Hi Susan-

My suggestion is to get in touch with one of the two Facilitators for the
Chicago CML Connection group that's a service of the National CML Society.
Either Lisa Lewandowski or Jen Schwarz, both CML patients, would be happy to
help you, just as they help others. You can find more information, and their
email addresses here.
http://www.nationalcmlsociety.org/what-we-do/cml-connection/illinois-cml-res
ources

 

Here is Dr. Larsen's contact information:
http://www.uchospitals.edu/physicians/richard-larson.html

 

In Indianapolis, I consider Dr. Luke Akard:
http://ibmtindy.com/wordpress/luke-akard/

 

Given your FISH results I would definitely see a true CML specialist as soon
as possible.

 

Wishing the best for you,

Pat Elliott

Phoenix, Arizona

CML Patient and Advocate. 

 

 

From: [email protected] [mailto:[email protected]] On Behalf
Of Susan Zimmerman
Sent: Saturday, May 18, 2013 5:59 AM
To: [email protected]
Subject: Re: [CMLHope] Re: posting my blood panel results today

 

Hi Greenie, 

 

I am from Indiana also, and looking for a good doctor in the Chicago area
that knows a lot about CML.  Do you suggest someone at Northwestern or do
you know anyone at University of Chicago?  Dr. Druker's nurse told my friend
of a name, Dr. Larsen who is at U. of Chicago if he has not retired or
moved.  My latest FISH test showed 17.74 number, which gives me some cause
for alarm.  Anyone have any opinion about that?  I'm the one who hasn't had
any medicine for six years and 2 months now.

I live in the South Bend/Granger area, and do not have faith in any of these
local doctors.  Where do you live, Greenie?

Thanks and 18's,

Susan F. Zimmerman

"Look among the nations and watch; be utterly astounded!  For I will work a
work in your days which you would not believe, though it were told you."
Hab. 1:5

 

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