Thanks! I got my bone marrow results back and they are clear, no multiple myeloma. So now time to focus on the kidneys, nephrologist wants me to go for transplant consult. Doesn't know if I am even a candidate as it has only been 2 and a half yrs since bone marrow transplant. I have been on the phone all day with social security and medicare. My medicare started in June. I appealed within ten days the cessation and got a lawyer. Today I call to see what happens at end of August after I was allowed a two month extension since I appealed. They are telling me I no longer even have medicare right now. Nobody could tell me anything as to when it stopped or any info. Just advised me to go to welfare. I am very frustrated!!! Ugh! Terri (not gonna stop fighting!) In a message dated 8/6/2013 7:24:57 P.M. Eastern Daylight Time, [email protected] writes:
Hi Terri, Peg is correct, your Nephrologist is an ass. She is also right about not starting another claim because if you do then there is a two year waiting period in order to be able to get your benefits. As I previously mentioned, I am on dialysis for the past two years and that qualifies me as disabled, so if and when you have to go on it then you should also be qualified for disability and Medicare. I wish you the very best of luck and health. Now Peg, I wish you and your husband the best. May you both be blessed by GOD for health and happiness. Same goes for Terri and everyone reading this. 18's (Symbol for life) Marty On Tue, Aug 6, 2013 at 3:16 PM, peg <[email protected]_ (mailto:[email protected]) > wrote: Terri, Your Nephrologist is an ass...and is not the final word on whether you are disabled or not, there are plenty of folks on disability because they are on dialysis. However, remember that you don't want to file a NEW claim but rather, reopen the old one. If you were to file it on the basis of dialysis it would start an entirely new claim with a new wait period for your Medicare. You want to show that your health has deteriorated as a result of the ORIGINAL claim, so all of that time applies to the wait and you could have Medicare immediately. ANY doctor that cares about you and recognizes that you are unable to work can file your disability. If you don't have one on your team that will do that for you, perhaps a disability lawyer can recommend one. Sorry about the tough road ahead...I relate...I have just been diagnosed with my third primary cancer since being diagnosed with CML three years ago, have had MS for 24 years and care for my husband who has brain damage. The best advice I can give you besides find a caring doc and a new lawyer is to take each day, one bite at a time. Message me any time I can be of help. I care. peg -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected]_ (mailto:[email protected]) To unsubscribe from this group, send email to [email protected]_ (mailto:[email protected]) For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]_ (mailto:[email protected]) . For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
