Hi Kothai:
I also had eye bleeds not so often for the first year, then they became quite frequent the second year on gleevec. At 2 1/2 years I had a brain bleed. This did not affect me permanently but I went off gleevec because of it. They tried me on the next new one, (forget the name) and one dose gave me another eye bleed. So instead of trying a third one I opted to go against the doc's orders, (I was in total remission) and not take anything. Five years later I am still not taking anything. I am still in cellular remission, thank God. I did have a stroke (more serious brain bleed) one year after going off gleevec. I do have less mobility in left side and repercussions from it. Thus my fear of going back on anything for the cml until absolutely necessary. Every day is a gift. This is not to say you will have the same reaction at all. Just what happened to me. Share with your doctor and test for how thick or thin your blood is, would be my suggestion. Also check for family history of strokes, etc. I also try to eat healthily and take many supplements to keep immune system strong. 18's Susan Zimmerman -----Original Message----- From: margood18 <[email protected]> To: cmlhope <[email protected]> Sent: Wed, May 2, 2012 8:13 am Subject: Re: [CMLHope] eye bleeding?? Hi Kothai: I have been on Gleevec since diagnosis in March 2009, bumped from 400 mg to 600 in 2010 which is when I started to experience eye bleeds. I've been told that the Gleevec can weaken the vessels in the eyes so that if you have a heavy cough or any straining, it can cause the bleeds. They are not dangerous but they do look terrible. I have eye patches that I keep with me so that if I have a bleed, I can put one on and look like a pirate! At least the patch keeps people from having to look at the horrible redness in the eye. Have not had one in several months so hang in there - we are all here to support you! Best of luck. Marcie -----Original Message----- From: Poongothai R <[email protected]> To: cmlhope <[email protected]> Sent: Wed, May 2, 2012 4:25 am Subject: [CMLHope] eye bleeding?? hi i'm kothai on Gleevec 400mg since apr 2001. i had eye bleeding occassionaly (once in a while). of late it happens very often. should i concern about it? anyone pl. share. kothai -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
