Hi Jeanie, Now what your saying makes sense. What a moron your previous doctor was, it's good that you got rid of him. Glad that your now doing well.
I have to go and get a dialysis treatment this afternoon. I am looking into a kidney transplant. 18's Marty On Sun, Jul 1, 2012 at 10:29 AM, <[email protected]> wrote: > ** > Hi Marty, I am sorry but I didn't mean that I have to have my blood > cleansed now; I was talking about the times that my blood counts went so > high in the past. No it wasn't the creatinine level that caused me to have > my blood cleansed. It was the high platelet and WBC counts that caused the > cleaning. Sorry about that. I was 5 years on Gleevec and I had my blood > cleansed right after my diagnosis. Then Gleevec stopped working for me and > my platelets and WBC soared once again; blood cleansing again. I was put > on Tasigna and it worked for me for 8 months; Platelets and WBC soared > again; blood cleansing again because my Onc wouldn't put me on Sprycel. > Finally while I was in the hospital on huge doses of Gleevec and Hydrea, > which wasn't working, a nurse from the Moffitt Center came in and talked to > me asking me why I wasn't on Sprycel. I told her my onc wouldn't put me on > it. She must have talked to him, because a little later he came in and > gave me a prescription for Sprycel. The hospital I was in didn't have it > and acted like they couldn't get it, so my son took it to Walgreens and > they had it in a few hours. I had more blood cleansing done and was sent > home to take my Sprycel and see what would happen. As I was very unhappy > with my onc at that time, I finally got into Moffitt Cancer Center. They > did a couple of Bone Marrow Aspirations and I was in remission in 3 > months. I had never reached full remission on the other drugs. > I am good now and will have my 3 month check up in July. > Thanks and good luck on your treatments. > Jeanie<3 > > In a message dated 6/30/2012 6:45:06 A.M. Eastern Daylight Time, > [email protected] writes: > > Hi Jeanie, > > I just can't understand why you need to have your "blood cleaned" with > such a low creatinine level??? Is there some underlying issue that your not > aware of? > > My dialysis sessions are boring but I try to keep myself busy. It is > actually a rest for me for four hours because when I am at home I have to > fix everything that is broken. My hot water heater went and I had to > replace it. Then came the dishwasher and I was able to fix that. So, I > guess that I am able to get some rest sitting in that dialysis chair... > > Your HGB is good at 13.1 so count your blessings Could be a lot of reasons > your HGB jumped up but don't put a jinx on it. > > 18's, > > Marty > > On Fri, Jun 29, 2012 at 6:20 PM, <[email protected]> wrote: > >> ** >> Hi Mary, Yes I'll take a run hehe. Thanks. My report says it is high so >> it was probably only a few points high..My lab says that the high level is >> 0.93. I think different labs report things differently. How is your >> treatments going. I have had to have my blood cleaned 3 times and it is >> similar to your dialysis. They put the cleaning tube in my neck. When did >> your creatinine start going up and how did it make you feel? My HMG was >> about 11 and then it jumped to 13; I was so happy with that. Why do you >> think the creatinine jumped up? What does your doctor say about this. >> More later---Jeanie<3 >> >> In a message dated 6/27/2012 10:11:36 P.M. Eastern Daylight Time, >> [email protected] writes: >> >> Hi Jeanie, >> >> Your Creatinine level is just about perfect. Normal is up to 1.3 and >> since your at 1.03 you have nothing to worry about. If your Creatinine was >> 103 then you wouldn't be here typing this... >> >> I am currently on dialysis and it had to be started once my Creatinine >> reached 5.0 so you have a very very loooooong way to go if at all. >> >> Your Hemoglobin says that your feeling fine because it is at 13.8 When >> your kidneys start failing your Hemoglobin will usually drop. Your kidneys >> produce a hormone that goes to your bone marrow to help make more >> Hemoglobin. So, go out and run around the block a couple of times and your >> still going to feel good. >> >> 18's, >> >> Marty >> >> On Wed, Jun 27, 2012 at 4:03 PM, <[email protected]> wrote: >> >>> ** >>> Hi and yes I did make a mistake on reporting my creatinine levels. The >>> correct number is 1.03 and the normal range is 0.60-0.93 mg/dl. My last >>> reading was 1/0/ My Bun/Creatinine level is normal at 19 and m oreal is >>> 6-22 (calc) Thanks for bringing that to my attention. >>> Here are my other blood results; most were in the normal range. >>> WBC 9.8 Normal is 3.8-10.8 >>> RBC 4.63 Normal is 3.80-5.10 >>> HEMOGLOBIN 13.8 NORMAL IS 11/7-15.5 >>> PLATELET COUNT 302 NORMAL 140-400 >>> ABSOLUTE LYMPHOCYTES 3979 HIGH NORMAL IS 850-3900 >>> Everything else is in the normal range. >>> If anyone would like any more of these results let me know. >>> I had a lung xray and heart ultrasound. all was normal. >>> Blessings. >>> Jeanie<3 >>> >>> In a message dated 6/25/2012 6:31:56 P.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Hi Greenie good to hear from you. What is that compared to mine at >>> 103. That was the way it was reported on my account. >>> Thanks Jeanie<3 >>> >>> In a message dated 6/16/2012 5:42:28 P.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Jeanie, my creatinine is between 1.3 and 1.4, it's been that way for >>> years. My Doctor keeps telling me it's high but it was that way before I >>> had CML. >>> >>> greenie >>> >>> In a message dated 6/14/2012 5:10:21 P.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Hi all, my creatine was up to 103. Should I be worried? Why did you >>> have to have dialysis? What were your symptoms? My Creatine and bun >>> levels are normal. I have had my blood cleaned several times. They hook >>> you up to a cleaning machine and it takes about 2-3 hours. My brother just >>> had to have it done as he is in the hospital and his kidneys shut down. It >>> is a little uncomfortable but you can bear it. >>> Thanks Jeanie<3 >>> >>> In a message dated 6/14/2012 6:17:11 A.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Hi Judy, >>> >>> Sorry to hear about you needing to be on dialysis. Can you tell me what >>> your Creatinine and Bun levels are? Have they placed an access in your >>> chest or arm yet? Do you know anything about Peritneial dialysis? >>> >>> Try not to be to scared because it is just something that you have to >>> do. If you would like to learn more about it then let me know and I would >>> be happy to help you. I have been on it for about a year and all it takes >>> is some getting used to. >>> >>> 18's, >>> >>> Marty >>> >>> On Tue, Jun 12, 2012 at 11:33 PM, judy <[email protected]> wrote: >>> >>>> >>>> >>>> *From:* Martin Gartenberg <[email protected]> >>>> *To:* [email protected] >>>> *Sent:* Tuesday, June 12, 2012 8:23 AM >>>> *Subject:* Re: [CMLHope] >>>> Re: Millie that food sounds good >>>> Please excuse the tag on I have to have dialisis and I am scared to >>>> death. even more scared than when they told me I had CML could you >>>> please tell me what happens I see the Dr next week Thank you JUDY >>>> >>>> Hi Millie, >>>> >>>> There is so much to answer I will write in between your lines so I >>>> won't miss anything. >>>> >>>> Hi Marty.....Didn't know that you also have a home in PA. I'm >>>> between Tamaqua and Pottsville in a valley called Lewistown. We've been >>>> here since my husband retired from the Navy forty some years ago. It's >>>> quiet and nice living in the country. I love it. Originally I'm from >>>> San Francisco, but it's been a lot of years. This is home now. >>>> >>>> YES, I LIVE IN TWO PLACES. ONE AS YOU ALREADY KNOW, IN BOYNTON BEACH IN >>>> SOUTHEASTERN FLORIDA AND MY SECOND HOME IN A SMALL TOWN CALLED LACKAWAXEN >>>> WHICH IS IN PIKE COUNTY RIGHT OFF OF THE DELAWARE RIVER. THIS REGION IS >>>> CALLED THE UPPER DELAWARE REGION AND IT IS TRULY BEAUTIFUL. >>>> >>>> BEFORE WE MOVED TO FLORIDA WE USED TO LIVE IN STATEN ISLAND FOR 35 >>>> YEARS AND SINCE WE HAD SMALL CHILDREN AT THE TIME WE DECIDED TO BUY A HOME >>>> IN PENNSYLVANIA SO THE CHILDREN COULD GO THERE FOR VACATIONS. WE WOULD >>>> USUALLY GO UP THERE ON EVERY HOLIDAY AND WEEKENDS. WE HAVE THIS HOUSE FOR >>>> MORE THEN 25 YEARS NOW AND LOVE THE SCENERY. OUR HOME IS ACTUALLY CUT INTO >>>> THE FORREST AND WE HAVE ALL OF THE BEAUTIUL DEER COME VISIT US FOR SNACKS >>>> THAT WE GIVE THEM. >>>> >>>> We had storms last night and got 2-3 inches of rain in a short >>>> time. The creek overflowed and it scared me for a while, but we're >>>> okay. Allentown got hit hard. I must go down that way on Wed. morning, >>>> so I'm hoping that the weather will cooperate as I have to be there by >>>> 10:00. If you ever get down this way....you would always be welcome to >>>> stop by. >>>> >>>> THANK YOU FOR YOUR INVITATION BUT SINCE I HAVE TO GO TO GET DIALYSIS >>>> TREATMENTS EVERY MON, WED AND FRIDAY IT WOULD BE VERY DIFFICULT FOR ME. I >>>> WAS LUCKY TO BE ABLE TO FIND DIALYSIS CENTER UP HERE IN A TOWN CALLED >>>> HONESDALE WHICH IS ABOUT FOURTY MINUTES AWAY FROM HERE. BEFORE I LEFT >>>> FLORIDA I HAD TO GET A TREATMENT AT 3:00 AM OF FRIDAY MORNING THEN SPENT >>>> TWO DAYS ON THE ROAD DRIVING UP HERE AND THEN ON MONDAY MORNING BACK TOME >>>> DIALYSIS TREATMENT. IT IS NOT FUN BUT I HAVE TO DO IT IN ORDER TO SURVIVE. >>>> >>>> Today I'm busy cooking for Memorial Day tomorrow. I am not going >>>> overboard, but will make another pie since the strawberry one is gone. >>>> I'll make a lemon sponge, which they love too. Hope that your Memorial >>>> Day is a good one. >>>> >>>> IT SOUNDS LIKE YOUR A REAL GOOD COOK. STRAWBERRY PIE... YUMMY!!! MY >>>> FAVORITE IS CHERRY OR PECAN PIE. BUT DON'T PUT ANY OF THEM IN FRONT OF ME >>>> BECAUSE I WILL GOBBLE THEM UP >>>> >>>> Take care of yourself. I will have blood work done soon and talk >>>> to my doctors. My heart medication lowers my blood pressure and they >>>> won't change that. Like you, I deal with other things besides the CML, >>>> so just thank God that I'm still here and able to do a few things. >>>> >>>> YES THANK GOD THAT WE ARE BOTH STILL HERE. I WISH YOU GOOD LUCK ON YOUR >>>> BLOOD TEST. >>>> >>>> >>>> I'm also Diabetic and so can't have to much pie, etc......:>))))) >>>> >>>> WELL I USED TO BE DIABETIC AND HAD A STEM CELL PROCEDURE CONSISTING OF >>>> A LOT OF NEUPOGEN INJECTIONS AND MY DIABETES DISAPPEARED. ALSO THERE IS >>>> ANOTHER REASON. WHEN YOUR KIDNEYS FAIL YOUR BODY PRODUCES MORE INSULIN AND >>>> IT MATOBLIZES IT FASTER. BET YOU DIDN'T KNOW THAT... >>>> >>>> Blessings and 18's to you and yours, >>>> Millie >>>> >>>> AND RIGHR BACK AT YOU. MANY 18'S TO YOU MILLIE, STAY WELL AND GOD BLESS >>>> YOU. >>>> >>>> MARTY >>>> >>>> On Mon, Jun 11, 2012 at 10:33 AM, Suzieq <[email protected]>wrote: >>>> >>>> Jeanie: >>>> What's "tomato Gravy"? >>>> >>>> Love to all, >>>> Suzieq >>>> >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> >>>> >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To 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