I did not get along well with Gleevec at all. It had many undesirable side effects but it really made my skin break out. I have a little skin irritations from Sprycel but I can control it with topical lotions. It seems to keep the CML under control without the side effects. I had a pleural effusion that seemed to be caused by the Sprycel but I lowered my dose and seem to get along OK now..
On Thursday, December 12, 2013 8:42:51 AM UTC-6, Mar wrote: > > Hi, I am new to the group. I was diagnosed January 10 2013. Since then I > have been on Gleevec, failed (due to toxicity twice) and was switched to > Dasatinib which I have toxicity to as well and had to stop taking the > medication. Each time I have had the toxicity my blood levels are so low > that it takes 4-5 weeks for them (neutrophils, platelets and wbc's) to go > back to even the lower range of normal. Thus, I have not yet had any > cytogenic or molecular recovery.. if anything, my last result was going > backward. I have another appointment on December 19th to see if there is > any recovery at all... I am keeping my fingers crossed. It has been quite > the roller coaster... I am not sure if others have had the same type of > roller coaster in the first year. > > I just ran into this group tonight and I appreciated reading others emails > about their recovery... thank- you.. Hope to be able to post one of my own > recovery stories one of these days. > > Mar > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/groups/opt_out.
