Funny you should mention the deep freeze chills. I was SO cold when I was on Gleevec that my husband would actually have to put me in a bear hug with tons of blankets to try to fight that cold. It was impossible to get rid of. Gleevec made me so tired. Then it messed my eyesight up and my memory went kaput, so they took me off of it and put me on Sprycel which really destroyed my health. It is what it is.
Keep fighting!! Kelly On Mar 6, 11:35 am, Rita Levig <[email protected]> wrote: > Good morning, Suzieq, > > What you described about your left ear is what I have had since I was > diagnosed in 2002. I am on 20mg of Sprycell only, maintain my PCRU but that > ear still feels like there is water in it. When I was on Gleevic and > Prednisone was the first time I noticed it and had been checked out by an > ear, nose, and throat doctor and nothing was found to justify that problem. > I notice that it appears when I eat certain foods (especially sugar and > carbs) and am tired. > > One of my Sprycell side effects is pleural effusion and find that the water > in my ear could be a sign of that as well. When I take a water pill 'lasik' > it goes away. Even with a low dose of Sprycell I do get light aches and > pains but mostly when it is damp and/or very tired. > > In the meantime, I wish you powerful healing energy. > > Warm regards, > > Rita (Montreal) > > _____ > > From: [email protected] [mailto:[email protected]] On Behalf > Of [email protected] > Sent: March-06-11 5:38 AM > To: Digest Recipients > Subject: [CMLHope] Digest for [email protected] - 2 Messages in 1 > Topic > > Today's Topic Summary > > Group:http://groups.google.com/group/cmlhope/topics > > * Problems with teeth <> [2 Updates] > > Topic: Problems with teeth > <http://groups.google.com/group/cmlhope/t/826eb9d285e8fd83> > > Suzieq <[email protected]> Mar 05 03:04PM -0800 ^ <> > > Hi Jeanie: > > Good to hear from you. Ya, I notice that the symptoms come and go. > Thank the Lord for that. I remember how that in the beginning, I had > those deep freeze type chills.......not any more. That was probably > during the first six to eight months. Same with the bad diarrhea & > nausea. I still get those from time to time, but nothing like that > 1st year. The only thing that seems to hang around the whole time has > been the bone, joint, & muscle pain. Muscle cramps still but not as > often. > > I think I'm going to go see my primary doc this coming week and have > my ears and sinuses checked. I am beginning to think I may have an > inner ear infection or something. My left ear bothers me at times & > feels as if it may have water in it. My 81 yr. old mother said she > needs to go have her check up, so I may make an appointment to see > Kelly at the same time. (she's the nurse practitioner for our doc and > we like her better, LOL) > > Blessings to all, > Suzieq > > ANGELYN ESDERS <[email protected]> Mar 05 08:46PM -0800 ^ <> > > Your mention of deep freeze chills really caught my eye. > I had 3 episodes of that before my diagnosis (I was diagnosed with CML in > 2000). I would shake with cold, and my skin HURT as though I was trapped in > a deep freeze. Neither hot tea, nor blankets could get me warm. > I told my family doctor and he considered my age (52-53) and said it was the > reverse of hot flashes! Sometimes I would get steaming hot, and sometimes > freezing cold. I sure wonder where he dreamed up THAT theory from! A few > months later I was diagnosed with CML. Funny, I have not heard anyone > mention those deep painful chills before. I haven't had such an episode in 8 > years now. > Angie in Canada > > What lies behind us and what lies before us are tiny matters compared to > what lies within us.... > Angie > > --- On Sat, 3/5/11, Suzieq <[email protected]> wrote: > > Hi Jeanie: > > Good to hear from you. Ya, I notice that the symptoms come and go. > Thank the Lord for that. I remember how that in the beginning, I had > those deep freeze type chills.......not any more. That was probably > during the first six to eight months. > > -- > [CMLHope] > A support group ofhttp://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group athttp://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
