Hi Beth: My email, for anyone on this site, is [email protected]. Please put your name and your mother's name. As I have told each CMLer, I promise to say individual prayers for everyone who sends me a note. The notes are placed one by one, not collectively.
We love Israel, have been there many, many times but not since being diagnosed 4 years ago. This is my first out of the country trip. We are renting an apartment in Tel Aviv, spending a couple of nights in Jerusalem and best of all, taking my sister (my best friend, my therapist and go to for anything and everything person) who has never been there. Regretfully she lost her husband suddenly in July and he was only 64. So this will truly be a very special trip. I am grateful to be well enough to travel. As an aside for all my CML friends, I support and honor all religions and I don't like extremists of any faith, my own included. I have a first cousin who is a nun and one who is an ultra orthodox rabbi! Everyone respects and loves one another. As long as you love God and are a kind and good human being, what difference does it make what path you take? If anyone is on Facebook, look me up and friend me. Marcie Goodman, Baltimore, Maryland. Much love and stay well. Marcie Sent from my iPad On Apr 23, 2013, at 7:54 PM, [email protected] wrote: > marcie, > I would welcome sending you a prayer to place in the wall for me. Please > send email to send it to. > > Thank you so much for this generous and thoughtful gesture. That you are able > to get to Israel..what a blessing!!! > > Beth > > > -----Original Message----- > From: Marcie Goodman <[email protected]> > To: cmlhope <[email protected]> > Cc: <[email protected]> <[email protected]> > Sent: Sun, Apr 21, 2013 12:04 am > Subject: Re: [CMLHope] Skip Duffie > > Hi Beth and Fellow Warriors: > > I pray for all of us to do well and live long, happy, pain free lives. What > Millie wrote is so true. People who don't have CML or those who aren't > related or very close to a CML patient don't get it. My sister is in from > Florida because our 92 year old father had a stroke 3 weeks ago. Tonight we > had dinner with cousins who kept saying to me, I guess you aren't really sick > because you look great. Really? I'm wearing a wig, just started with false > eyelashes, had a week with such bad Gleevec stomach that I can barely sit > because my bottom is so sore, muscle cramps and terrible bone pain. But life > goes on and I'm determined to live my life, not focus on my death. That will > happen whenever the Heavenly Father determines that it is my time. > > The point I guess I'm making is that there is so much isolation and fear > because we have something rare and it is scary to us and others to hear the > word cancer. The silver lining is that we have an illness that can be > managed, albeit with horrific side effects for many, for quite a long time. > Plus new treatment options. And we have one another which is a true > blessing. > > Beth, I send good wishes your way and will say prayers for you. My heartfelt > thanks to all of you for the kindness you always extend. > > One last thing. I'm going to Israel the end of May. There is a tradition in > my religion, Judaism, that if you write a note or prayer on a small piece of > paper and fold it up and place it in a crack in the Western Wall in Jerusalem > that God will answer your prayers. I've had miraculous experiences, including > that more than 28 years ago we were told it was IMPOSSIBLE for me to get > pregnant. I gave a prayer to a friend who was going to Israel that asked God > to bless us with a baby and within 6 weeks got pregnant. We only have one > very beautiful 25 year old daughter. If anyone would like me to place notes > for them, please let me know and I'll give you my private email. I figure a > prayer to God is always a good thing and I am happy to do this for anyone > that would feel > some comfort and hope in this old tradition. > > Marcie > > Sent from my iPad > > On Apr 20, 2013, at 4:04 AM, "C.M. Houtz" <[email protected]> wrote: > >> Hi Beth, >> >> I know you struggle with your meds and that you have had so many side >> effects. I'm so sorry that this new drug has caused you such problems. I >> am not sleeping well tonight, so decided to get up and do some things on >> here that I've been meaning to do. I wanted to print out some patterns to >> hand stitch. I haven't been feeling well, and am seeing an >> Gastrointerologist (spelling is wrong), but at 4:00 A.M., what do you expect >> :>). When I came off of two months of Home Care....due to a hip problem, I >> thought I'd be feeling better, but started with nausea. It's not every day, >> but enough that I am having trouble dealing with it. I also was in severe >> pain due to my polymyalgia. After years on Tasigna and dealing with >> constipation, I'm dealing with the opposite most days. I had a sinus >> infection and my doctor put me on an antibiotic and that got rid of it, but >> the stomach problems have stayed with me. I also was taking meds for acid >> reflux and now, after a year on the stuff, Express Script has told me that >> it can interfere with the Tasigna, so had to stop that. My pain and >> whatever has made me so weak that it's almost impossible for me to get up >> from a chair without help. I'm not sure if the Arthritis has caused this, >> or if it's a medication problem, but I can understand where you are coming >> from. I'm anxious to see my Oncologist next month and, hopefully, I'll >> still be in remission. We all have issues, but must stay strong and fight >> it as hard as we can. I know that it sounds easy, and know that it isn't, >> but just remember that we're all here to help one another, and you all have >> helped me so much. People look at you and think...you look well, and don't >> realize how difficult this CML is to fight. I look in the mirror and wonder >> who this old lady is as my hair if all but gone and I no longer have eye >> lashes, but I try to laugh and just put my wig on and go out whenever I can >> do it. Lately, that hasn't been to often. The weather is getting better so >> one of these days, I'm going to go out with my jazzy chair and enjoy the >> warmer days. I fill in the rest of my time with needle work. I'm doing a >> lot of embroidery right now, and quilting. I have two quilt tops to finish >> up and then will have someone get them ready for me to quilt. I try to fill >> my head with things that I love to do, and that seems to help. I wish there >> was more that I could say and do to help you. I will keep you in my >> thoughts and prayers and hope that you will be in remission soon. Take >> care.......Hugs, Millie >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
