Karen....I agree with Patrick...I started on Tasigna...but it attacked my pancreas..switched to Gleevec but couldn't tolerate it either. Have been on Sprycel and doing much better now. Tom in KY In a message dated 7/26/2011 2:55:09 A.M. Eastern Daylight Time, [email protected] writes:
Karen, To me your son's side effects seem severe enough to consider switching TKIs. Gleevec stopped working for me and we switched me to Tasigna. Tasigna has caused pretty extreme fatigue for me but it has been much more effective (3 weeks to normal WBC vs 9 months for Gleevec) and the side effects (for me) have been nothing compared to Gleevec. I had almost the exact same side effects on Gleevec as your son. Everyone seems to react differently to each of the available medications but it seems like something worth considering. Patrick --- On Mon, 7/25/11, Karen <[email protected]> wrote: From: Karen <[email protected]> Subject: [CMLHope] CML and Crohns disease To: "CMLHope" <[email protected]> Date: Monday, July 25, 2011, 6:28 PM my son has had crohns disease and Ankylosing Spondylitis, since he was 15, now 30. In may 2011 he was dx with CML. He has had 2 surgerys from the crohns, first one at 18 second at 28. almost lost him both times. He now is on gleevec and its having many side effects on him. He has alot of pain, stomach pain, joint pain, back pain and bad headaches, throws up alot too.. anyone know of anyone that has crohns and CML please email me, he really needs someone to talk to, that understands. thanks so much... -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mip://0c0fc088/mc/[email protected]) To unsubscribe from this group, send email to [email protected]_ (mip://0c0fc088/mc/[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
