Hi Marty, I am sorry but I didn't mean that I have to have my blood cleansed now; I was talking about the times that my blood counts went so high in the past. No it wasn't the creatinine level that caused me to have my blood cleansed. It was the high platelet and WBC counts that caused the cleaning. Sorry about that. I was 5 years on Gleevec and I had my blood cleansed right after my diagnosis. Then Gleevec stopped working for me and my platelets and WBC soared once again; blood cleansing again. I was put on Tasigna and it worked for me for 8 months; Platelets and WBC soared again; blood cleansing again because my Onc wouldn't put me on Sprycel. Finally while I was in the hospital on huge doses of Gleevec and Hydrea, which wasn't working, a nurse from the Moffitt Center came in and talked to me asking me why I wasn't on Sprycel. I told her my onc wouldn't put me on it. She must have talked to him, because a little later he came in and gave me a prescription for Sprycel. The hospital I was in didn't have it and acted like they couldn't get it, so my son took it to Walgreens and they had it in a few hours. I had more blood cleansing done and was sent home to take my Sprycel and see what would happen. As I was very unhappy with my onc at that time, I finally got into Moffitt Cancer Center. They did a couple of Bone Marrow Aspirations and I was in remission in 3 months. I had never reached full remission on the other drugs. I am good now and will have my 3 month check up in July. Thanks and good luck on your treatments. Jeanie<3 In a message dated 6/30/2012 6:45:06 A.M. Eastern Daylight Time, [email protected] writes:
Hi Jeanie, I just can't understand why you need to have your "blood cleaned" with such a low creatinine level??? Is there some underlying issue that your not aware of? My dialysis sessions are boring but I try to keep myself busy. It is actually a rest for me for four hours because when I am at home I have to fix everything that is broken. My hot water heater went and I had to replace it. Then came the dishwasher and I was able to fix that. So, I guess that I am able to get some rest sitting in that dialysis chair... Your HGB is good at 13.1 so count your blessings Could be a lot of reasons your HGB jumped up but don't put a jinx on it. 18's, Marty On Fri, Jun 29, 2012 at 6:20 PM, <[email protected]_ (mailto:[email protected]) > wrote: Hi Mary, Yes I'll take a run hehe. Thanks. My report says it is high so it was probably only a few points high..My lab says that the high level is 0.93. I think different labs report things differently. How is your treatments going. I have had to have my blood cleaned 3 times and it is similar to your dialysis. They put the cleaning tube in my neck. When did your creatinine start going up and how did it make you feel? My HMG was about 11 and then it jumped to 13; I was so happy with that. Why do you think the creatinine jumped up? What does your doctor say about this. More later---Jeanie<3 In a message dated 6/27/2012 10:11:36 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Jeanie, Your Creatinine level is just about perfect. Normal is up to 1.3 and since your at 1.03 you have nothing to worry about. If your Creatinine was 103 then you wouldn't be here typing this... I am currently on dialysis and it had to be started once my Creatinine reached 5.0 so you have a very very loooooong way to go if at all. Your Hemoglobin says that your feeling fine because it is at 13.8 When your kidneys start failing your Hemoglobin will usually drop. Your kidneys produce a hormone that goes to your bone marrow to help make more Hemoglobin. So, go out and run around the block a couple of times and your still going to feel good. 18's, Marty On Wed, Jun 27, 2012 at 4:03 PM, <[email protected]_ (mailto:[email protected]) > wrote: Hi and yes I did make a mistake on reporting my creatinine levels. The correct number is 1.03 and the normal range is 0.60-0.93 mg/dl. My last reading was 1/0/ My Bun/Creatinine level is normal at 19 and m oreal is 6-22 (calc) Thanks for bringing that to my attention. Here are my other blood results; most were in the normal range. WBC 9.8 Normal is 3.8-10.8 RBC 4.63 Normal is 3.80-5.10 HEMOGLOBIN 13.8 NORMAL IS 11/7-15.5 PLATELET COUNT 302 NORMAL 140-400 ABSOLUTE LYMPHOCYTES 3979 HIGH NORMAL IS 850-3900 Everything else is in the normal range. If anyone would like any more of these results let me know. I had a lung xray and heart ultrasound. all was normal. Blessings. Jeanie<3 In a message dated 6/25/2012 6:31:56 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Greenie good to hear from you. What is that compared to mine at 103. That was the way it was reported on my account. Thanks Jeanie<3 In a message dated 6/16/2012 5:42:28 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Jeanie, my creatinine is between 1.3 and 1.4, it's been that way for years. My Doctor keeps telling me it's high but it was that way before I had CML. greenie In a message dated 6/14/2012 5:10:21 P.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi all, my creatine was up to 103. Should I be worried? Why did you have to have dialysis? What were your symptoms? My Creatine and bun levels are normal. I have had my blood cleaned several times. They hook you up to a cleaning machine and it takes about 2-3 hours. My brother just had to have it done as he is in the hospital and his kidneys shut down. It is a little uncomfortable but you can bear it. Thanks Jeanie<3 In a message dated 6/14/2012 6:17:11 A.M. Eastern Daylight Time, [email protected]_ (mailto:[email protected]) writes: Hi Judy, Sorry to hear about you needing to be on dialysis. Can you tell me what your Creatinine and Bun levels are? Have they placed an access in your chest or arm yet? Do you know anything about Peritneial dialysis? Try not to be to scared because it is just something that you have to do. If you would like to learn more about it then let me know and I would be happy to help you. I have been on it for about a year and all it takes is some getting used to. 18's, Marty On Tue, Jun 12, 2012 at 11:33 PM, judy <[email protected]_ (mailto:[email protected]) > wrote: From: Martin Gartenberg <[email protected]_ (mailto:[email protected]) > To: [email protected]_ (mailto:[email protected]) Sent: Tuesday, June 12, 2012 8:23 AM Subject: Re: [CMLHope] Re: Millie that food sounds good Please excuse the tag on I have to have dialisis and I am scared to death. even more scared than when they told me I had CML could you please tell me what happens I see the Dr next week Thank you JUDY Hi Millie, There is so much to answer I will write in between your lines so I won't miss anything. Hi Marty.....Didn't know that you also have a home in PA. I'm between Tamaqua and Pottsville in a valley called Lewistown. We've been here since my husband retired from the Navy forty some years ago. It's quiet and nice living in the country. I love it. Originally I'm from San Francisco, but it's been a lot of years. This is home now. YES, I LIVE IN TWO PLACES. ONE AS YOU ALREADY KNOW, IN BOYNTON BEACH IN SOUTHEASTERN FLORIDA AND MY SECOND HOME IN A SMALL TOWN CALLED LACKAWAXEN WHICH IS IN PIKE COUNTY RIGHT OFF OF THE DELAWARE RIVER. THIS REGION IS CALLED THE UPPER DELAWARE REGION AND IT IS TRULY BEAUTIFUL. BEFORE WE MOVED TO FLORIDA WE USED TO LIVE IN STATEN ISLAND FOR 35 YEARS AND SINCE WE HAD SMALL CHILDREN AT THE TIME WE DECIDED TO BUY A HOME IN PENNSYLVANIA SO THE CHILDREN COULD GO THERE FOR VACATIONS. WE WOULD USUALLY GO UP THERE ON EVERY HOLIDAY AND WEEKENDS. WE HAVE THIS HOUSE FOR MORE THEN 25 YEARS NOW AND LOVE THE SCENERY. OUR HOME IS ACTUALLY CUT INTO THE FORREST AND WE HAVE ALL OF THE BEAUTIUL DEER COME VISIT US FOR SNACKS THAT WE GIVE THEM. We had storms last night and got 2-3 inches of rain in a short time. The creek overflowed and it scared me for a while, but we're okay. Allentown got hit hard. I must go down that way on Wed. morning, so I'm hoping that the weather will cooperate as I have to be there by 10:00. If you ever get down this way....you would always be welcome to stop by. THANK YOU FOR YOUR INVITATION BUT SINCE I HAVE TO GO TO GET DIALYSIS TREATMENTS EVERY MON, WED AND FRIDAY IT WOULD BE VERY DIFFICULT FOR ME. I WAS LUCKY TO BE ABLE TO FIND DIALYSIS CENTER UP HERE IN A TOWN CALLED HONESDALE WHICH IS ABOUT FOURTY MINUTES AWAY FROM HERE. BEFORE I LEFT FLORIDA I HAD TO GET A TREATMENT AT 3:00 AM OF FRIDAY MORNING THEN SPENT TWO DAYS ON THE ROAD DRIVING UP HERE AND THEN ON MONDAY MORNING BACK TOME DIALYSIS TREATMENT. IT IS NOT FUN BUT I HAVE TO DO IT IN ORDER TO SURVIVE. Today I'm busy cooking for Memorial Day tomorrow. I am not going overboard, but will make another pie since the strawberry one is gone. I'll make a lemon sponge, which they love too. Hope that your Memorial Day is a good one. IT SOUNDS LIKE YOUR A REAL GOOD COOK. STRAWBERRY PIE... YUMMY!!! MY FAVORITE IS CHERRY OR PECAN PIE. BUT DON'T PUT ANY OF THEM IN FRONT OF ME BECAUSE I WILL GOBBLE THEM UP Take care of yourself. I will have blood work done soon and talk to my doctors. My heart medication lowers my blood pressure and they won't change that. Like you, I deal with other things besides the CML, so just thank God that I'm still here and able to do a few things. YES THANK GOD THAT WE ARE BOTH STILL HERE. I WISH YOU GOOD LUCK ON YOUR BLOOD TEST. I'm also Diabetic and so can't have to much pie, etc......:>))))) WELL I USED TO BE DIABETIC AND HAD A STEM CELL PROCEDURE CONSISTING OF A LOT OF NEUPOGEN INJECTIONS AND MY DIABETES DISAPPEARED. ALSO THERE IS ANOTHER REASON. WHEN YOUR KIDNEYS FAIL YOUR BODY PRODUCES MORE INSULIN AND IT MATOBLIZES IT FASTER. BET YOU DIDN'T KNOW THAT... Blessings and 18's to you and yours, Millie AND RIGHR BACK AT YOU. MANY 18'S TO YOU MILLIE, STAY WELL AND GOD BLESS YOU. MARTY On Mon, Jun 11, 2012 at 10:33 AM, Suzieq <[email protected]_ (mailto:[email protected]) > wrote: Jeanie: What's "tomato Gravy"? Love to all, Suzieq -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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