Peg, Marty, and everyone else....There isn't a day that I don't think about 
each and every one of you and just wish I could help more.  I've been lucky to 
have great insurance and prescription coverage and haven't had to deal with 
things that others have, but I also feel the warmth of having everyone helping 
each other.  It's so comforting to know that you are out there and willing to 
listen and do whatever you can to help.  It truly helps each and every one of 
us.  Hope that you all are having a great evening....Hugs, Millie
  ----- Original Message ----- 
  From: Marty Gartenberg 
  To: [email protected] 
  Sent: Friday, August 09, 2013 9:08 PM
  Subject: Re: [CMLHope] Re: For Terri


  Hi Peg, this is what this is all about, one person trying to help another 
person...


  18's


  Marty



  On Fri, Aug 9, 2013 at 10:43 AM, peg <[email protected]> wrote:

    Teri, I ran into the same issues with my local social security office, it 
took years to get a hearing.  That doesn't help you in the here and now.  I can 
tell you from personal experience that going to your congress person will 
backfire, at least it did for me.  Caused the local office to automatically 
deny my appeal!  You might want to contact HICAP 
http://www.cahealthadvocates.org/HICAP/   Tell them that this change is putting 
your life in danger and that you do not understand why you were terminated 
within the appeal period.  They have connections inside Medicare and can 
sometimes make things happen quickly.  I would not necessarily mention that you 
have a lawyer if you can avoid that.  Since they might then defer all action to 
you lawyer.  Anything they do should not affect your legal case, I am just 
thinking that they may be able to get your Medicare restored under the appeal.  

    Marty...if you are still following this chain....thanks so much for the 
kind thoughts.  I will take all of them.  I picture it like a brightly colored 
parachute that I am sitting in the middle of.  Each person who wishes me well 
is holding a edge of this and together I am uplifted by it.  I wish you well 
also!

    Love to everyone...fight on!  peg


    On Tuesday, August 6, 2013 12:16:50 PM UTC-7, peg wrote:
      Terri,

      Your Nephrologist is an ass...and is not the final word on whether you 
are disabled or not, there are plenty of folks on disability because they are 
on dialysis.  However, remember that you don't want to file a NEW claim but 
rather, reopen the old one.  If you were to file it on the basis of dialysis it 
would start an entirely new claim with a new wait period for your Medicare.  
You want to show that your health has deteriorated as a result of the ORIGINAL 
claim, so all of that time applies to the wait and you could have Medicare 
immediately.  ANY doctor that cares about you and recognizes that you are 
unable to work can file your disability.  If you don't have one on your team 
that will do that for you, perhaps a disability lawyer can recommend one.  

      Sorry about the tough road ahead...I relate...I have just been diagnosed 
with my third primary cancer since being diagnosed with CML three years ago, 
have had MS for 24 years and care for my husband who has brain damage.  The 
best advice I can give you besides find a caring doc and a new lawyer is to 
take each day, one bite at a time.  Message me any time I can be of help.  I 
care.  peg  


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