Hi Kelly, didn't know you were on Tasi. We have a special Tasi group if you would like to join. I had those boils when I first was diagnosed and was on Gleevec. They were awful and would come in pairs of three. I only know of one other person on the list that had them. I would treat them and as one bunch would go away another one would begin. Very Painful. They finally went away but it was bad for a while. Also had a terrible rash on Gleevec. Glad you are doing good on it and it seems when one thing get better we seem to have something else. Tasi only worked for me for 8 months and I my platelets went right back up as in the beginning. However, the people on our Tasi list are all doing good. I will send you an invitation. Jeanie<3 In a message dated 6/15/2012 4:51:31 P.M. Eastern Daylight Time, [email protected] writes:
Hi ladies and gents! I thought I posted my current status but am having trouble finding it, maybe it didn't post or maybe I'm just not finding it :) So, 4 months of Tasigna and I am in complete remission (Hurray!). Also, saw my pulmonologist and they are going to try to wean me off the pulmonary hypertension pump (Remodulin) Hurray, hurray, hurray!! So...now for my current whiney little woes - I have developed Herpes I rashes on my back, it comes and goes. My GP told me that it is common in leukemia patients. A cold sore on my back...sheesh...doesn't hurt, seems to run along the nerve pathways and itches like the dickens. My GP prescribed a cream that eliminates the rash within about a week. So, no big deal, just annoying. At first I thought it was spider bites, WRONG. Now...within the last 2 months I have developed 4 boils. This last one was a doozy - doc had to cut it open today and drain the funk out and then pack it. Not fun. I have never in my life had a boil, now I seem to be plagued with them!! My GP does not know what is causing them. He initially told me to use an antibacterial soap like Dial or Lever 2000, I do, daily. Doesn't seem to be working. He did take a culture from my nose today stating that I could be a Staph carrier (ewww). Possibly my immune system is compromised and that's why I'm developing these skin problems? He also said I developed cellulitis from this last one - my leg is HUGE. I told him I think I'm incubating an alien in there....hard as a rock and hurts like hell! Bleh...so there's my boo hoo baby cry story. Just wondering if anyone else has developed "new" problems like mine. Taking Keflex 4x a day and I go back to the doc on Monday. Good thing I didn't put it off, sepsis is deadly! I tend to put things off because my medical bills are overwhelming and I can't pay them....just can't worry about it, right? Happy Dad's day to all you great fathers out there! Bless you all - 18s Kelly -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope
