Hi all, my creatine was up to 103. Should I be worried? Why did you have to have dialysis? What were your symptoms? My Creatine and bun levels are normal. I have had my blood cleaned several times. They hook you up to a cleaning machine and it takes about 2-3 hours. My brother just had to have it done as he is in the hospital and his kidneys shut down. It is a little uncomfortable but you can bear it. Thanks Jeanie<3 In a message dated 6/14/2012 6:17:11 A.M. Eastern Daylight Time, [email protected] writes:
Hi Judy, Sorry to hear about you needing to be on dialysis. Can you tell me what your Creatinine and Bun levels are? Have they placed an access in your chest or arm yet? Do you know anything about Peritneial dialysis? Try not to be to scared because it is just something that you have to do. If you would like to learn more about it then let me know and I would be happy to help you. I have been on it for about a year and all it takes is some getting used to. 18's, Marty On Tue, Jun 12, 2012 at 11:33 PM, judy <[email protected]_ (mailto:[email protected]) > wrote: From: Martin Gartenberg <[email protected]_ (mailto:[email protected]) > To: [email protected]_ (mailto:[email protected]) Sent: Tuesday, June 12, 2012 8:23 AM Subject: Re: [CMLHope] Re: Millie that food sounds good Please excuse the tag on I have to have dialisis and I am scared to death. even more scared than when they told me I had CML could you please tell me what happens I see the Dr next week Thank you JUDY Hi Millie, There is so much to answer I will write in between your lines so I won't miss anything. Hi Marty.....Didn't know that you also have a home in PA. I'm between Tamaqua and Pottsville in a valley called Lewistown. We've been here since my husband retired from the Navy forty some years ago. It's quiet and nice living in the country. I love it. Originally I'm from San Francisco, but it's been a lot of years. This is home now. YES, I LIVE IN TWO PLACES. ONE AS YOU ALREADY KNOW, IN BOYNTON BEACH IN SOUTHEASTERN FLORIDA AND MY SECOND HOME IN A SMALL TOWN CALLED LACKAWAXEN WHICH IS IN PIKE COUNTY RIGHT OFF OF THE DELAWARE RIVER. THIS REGION IS CALLED THE UPPER DELAWARE REGION AND IT IS TRULY BEAUTIFUL. BEFORE WE MOVED TO FLORIDA WE USED TO LIVE IN STATEN ISLAND FOR 35 YEARS AND SINCE WE HAD SMALL CHILDREN AT THE TIME WE DECIDED TO BUY A HOME IN PENNSYLVANIA SO THE CHILDREN COULD GO THERE FOR VACATIONS. WE WOULD USUALLY GO UP THERE ON EVERY HOLIDAY AND WEEKENDS. WE HAVE THIS HOUSE FOR MORE THEN 25 YEARS NOW AND LOVE THE SCENERY. OUR HOME IS ACTUALLY CUT INTO THE FORREST AND WE HAVE ALL OF THE BEAUTIUL DEER COME VISIT US FOR SNACKS THAT WE GIVE THEM. We had storms last night and got 2-3 inches of rain in a short time. The creek overflowed and it scared me for a while, but we're okay. Allentown got hit hard. I must go down that way on Wed. morning, so I'm hoping that the weather will cooperate as I have to be there by 10:00. If you ever get down this way....you would always be welcome to stop by. THANK YOU FOR YOUR INVITATION BUT SINCE I HAVE TO GO TO GET DIALYSIS TREATMENTS EVERY MON, WED AND FRIDAY IT WOULD BE VERY DIFFICULT FOR ME. I WAS LUCKY TO BE ABLE TO FIND DIALYSIS CENTER UP HERE IN A TOWN CALLED HONESDALE WHICH IS ABOUT FOURTY MINUTES AWAY FROM HERE. BEFORE I LEFT FLORIDA I HAD TO GET A TREATMENT AT 3:00 AM OF FRIDAY MORNING THEN SPENT TWO DAYS ON THE ROAD DRIVING UP HERE AND THEN ON MONDAY MORNING BACK TOME DIALYSIS TREATMENT. IT IS NOT FUN BUT I HAVE TO DO IT IN ORDER TO SURVIVE. Today I'm busy cooking for Memorial Day tomorrow. I am not going overboard, but will make another pie since the strawberry one is gone. I'll make a lemon sponge, which they love too. Hope that your Memorial Day is a good one. IT SOUNDS LIKE YOUR A REAL GOOD COOK. STRAWBERRY PIE... YUMMY!!! MY FAVORITE IS CHERRY OR PECAN PIE. BUT DON'T PUT ANY OF THEM IN FRONT OF ME BECAUSE I WILL GOBBLE THEM UP Take care of yourself. I will have blood work done soon and talk to my doctors. My heart medication lowers my blood pressure and they won't change that. Like you, I deal with other things besides the CML, so just thank God that I'm still here and able to do a few things. YES THANK GOD THAT WE ARE BOTH STILL HERE. I WISH YOU GOOD LUCK ON YOUR BLOOD TEST. I'm also Diabetic and so can't have to much pie, etc......:>))))) WELL I USED TO BE DIABETIC AND HAD A STEM CELL PROCEDURE CONSISTING OF A LOT OF NEUPOGEN INJECTIONS AND MY DIABETES DISAPPEARED. ALSO THERE IS ANOTHER REASON. WHEN YOUR KIDNEYS FAIL YOUR BODY PRODUCES MORE INSULIN AND IT MATOBLIZES IT FASTER. BET YOU DIDN'T KNOW THAT... Blessings and 18's to you and yours, Millie AND RIGHR BACK AT YOU. MANY 18'S TO YOU MILLIE, STAY WELL AND GOD BLESS YOU. MARTY On Mon, Jun 11, 2012 at 10:33 AM, Suzieq <[email protected]_ (mailto:[email protected]) > wrote: Jeanie: What's "tomato Gravy"? Love to all, Suzieq -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
