Hi Judy, I see that your Creatinine level is currently at 2.4 You need to keep an eye on that level. If it continue to rise then your eventually going to need some sort of dialysis. It could be a couple of years but that all depends on your creatinine level and also your clearance. Have your doctor perform a 24 hour urine collection test called a GFR and he or she can see the exact level of clearance.
Be sure to keep drinking a lot of water and try staying away from salt in your diet. Also have your Albumin (protein level) checked. If in the future you should require dialysis there are basically two kinds. One is the traditional hemo dialysis where you go to a dialysis center three days a week and sit in a reclining chair for four hours. You will first have to have either an implant in your arm called a shunt or access point, or have one put into your chest called an opti-flo. This is good for a temporary solution because it is usually not as efficient as the one in your arm. Then there is what is called peritoneal dialysis that you can do at home. They put in a small catheter into your abdomen and the first month you have a 2.5 liter bag of glucose drip into your abdomen which takes usually about twenty minutes. You leave it in there for four hours in which time you can go about your business and after the four hours you just drain it out. You must repeat this process for four times daily for the first month. It is called manual peritoneal dialysis. You must be very careful about infections. You must ware a mask and gloves every time you handle the catheter. You must always thourally wash your hands. They will deliver about 30 cartons of the dialysis fluid, each carton contains 5 bags and you have to be able to store all of this in your house. After the first month you will be given a machine and you put the bag of glosose into it then connect it up to your catheter and go to sleep for the night. All of the exchanges are done automatically and when you get up in the morning your dialysis is finished for the day. You must do this every day for the rest of your life, but it sure beats going to a dialysis center three times a week for four hours each time. I know because I did try that peritoneal dialysis but unfortunately it didn't work out for me. So I am on Hemo Dialysis until I can get a kidney transplant. Don't be upset about this because at least there is something that can and will keep you alive. Sure it is inconvenient but you will find ways around it and just go on with your life. How do I know? Because I am on Hemo Dialysis and am still able to do most of what I used to do before it. If you ever need any information or advice just get in touch with me and I will help you out. 18's (Symbol for life) Marty On Sat, Jun 16, 2012 at 10:13 PM, judy <[email protected]> wrote: > thanks for answering back the bun to 48 and the creatinine is 2.4 they > wanted me to take a class but the lady doesn't call bak any way I volunteer > at the masonic rest home and got to talk to one of the patients and he told > me things like the arm surgery(day surgery) and going to the center for > the dialasys ( he goes 3 times a week. WHOW. for 4 hrs each time. > anything else is I am learning as I go alone any help is greatly > appreciated. please put my name in the subject column so I really pay > attention and don't delite you.thank you so much. JUDY > > > *From:* Martin Gartenberg <[email protected]> > *To:* [email protected] > *Sent:* Saturday, June 16, 2012 9:10 PM > *Subject:* Re: [CMLHope] Re: Millie that food sounds good question-- > about dialysis > > Hi Greenie and Jeanie, > > Jeanie, I think that your making a mistake about your Creatinine level > being at 103. You probably misread it The correct number should be 1.03 or > 1.3 just like Greenie's is and has been for years. > > Greenie, I don't know why your doctor is telling you that your Creatinine > is high. With a count like yours it is perfectly normal. I wish mine were > that low... > > 18's, > > Marty > > On Sat, Jun 16, 2012 at 2:42 PM, <[email protected]> wrote: > > ** > Jeanie, my creatinine is between 1.3 and 1.4, it's been that way for > years. My Doctor keeps telling me it's high but it was that way before I > had CML. > > greenie > > In a message dated 6/14/2012 5:10:21 P.M. Eastern Daylight Time, > [email protected] writes: > > Hi all, my creatine was up to 103. Should I be worried? Why did you have > to have dialysis? What were your symptoms? My Creatine and bun levels > are normal. I have had my blood cleaned several times. They hook you up > to a cleaning machine and it takes about 2-3 hours. My brother just had to > have it done as he is in the hospital and his kidneys shut down. It is a > little uncomfortable but you can bear it. > Thanks Jeanie<3 > > In a message dated 6/14/2012 6:17:11 A.M. Eastern Daylight Time, > [email protected] writes: > > Hi Judy, > > Sorry to hear about you needing to be on dialysis. Can you tell me what > your Creatinine and Bun levels are? Have they placed an access in your > chest or arm yet? Do you know anything about Peritneial dialysis? > > Try not to be to scared because it is just something that you have to do. > If you would like to learn more about it then let me know and I would be > happy to help you. I have been on it for about a year and all it takes is > some getting used to. > > 18's, > > Marty > > On Tue, Jun 12, 2012 at 11:33 PM, judy <[email protected]> wrote: > > > > *From:* Martin Gartenberg <[email protected]> > *To:* [email protected] > *Sent:* Tuesday, June 12, 2012 8:23 AM > *Subject:* Re: [CMLHope] > Re: Millie that food sounds good > Please excuse the tag on I have to have dialisis and I am scared to > death. even more scared than when they told me I had CML could you > please tell me what happens I see the Dr next week Thank you JUDY > > Hi Millie, > > There is so much to answer I will write in between your lines so I won't > miss anything. > > Hi Marty.....Didn't know that you also have a home in PA. I'm between > Tamaqua and Pottsville in a valley called Lewistown. We've been here > since my husband retired from the Navy forty some years ago. It's quiet > and nice living in the country. I love it. Originally I'm from San > Francisco, but it's been a lot of years. This is home now. > > YES, I LIVE IN TWO PLACES. ONE AS YOU ALREADY KNOW, IN BOYNTON BEACH IN > SOUTHEASTERN FLORIDA AND MY SECOND HOME IN A SMALL TOWN CALLED LACKAWAXEN > WHICH IS IN PIKE COUNTY RIGHT OFF OF THE DELAWARE RIVER. THIS REGION IS > CALLED THE UPPER DELAWARE REGION AND IT IS TRULY BEAUTIFUL. > > BEFORE WE MOVED TO FLORIDA WE USED TO LIVE IN STATEN ISLAND FOR 35 YEARS > AND SINCE WE HAD SMALL CHILDREN AT THE TIME WE DECIDED TO BUY A HOME IN > PENNSYLVANIA SO THE CHILDREN COULD GO THERE FOR VACATIONS. WE WOULD USUALLY > GO UP THERE ON EVERY HOLIDAY AND WEEKENDS. WE HAVE THIS HOUSE FOR MORE THEN > 25 YEARS NOW AND LOVE THE SCENERY. OUR HOME IS ACTUALLY CUT INTO THE > FORREST AND WE HAVE ALL OF THE BEAUTIUL DEER COME VISIT US FOR SNACKS THAT > WE GIVE THEM. > > We had storms last night and got 2-3 inches of rain in a short time. > The creek overflowed and it scared me for a while, but we're okay. > Allentown got hit hard. I must go down that way on Wed. morning, so I'm > hoping that the weather will cooperate as I have to be there by 10:00. > If you ever get down this way....you would always be welcome to stop by. > > THANK YOU FOR YOUR INVITATION BUT SINCE I HAVE TO GO TO GET DIALYSIS > TREATMENTS EVERY MON, WED AND FRIDAY IT WOULD BE VERY DIFFICULT FOR ME. I > WAS LUCKY TO BE ABLE TO FIND DIALYSIS CENTER UP HERE IN A TOWN CALLED > HONESDALE WHICH IS ABOUT FOURTY MINUTES AWAY FROM HERE. BEFORE I LEFT > FLORIDA I HAD TO GET A TREATMENT AT 3:00 AM OF FRIDAY MORNING THEN SPENT > TWO DAYS ON THE ROAD DRIVING UP HERE AND THEN ON MONDAY MORNING BACK TOME > DIALYSIS TREATMENT. IT IS NOT FUN BUT I HAVE TO DO IT IN ORDER TO SURVIVE. > > Today I'm busy cooking for Memorial Day tomorrow. I am not going > overboard, but will make another pie since the strawberry one is gone. > I'll make a lemon sponge, which they love too. Hope that your Memorial > Day is a good one. > > IT SOUNDS LIKE YOUR A REAL GOOD COOK. STRAWBERRY PIE... YUMMY!!! MY > FAVORITE IS CHERRY OR PECAN PIE. BUT DON'T PUT ANY OF THEM IN FRONT OF ME > BECAUSE I WILL GOBBLE THEM UP > > Take care of yourself. I will have blood work done soon and talk to > my doctors. My heart medication lowers my blood pressure and they won't > change that. Like you, I deal with other things besides the CML, so just > thank God that I'm still here and able to do a few things. > > YES THANK GOD THAT WE ARE BOTH STILL HERE. I WISH YOU GOOD LUCK ON YOUR > BLOOD TEST. > > > I'm also Diabetic and so can't have to much pie, etc......:>))))) > > WELL I USED TO BE DIABETIC AND HAD A STEM CELL PROCEDURE CONSISTING OF A > LOT OF NEUPOGEN INJECTIONS AND MY DIABETES DISAPPEARED. ALSO THERE IS > ANOTHER REASON. WHEN YOUR KIDNEYS FAIL YOUR BODY PRODUCES MORE INSULIN AND > IT MATOBLIZES IT FASTER. BET YOU DIDN'T KNOW THAT... > > Blessings and 18's to you and yours, > Millie > > AND RIGHR BACK AT YOU. MANY 18'S TO YOU MILLIE, STAY WELL AND GOD BLESS > YOU. > > MARTY > > On Mon, Jun 11, 2012 at 10:33 AM, Suzieq <[email protected]>wrote: > > Jeanie: > What's "tomato Gravy"? > > Love to all, > Suzieq > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com/ > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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