Hi Susan, I have also tried doing that but it didn't work. It is called peritoneal dialysis and a catheter is placed into your abdomen and you infuse special bags of glucose based dialyses.
It was able to go into but it didn't come out and I had to get another round of surgery to remove it. My abdomen is full of scars from all of that because they tried doing it three times but it just didn't work. Since I also had my spleen removed because of having CML that also left a big scar in my abdomen so that was probably another problem for not being able to do the peritoneal dialysis at home. Believe me if is out there then I am going to find out about it. I even tried stem cell therapy to try and help my kidneys, but it also didn't work. However, what it did do was to get rid of my diabetes. I used to be on insulin but now I don't need any more of that, and my sugar levels are around 98 to about 110 in the mornings. Since insurance didn't cover it I had to pay, and it was very expensive to say the least. If I do get a kidney transplant I will have to be on immunosurpressive drugs for the rest of my life and they usually but not always cause diabetes. So, that's about it and I am just like Pop Eye the sailor man... I am what I am. It's all about attitude and most of all, hope. I would like you to read something that was posted by someone about me. Go to: http://talkbloodcancer.com/content/window-martin-gartenberg Or simply Google my name Marty Gartenberg and look for something called The Window. I wrote this over twenty years ago and I have seen it plagiarized several times. Some were not very nice but I can't stop people from doing what they do... 18's and have a wonderful and most of all a very HEALTHY and happy holiday season. And by the way, GOD has blessed me. Out of transplant going on 23 years this May 21st. It was actually on my 45th birthday that I received my bone marrow transplant, and I'm still here. Some birthday gift, huh? However, this really isn't about me because as I previously stated, I am finished with my CML, it is about all of you. I know what each and every one of you is going through and it breaks my heart just because I know. But you know something? You are also blessed by GOD because your still here. Even though you have some difficulties in your life from having to take these TKI's you are also here as well. How I would have wished that they would have been there for me at the time rather having to go through that bone marrow transplant... Water under the bridge, and I still go on. Again, 18's Marty On Tue, Dec 11, 2012 at 10:19 AM, Susan Zimmerman <[email protected]> wrote: > It’s always so good and uplifting to hear from you, Marty!!! God bless. > Hope you can take dialysis in your home as the new wave of care is > happening. My friend does that and she is so much happier because of it. > It works while you sleep during the night.**** > > ** ** > > 18’s,**** > > Susan zimmerman**** > > ** ** > > *From:* [email protected] [mailto:[email protected]] *On > Behalf Of *Marty Gartenberg > *Sent:* Tuesday, December 11, 2012 9:34 AM > *To:* [email protected] > *Subject:* Re: [CMLHope] why are you on dialysis?**** > > ** ** > > Hi Jeanie, > > I'm not the warrior here because I have already gone through all of this. > If anyone is a warrior here it is you and Millie and all the rest of the > people with this disease. You are fighting and winning, and that is what > this is all about isn't it? > > I read through all of the posts here and on other sites as well, and every > one of them are warriors. > > I had to start on dialysis a little over one year ago. My kidneys have > been failing for several years because of several factors. One being all of > the radiation and chemotherapy I had almost twenty three years ago for my > bone marrow transplant. Also as ageing comes about your kidneys become less > effective. Not that I am an old "fart" but non the less it just happens. > > Who really knows, it could have been caused by many things but that is > what I have, and I will just have to deal with it just as all of you have > to deal with your problems. The trick to dealing with anything is to just > accept it and simply go on with your life. No one ever said that life is a > bowl of cherries. > > What actually brought my kidney failure was that my community puts down > mulch around the houses here and there are always some bags left over that > they leave in front of the garages. Since I have some property behind my > home I decided to take and put that extra mulch there. Two days later I had > a 104 fever and had to go to the hospital. I had double pneumonia and had > to be in the hospital for three weeks. It was at that time my kidneys said > "good bye" and I was started on dialysis while in the hospital. > > Maybe it also had something to do with my job and the fact that when I > lived in Staten Island and there was an explosion of a benzine storage tank > across the Author Kill River in New Jersey that carried burnt benzine > across the water way and deposited it om my house and cars. About two > months after I was diagnosed with CML, and I later found out that several > of my neighbors were also "catering" to this disease called CML. > > I am now on three waiting kidney transplant lists just waiting for > something to come about. I also have two potential live donors but even > with that it is still a very complicated waiting game. They may or may not > be a match for me but it takes a lot of time to get everything in order. > > One of my problems is that I was born with O+ blood type, and when I had > my bone marrow transplant my donor had B+ blood type. So, now my blood type > is B+. I am what is called a Chimera. Two different "people" living in my > body. > > I always try to look at some humor in my life, it just keeps me going I > guess... So, what will happen if and when I get that kidney transplant? Do > you think there will be enough room in me for another "person" living > inside of me or am I just going to explode? > > > I would like to wish you and everyone here a very HEALTHY and happy > holiday season. May your upcoming year be better then it has been. > > I also add my usual 18's to everyone. > > Marty**** > > On Mon, Dec 10, 2012 at 4:43 PM, <[email protected]> wrote:**** > > Happy Holidays Marty,**** > > Can you tell us again about your dialysis and why you are on it? Good > luck to you in the coming year; you are truly a warrior; and Millie also.* > *** > > Jeanie<3**** > > **** > > In a message dated 12/10/2012 11:10:40 A.M. Eastern Standard Time, > [email protected] writes:**** > > *Hello again, Marty,***** > > **** > > *I'm taking a short break from decorating for the season. I am about > done. It takes me a while to do little things, but in the end, I > accomplish it.***** > > **** > > *Yes, I know that you're on dialysis and are a very strong individual. > I have always tried to be, but we all have our days when it doesn't work. > I always say that I kick myself in the rear when I get depressed, but it's > getting impossible for my legs to do that.....:>))) I do try very hard to > look at the bright side of life.***** > > **** > > *Today I have work to finish up for our quilt guild, so I plan on doing > that. I just keep plugging along like the turtle and in the end surprise > myself at what I can do.***** > > **** > > *You have a wonderful day and know that you are admired by many CMLers. > Your attitude is always uplifting.***** > > *Millie***** > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope**** > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope**** > > ** ** > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope**** > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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