Hi Greenie,
I am from Indiana also, and looking for a good doctor in the Chicago area that knows a lot about CML. Do you suggest someone at Northwestern or do you know anyone at University of Chicago? Dr. Druker's nurse told my friend of a name, Dr. Larsen who is at U. of Chicago if he has not retired or moved. My latest FISH test showed 17.74 number, which gives me some cause for alarm. Anyone have any opinion about that? I'm the one who hasn't had any medicine for six years and 2 months now. I live in the South Bend/Granger area, and do not have faith in any of these local doctors. Where do you live, Greenie? Thanks and 18's, Susan F. Zimmerman "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -----Original Message----- From: Myvety2k <[email protected]> To: cmlhope <[email protected]> Sent: Thu, May 16, 2013 6:32 am Subject: Re: [CMLHope] Re: posting my blood panel results today Hi Beth, when I first started STI571 at Northwestern back in Jan. of 2000 in a study sponsored by Novartis, Northwestern not Novartis told me that as long as I stay alive they would supply me with the drug. This new study is sponsored by Northwestern, I didn't mean to get Novartis involved with my email I think they wanted someone that was of my age, 73 that's been on Gleevec for over 13 years. I don't know anything about the 2 other people involved in this study. I asked one time about the 7 other people that were in the first study back in 2000 and they said they can't give out any information about them. Seven of them were from Chicago land and I was the only one from Indiana. I don't even know if any of them are still in any study or alive. greenie In a message dated 5/15/2013 8:03:53 P.M. Eastern Daylight Time, [email protected] writes: OK. I just got confused, You said you were in a new study with two others. Always looking at options! Thanks. Feel good!! Beth -----Original Message----- From: Myvety2k <[email protected]> To: cmlhope <[email protected]> Sent: Wed, May 15, 2013 6:33 pm Subject: Re: [CMLHope] Re: posting my blood panel results today Hi Beth, I'm not taking anything put I am going to check into it. greenie In a message dated 5/15/2013 6:11:22 P.M. Eastern Daylight Time, [email protected] writes: Greenie, are you on ponatinib? Let me know. Beth -----Original Message----- From: Myvety2k <[email protected]> To: cmlhope <[email protected]> Sent: Tue, May 14, 2013 6:36 pm Subject: Re: [CMLHope] Re: posting my blood panel results today Hi Beth, Northwestern University and it's supported by Novartis. Greenie In a message dated 5/14/2013 6:15:54 P.M. Eastern Daylight Time, [email protected] writes: GReenie, glad your cml is doing so well. What new study are you in? Beth -----Original Message----- From: Myvety2k <[email protected]> To: cmlhope <[email protected]> Sent: Tue, May 14, 2013 3:56 pm Subject: Re: [CMLHope] Re: posting my blood panel results today HI Suzieq, I went to Chicago on May 1st to see my Doctor, get my blood work and pickup my med's. My son and is wife and my 7 month old grandson picked me up at Midway. Doctor told me that I need not come back for (1) year only to pickup same. She said if I want to I could see a cancer Doctor here in Fort Myers once a year that way I would be getting my month work every 6 months instead of every 3 months. It's up to me. So that's good news and they put me into another study with 2 other people plus some in other countries. Good to here your doing O. K. Greenie In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time, [email protected] writes: Jeanie: So glad to hear these test results. Just awesome. I remember your past struggles. I go tomorrow for my sixth month Doctor visit. Am curious to see if mine are still stable being on 200mgs instead of the 400. Will be hoping for these good blood counts as yours. :) God Bless, Suzieq -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. 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