Can you explain why they are counting your ANC?
Thanks Jeanie<3
 
 
In a message dated 4/21/2013 10:03:29 A.M. Eastern Daylight Time,  
[email protected] writes:

 
Great advice Marty, white count down to 1.9 and ANC still down to  less the 
300
once we bring them up I will back in the saddle again
Thanks Marty



 
 

From: Marty  Gartenberg <[email protected]>
To: [email protected]  
Sent: Saturday, April 20,  2013 12:48:21 AM
Subject:  Re: [CMLHope] Skip Duffie



 
 
 
Hi Beth,


I just have one thing to say in answer to your  post. You wrote "Isolation 
and fear are powerful tools"  Indeed they are, but do you want to know a 
much more powerful tool? It's  your Mind.


18's,


Marty



On Fri, Apr 19, 2013 at 1:28 PM, <[email protected]_ 
(mailto:[email protected]) > wrote:

Dear Skip, Marty, Millie, and all  those warriors who are struggling right 
now. I want to pass along a great  big hug filled with hope, and light, and 
healing and positive energy. We  need each other during the rough times and 
I am so glad we have one  another. I too have been struggling mightily, but 
find the one thing that  helps, that I keep on working on, is trusting in,  
believing in,  knowing that we can live and love well inspite of and perhaps 
in some  cases because of our illness and how it informs our lives. 
Isolation and  fear are powerful tools that push against us. Community and 
holding 
hope  and faith for ourselves, our bodies and our spirits, here, united  
together,  will serve and guide us well. I read every day and  think of all my 
fellow warriors out there, those who write, and those who  read, and send a 
prayer to all for peace of mind body and spirit.  

I tried bosutinib and had horrible side effects at a  moderate dose, muscle 
rigidity all over the body, elevated cpk,  emotional distress... after 8 
weeks, the BCR showed it had not done  anything for the cancer, the cancer had 
actually grown threw it and I lost  two logs. So now back on sprycel at 50 
and working on getting back into  remission. As I had to go off sprycel in 
December because of toxicity,  it's a scary time. But I remain positive and 
am researching alternative  and complementary options to aid  with the 
toxiicity. If anyone has  any suggestions about muscle spasticity, please let 
me 
know. I can  handle the rashes, migraines, muscle wasting/fatigue/ weakness, 
But this  one is new, ongoing and the greatest challenge yet. 
 
thanks for yoru help.
 
Beth  


-----Original  Message-----
From: gene and guy Larcher <[email protected]_ 
(mailto:[email protected]) >
To:  cmlhope <[email protected]_ (mailto:[email protected]) >
Sent:  Fri, Apr 19, 2013 10:49 am
Subject: [CMLHope] Skip Duffie


 
Dear  Skip:
 
So good to  hear from you after quite some  time.    
 
Very sorry  to hear you have been so poorly but the good news is that you 
are getting  better.
 
You, along  with Marty, have given tremendous hope to the rest of us and  
shown  how to bear long illness with good spirits.
 
Dear old  warrior - we wish you the very best and hope to hear much more 
from you in  the future.
 
Guy
 


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