Richard H. I was Dxed on February 12, 1997 put on Interferon until Gleevec was approved by the F.D.A. in 2001. Have been on Gleevec since that time and Cancer free since 2002. I have some cramping mostly at night not as much as I had when I was still working as a conductor on a commuter train in the Chicago area. I also get some cramps on the sides of my neck that are about the most painful of them all. They are not serious enough for me to consider a Gleevec vacation. I'm so glad to hear that you are doing so well and hope and pray that your good fortune in that and all regard continues. May God continue to Bless you. Jim Rodeghier
--- On Mon, 3/5/12, Richard H <[email protected]> wrote: From: Richard H <[email protected]> Subject: Re: [CMLHope] My Latest Results To: [email protected] Date: Monday, March 5, 2012, 10:40 PM Hoefully, it will take me a while to build back to the toxic level of 5 years. We haven't discussed using 300mg instead of 400mg. My ONC's observation is that Gleevec has the longest history of side effects to work with. I haven't totally proven that Gleevec doesn't work, we staqrted this little test to see if my body could control the CML as we know that I was not elgible for transplnt: 1. Too old. 2. no sibling match 3. using MUD was too high risk compared to the new drugs being developed at that time. My ONC has several patients on different protocols for comparision and he was a researcher Kansas Univerisity Hospital while finishing his Oncology specialist. He does consult with several of the top 15 specialists in the US and I have had several recommendations and approvals for what I am doing. The Big and Best piece of info is that I haven;t had a blast phase since I was diagnosed in 2003. My highest WBC was 96,000 as I began the regimine to take Gleevec. My goal is CONTROL CML, as I do have other serious problems that will be my cause of death. I thank God (my chosen diety) each day and he gives me the peace and tranquillity to do what is necessary to survive. Richard H. On Sunday, March 4, 2012 11:15:00 PM UTC-6, Beth wrote: Good news Richard. I am glad you can have some respit from the drug's side effects. And they are there for you when and if you need to resume. Enjoy life! Beth On Sunday, March 4, 2012 11:15:00 PM UTC-6, Beth wrote: Good news Richard. I am glad you can have some respit from the drug's side effects. And they are there for you when and if you need to resume. Enjoy life! Beth -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
