he considered my age (52-53) and said it was the reverse of hot flashes! Sometimes I would get steaming hot, and sometimes freezing cold. I sure wonder where he dreamed up THAT theory from! A few months later I was diagnosed with CML. Funny, I have not heard anyone mention those deep painful chills before. I haven't had such an episode in 8 years now. Angie in Canada What lies behind us and what lies before us are tiny matters compared to what lies within us.... Angie --- On Sat, 3/5/11, Suzieq <[email protected]> wrote: Hi Jeanie: Good to hear from you. Ya, I notice that the symptoms come and go. Thank the Lord for that. I remember how that in the beginning, I had those deep freeze type chills.......not any more. That was probably during the first six to eight months. -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
