That's great news. When I went off Gleevec 5 years ago. I was tested every month for a while then as I progressed with excellent results to 3 months and then 6 months. The body also responded nicely, I gained energy, lost 30 pounds and my leg edema went away. I am glad your ONC is willing to work with you.
Richard H. On Monday, June 3, 2013 9:35:22 PM UTC-5, Sylvia wrote: > > Hello everyone > It has been many years since I have written to this group. I was diagnosed > with CML in June 1998 at 37 years old and many friends I met through this > group are no longer with us. Those were the days of interferon and ara-c, > procrit etc (all via injection). I was one of the first to start Gleevec > in Canada in April 2001. I am number 80 in Zavies Zero club! Gleevec has > given me back my life and I am very thankful for it. That being said the > last few months I have had swelling in my legs and stiff knees and I have > taken myself off the Gleevec. In 12 years I have barely missed any days, > but now I am feeling my body need a rest. I am worried about my liver and > Millie's email reinforces my feelings that I need a break from the Gleevec. > I told my dr and he wants me to come in for a PCR in a month and not wait > until my 4 mos check up in Aug. I am very interested in what everyone in > this community thinks and if they can offer me some advice. > My prayers to Millie and all those with challenges. Thanks to everyone for > their support all these years. > > Sylvia > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
