Millie, I am here. So sorry you had a crappy day. I hope tomorrow breings less 
pain for you and more mobility. I think the pictures of your quilts would be 
meaningful to your family, I wouldn't delete those....I am amazed at the 100 
year old photographs...wow, what wonderful archives....rich ancestry to view..I 
hope they will be appreciated with time. I only wish I had such a legacy to 
view....I hope your computer gets fixed easily ...the laptop idea sounds like a 
really good one because it can travel anywhere with you...
in bed, outside, on road trips, wherever......I know it's frustrating feeling 
badly and not knowing why?  I sure wish I could do something to help you, but 
all that I can do is send you a big hug, keep you in my prayers, and write 
back, so you know that I do read all your email, appreciate knowing how you are 
doing..getting the updates.....Since I have a very bad back.....I empathize 
with back pain...I have no idea what is causing your pain, but if it's truly 
from your back, in the middle- that's the thorasic area of the spine, and 
sometimes when there is something wrong there, it radiates around the side to 
the front, sometimes wrapping around like a girdle, it feels tight, and can 
sometimes make you feel like you are short of breath...that's a classic 
thorasic herniation....I have that. For me,   therapy and injections helped 
calm that wrap around pain. But it was miserable. I hope that is not your 
issue. Maybe it's referred pain, from somewhere else....the body is so amazing 
that way....hope it goes away on it's own very soon.....
my back has been having sympathy pains for yours...for me it's lower back, 
sciatica that's been there since my botched surgery on March 2012. I am going 
to try and have a procedure done, at the end of August and see if it will help 
the pain..it's a special kind of epideral, so we'll see. I just want to get 
active, and strong, and lean...it's my personal mountain to climb with the cpk 
being always elevated from the sprycel. I have hardly any muscle mass 
left..trying to build it back and not tear more down by exercising and wanting 
to get cardio fit and protect my heart from the cardio side effects of the 
meds...working on all these things, doing my research....lots of it....trying 
to see, across the world, in labs and hospitals..what is being tried to support 
the body against the side effects until a cure is found...I really believe a 
cure will be found and in the not to distant future.........I don't know if you 
read about the main who had his   stem cells, drawn out, treated with a protein 
that promotes heart cell growth....and then... injected back into his heart to 
regrow his own heart tissue.....and it did!!!  This out, there is now the 
potential that stem cells, taken out of us, can be genetically encouraged to 
grow a certain type of cell, nerve, or muscle, etc..and then placed in the area 
that needs it.....wow!!!! it's just beginning, but it's hope for the future

. Amazing!!!!!. Too bed I must try and go..long day tomorrow....take good care 
MIllie, rest well, and feel better soon!!!!! Keep that smile going, bck at you. 
.....;)
Love, Beth. 

 To: cmlhope <[email protected]>
Sent: Wed, Jul 24, 2013 10:40 pm
Subject: Re: [CMLHope]



Hi Beth...Sorry it took me so long to get back to you, but I've had a few bad 
days.  Guess we all get them from time to time.  I'm glad I make you smile.  I 
know having you all write to me and the others brightens my day.  Today was one 
with a lot of pain.  I couldn't get up until I took some pain meds, and then 
came downstairs and put heat on my back (the right side about mid way down my 
back)  It is now radiating around to the side and front, and very painful.  No 
one seems to know what's causing it.  The heat usually helps, but today was 
just a bad day and nothing much helped.  I hate that because it ruins my day, 
and there was a lot I wanted to do.  I did accomplish some, but hope tomorrow 
will be better.  I guess we all have to deal with things and know that I'm not 
the only one.  
 
Also, this computer has been giving me grief.  I e-mailed my computer guy a few 
minutes ago, and perhaps he can get on from the office and find the problem.  
If not, I'll have to unplug the thing and have my husband take it to him.  I 
did suggest that he could make a house call, but that depends on how busy he 
is.  I want to buy a laptop to use in my bedroom.  I have those days when I 
stay there a lot, and this would give me something to work on.  I have so many 
pictures on here and want to transfer most of them to the new laptop and then 
when I have them organized, put them back into this computer and also leave 
them on the laptop.  I also want to put them on those stick things (computer 
challenged) and  put those into the safe deposit box for my kids.  I have some 
photo's well over 100 years old of my grandparents, and some of my husbands 
too.  I don't want to loose any of them.  I also have many that I want to 
delete as I save everyone I get and I just don't need them all.  Most of the 
ones I want to save are of my grandchildren, and other family.  I do have 
folders of friends, but my kids wouldn't know who they are, or want them, so 
I'm not to worried about those.  I also have ones of my quilts, and I'm sure 
that won't be of any interest to them either.  Just have to work on getting rid 
of things and organizing them.
 
Well, I've talked long enough.  Hope that you are having good days.  If for any 
reason you don't hear from me, you'll know it's because my computer is down.
Many hugs,
Millie

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