Yes due to other problems as well as CML I still have mountains to climb. Every day I wake up and see the sun shining over that mountain top I rejoyce that I can climb another foothill. I continued working after I was diagnosed and it was a struggle as many others do.
Richard H. On Friday, December 13, 2013 1:14:59 AM UTC-6, Mar wrote: > > Thank you everyone for responding. Feels less like you are on an isolated > island... there are no support groups in my area... so, I do appreciate > your emails with encouragement and support. > > I was glad to hear there are other medications. I gather this is a long > journey... to figure out which drug and at what level... not one that can > be answered quickly. I find the side effects difficult to deal with as I > continue to work. Not sure if it is possible to work while all of this is > being figured out. Do most people continue working? > > Richard, diagnosed in 2003 and there are still mountains? I guess I am > expecting to much to soon. > > Beth, My hematologist specialist didn't put me on the 100mg I was on at > the beginning because of the first toxicity. I have been on 20 mg which > doesn't seem to be much but, I can't believe my body doesn't even like the > 20 mg... I just learned today I am back into the toxicity and cytopenias. > I have side effects to Diasanatib I didn't have on the Gleevec as well. I > found the 100 mg gave me insomnia, medically induced depression and rash... > I only have the rash at 20mg. But, seem to have a lot of bone pain lately. > > I am giving you all a big hug and thank you for your emails as it is nice > to know there are people who understand much more than I do (being such a > newbie). I look forward to hearing from all and learning from you. I hope > all of you are doing well in your own journey :) > > Ididn't know that 1and 8 meant life.. will post this in front of me for > inspiration! > > Cheers, > Mar > > On Thursday, December 12, 2013 8:25:25 PM UTC-8, Richard H wrote: >> >> Welcome to this group. Almost every one has had problems adjusting to >> the meds. Try your best to remain positive as that seems to help most of >> us. We are here to listen and in return we give back what we have learned >> to get over this little hill at this moment. I was diagnosed in 2003 and >> the mountain I have to climb is still on the horizon. >> >> Richard H. >> >> On Thursday, December 12, 2013 8:42:51 AM UTC-6, Mar wrote: >>> >>> Hi, I am new to the group. I was diagnosed January 10 2013. Since then I >>> have been on Gleevec, failed (due to toxicity twice) and was switched to >>> Dasatinib which I have toxicity to as well and had to stop taking the >>> medication. Each time I have had the toxicity my blood levels are so low >>> that it takes 4-5 weeks for them (neutrophils, platelets and wbc's) to go >>> back to even the lower range of normal. Thus, I have not yet had any >>> cytogenic or molecular recovery.. if anything, my last result was going >>> backward. I have another appointment on December 19th to see if there is >>> any recovery at all... I am keeping my fingers crossed. It has been quite >>> the roller coaster... I am not sure if others have had the same type of >>> roller coaster in the first year. >>> >>> I just ran into this group tonight and I appreciated reading others >>> emails about their recovery... thank- you.. Hope to be able to post one of >>> my own recovery stories one of these days. >>> >>> Mar >>> >> -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
