Thanks Marty, and yes I still miss him a lot.  My hubby wasn't real  sick; 
but he just seem to lose a little more of his health each day.  He  passed 
away in his sleep very peacefully and that was a great relief.  I  didn't 
have to see him dying in a hospital bed or hospice.  I thought I  wasn't going 
to make it without him; we were in love ever since high  school.  But the 
days passed and I learned to live without him.  My  children were a great help 
to me.
 
Happy New to you and yours,
Jeanie<3
 
 
 
 
In a message dated 12/13/2012 10:17:39 P.M. Eastern Standard Time,  
[email protected] writes:

Hi  Jeanie,

I just want to comment on something you wrote. 

"but then I wonder what the drugs are  doing to my body.  Well, the 
leukemia kills, so better to just face it  head on and live with it"

Jeanie, now your getting the  idea. No matter what your going through your 
still alive to go  through it...

I really feel badly for you loosing your  hubby and at such a relatively 
young age. I'm sure that it was and still is  very difficult for you.

When I was first diagnoised  with CML I thanked GOD that I got it rather 
then my wife or  children. I could live with me having it but not my wife or 
children.

Take care of yourself and I wish you to have a  very healthy and happy 
holiday season.

18's

Marty



On Thu, Dec 13, 2012 at 4:17 PM, <[email protected]_ 
(mailto:[email protected]) > wrote:


Hi Marty and thanks so much; you sure sound like a warrior  to me.  I love 
your response; just face it and try the best to live  with it.
 
In Jan I will start on my 9th year of being a CML  warrior.  Gleevec and 
Tasigna failed me and I am now on Sprcel.   It is a struggle every day for me 
to take these chemo drugs.  I want to  look at like you do, and most days I 
do, but then I wonder what the drugs  are doing to my body.  Well, the 
leukemia kills, so better to just face  it head on and live with it
 
I lost my hubby when he was only 62 from heart disease  caused by diabetes. 
 He struggled many years with it, having a by pass  when he was 52.  His 
heart just finally gave out.  He had the  surgery where they split you open 
through the breast bone and take veins out  of your legs to repair you clogged 
veins.
 
Christmas is almost here and I love the season.  So  Merry Christmas to you 
and a Happy New Year.
Jeanie<3
 
 
 
 
 
In a message dated 12/11/2012 9:34:24 A.M. Eastern Standard Time, 
[email protected]_ (mailto:[email protected])  writes:


Hi Jeanie,

I'm not the warrior here because I have  already gone through all of this. 
If anyone is a warrior here it is you  and Millie and all the rest of the 
people with this disease. You are  fighting and winning, and that is what this 
is all about isn't it?  

I read through all of the posts here and on other sites as well,  and every 
one of them are warriors.

I had to start on dialysis a  little over one year ago. My kidneys have 
been failing for several years  because of several factors. One being all of 
the radiation and  chemotherapy I had almost twenty three years ago for my 
bone marrow  transplant. Also as ageing comes about your kidneys become less 
effective.  Not that I am an old "fart" but non the less it just happens.

Who  really knows, it could have been caused by many things but that is 
what I  have, and I will just have to deal with it just as all of you have to 
deal  with your problems. The trick to dealing with anything is to just 
accept  it and simply go on with your life. No one ever said that life is a 
bowl  
of cherries. 

What actually brought my kidney failure was that my  community puts down 
mulch around the houses here and there are always some  bags left over that 
they leave in front of the garages. Since I have some  property behind my home 
I decided to take and put that extra mulch there.  Two days later I had a 
104 fever and had to go to the hospital. I had  double pneumonia and had to 
be in the hospital for three weeks. It was at  that time my kidneys said 
"good bye" and I was started on dialysis while  in the hospital.

Maybe it also had something to do with my job and  the fact that when I 
lived in Staten Island and there was an explosion of  a benzine storage tank 
across the Author Kill River in New Jersey that  carried burnt benzine across 
the water way and deposited it om my house  and cars. About two months after 
I was diagnosed with CML, and I later  found out that several of my 
neighbors were also "catering" to this  disease called CML.

I am now on three waiting kidney transplant  lists just waiting for 
something to come about. I also have two potential  live donors but even with 
that 
it is still a very complicated waiting  game. They may or may not be a match 
for me but it takes a lot of time to  get everything in order.

One of my problems is that I was born with  O+ blood type, and when I had 
my bone marrow transplant my donor had B+  blood type. So, now my blood type 
is B+. I am what is called a Chimera.  Two different "people" living in my 
body.


I always try to  look at some humor in my life, it just keeps me going I 
guess... So, what  will happen if and when I get that kidney transplant? Do 
you think there  will be enough room in me for another "person" living inside 
of me or am I  just going to explode?   
 


I would like to wish you and everyone here a very  HEALTHY and happy 
holiday season. May your upcoming year be better then it  has been.

I also add my usual 18's to  everyone.

Marty

On Mon, Dec 10, 2012 at 4:43 PM, <[email protected]_ 
(mailto:[email protected]) > wrote:


Happy Holidays Marty,
Can you tell us again about your dialysis and why you  are on it?  Good 
luck to you in the coming year; you are truly a  warrior; and Millie also.
Jeanie<3
 
 
In a message dated 12/10/2012 11:10:40 A.M. Eastern Standard Time,  
[email protected]_ (mailto:[email protected])  writes:

Hello  again, Marty,
 
I'm taking  a short break from decorating for the season.  I am about  
done.  It takes me a while to do little things, but in the end, I  accomplish 
it.
 
Yes, I  know that you're on dialysis and are a very strong  individual.   I 
have always tried to be, but we all have our  days when it doesn't work.  I 
always say that I kick myself in  the rear when I get depressed, but it's 
getting impossible for my legs  to do that.....:>)))  I do try very hard to 
look at the bright  side of life.
 
Today I  have work to finish up for our quilt guild, so I plan on doing  
that.  I just keep plugging along like the turtle and in the end  surprise 
myself at what I can do.
 
You have a  wonderful day and know that you are admired by many CMLers. 
Your  attitude is always uplifting.
Millie
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