I started Gleevec at McMaster University Medical Centre in Hamilton, Canada, on Jan. 22, 2001. My tests in June 2001 confirmed that I had reached cytogenic remission. I think I was #69 in Zavie's Zero Club. I am planning to discuss a holiday from Gleevec next time I see Dr. Walker, my hematologist at Juravinski in Hamilton. We shall see....12 years is a long time....
What lies behind us and what lies before us are tiny matters compared to what lies within us.... Angie ________________________________ From: Richard H <[email protected]> To: [email protected] Cc: "[email protected]" <[email protected]> Sent: Monday, June 3, 2013 11:25:59 PM Subject: [CMLHope] Re: Taking a break from gleevec after over 12 years That's great news. When I went off Gleevec 5 years ago. I was tested every month for a while then as I progressed with excellent results to 3 months and then 6 months. The body also responded nicely, I gained energy, lost 30 pounds and my leg edema went away. I am glad your ONC is willing to work with you. Richard H. On Monday, June 3, 2013 9:35:22 PM UTC-5, Sylvia wrote: Hello everyone >It has been many years since I have written to this group. I was diagnosed >with CML in June 1998 at 37 years old and many friends I met through this >group are no longer with us. Those were the days of interferon and ara-c, >procrit etc (all via injection). I was one of the first to start Gleevec in >Canada in April 2001. I am number 80 in Zavies Zero club! Gleevec has given >me back my life and I am very thankful for it. That being said the last few >months I have had swelling in my legs and stiff knees and I have taken myself >off the Gleevec. In 12 years I have barely missed any days, but now I am >feeling my body need a rest. I am worried about my liver and Millie's email >reinforces my feelings that I need a break from the Gleevec. I told my dr and >he wants me to come in for a PCR in a month and not wait until my 4 mos check >up in Aug. I am very interested in what everyone in this community thinks and >if they can offer me some advice. >My prayers to Millie and all those with challenges. Thanks to everyone for >their support all these years. > >Sylvia > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
