Millie, I am not quite in remission but my counts are very low (.0107) my oncologist wants to continue on the dose I am on for now and as long as it doesn't cause problems later I am fine with that. I too had breast cancer, I don't remember if I mentioned that earlier. It was 12 years ago for me. Quite the journey as you know. I smiled when you described the relationship you have with your doctor. I had the same situation. My doctor retired a few months ago so I am with a new doctor and I think it will be a good doctor/patient relationship and she seems quite knowledgeable about CML. I live in Kansas and its supposed to feel 30 degrees below zero tomorrow. Not looking forward to that. My parents live in Florida and I can see a visit in my near future! LOL! :-) Take care, stay warn and lets hope you don't lose the electricity!
Tracie On Sat, Jan 4, 2014 at 9:37 AM, C.M. Houtz <[email protected]> wrote: > I will always be here if you want or need to talk. I thank you for your > prayers. I need them. I'm so glad that you're doing well on Gleevec. I > was on it for a long time, but never put me into remission. It finally > stopped working for me, and am now on Tasigna which was working fine for me > until they had to take me off of it due to my latest problem...liver > disease. Seems it's always something. They have put me back on 1/2 dose, > so when I see my Oncologist, he'll let me know what's happening....I hope. > He's a wonderful man and been there for me through the breast cancer and > the leukemia.....20 years now. I feel very fortunate to have this person > in my life. I never leave his office without a big hug and kiss on the > cheek. That alone makes a difference. Having a very caring doctor is half > the battle...or so I'm told. > > I pray that you will do well on the Gleevec. Others have had wonderful > results on it. Do keep in touch when you can. Hope that you're keeping > warm. It was -7 at midnight last night. We're due for more tomorrow into > Monday, so hope that we don't loose power as we are total electric and so I > loose water, heat, everything as it's all run by that. > > Many hugs, > Millie > > ----- Original Message ----- > *From:* Tracie Camlin <[email protected]> > *To:* [email protected] > *Sent:* Saturday, January 04, 2014 9:21 AM > *Subject:* Re: [CMLHope] To Millie > > Millie, > > I don't usually post but I do follow the CML board and conversations. You > have been a true inspiration to me. Just know that you have more people > than you realize praying for you. I've had CML for two years and am doing > well on Gleevec. I also had Breast cancer ten years ago. All-in-all I am > lucky to have good health right now... I wish the same for you and many, > many pain free days. Blessings to you Millie > > Tracie > > > On Fri, Jan 3, 2014 at 9:00 PM, C.M. Houtz <[email protected]> wrote: > >> Hi Joyce.....Thank you for the lovely message that you sent to me. I >> think that is why this site means so much to me. I can share and also >> receive many good things from everyone. >> >> I would give anything to be pain free for a day. I guess that isn't >> going to happen as I do have severe arthritis and am in a wheel chair. >> Mostly I mind it at night. During the day there are things to take my >> mind off of it and I usually can cope with it then. I would like to be >> able to sleep better, so perhaps going to an Orthopedic Doctor will help >> that issue. My doctor will call me when she has that appointment set up. >> Mostly I do a lot of needle work and that takes my mind to another place, >> which is good. I would love to be able to play more with my little ones, >> and sometimes we play chase tag when I'm in my chair. They hide, and I go >> find them....mostly pretending that I can't see them, or find them. We do >> have fun, but usually it means missing my daily nap, and I'm in need of >> that. I called them today as New Jersey is under a state of emergency. >> They were fine and just playing and having fun. They canceled school and >> that made them happy. They had to cancel it here in PA too. At least in >> the eastern section. >> >> I do have so many health issues and I'm lucky to be here at all, so I >> take one day at a time, and deal with things as they come. If I didn't do >> that, I'd drive myself crazy. There are times it all gets to me, but I >> sincerely try not to let it. I would rather find someone and help them. >> It's the way I am. I often wanted to be a Hospice volunteer and, if I >> could travel, that's what I'd do. There are so many people who just need >> someone to talk to, and this site gives us all the ability to share. I >> just hope that I don't bore people with my messages. I do enjoy hearing >> about what the others are doing. It seems to take me away from what's >> wrong with me, and I'm better able to deal with things. >> >> At any rate, I do thank you for your wonderful message and I do >> appreciate your taking an interest. If you want to, tell me about yourself >> and how long you've had the CML. I'm a fortunate person as I've been >> dealing with my cancers for 20 years now. I do believe that the meds have >> a lot to do with the pain that I feel, but some was always there. >> >> Have a wonderful New Year. >> Hugs, >> Millie >> ----- Original Message ----- From: "Joyce Mesnarich" <[email protected]> >> To: <[email protected]> >> Sent: Friday, January 03, 2014 3:14 PM >> Subject: [CMLHope] To Millie >> >> >> >> Millie, >> I have been reading and monitoring your posts for awhile. You seem to >> have more than your share of problems but you are bearing them with hope >> and patience. I sincerely hope and pray that your doctors can find a way >> to help you with your pain level. Pain has a way of taking its toll on a >> body. >> In reading your account of having your family and young ones at the >> house, I was reminded of a cartoon I once saw that showed a grandma with >> several grandchildren getting into different things. The caption was: >> Dear Lord, please give me the strength to endure all my >> BLESSINGS.......meaning her increasing family. I have felt like that at >> times. It is always so good to see the kids and grandkids come. And it is >> also good to see them go. They do wear us out. >> May the new year bring good things for you. >> Joyce in IL >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-unsubscribe@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- You received this message because you are subscribed to the Google >> Groups "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/groups/opt_out. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to CMLHope-unsubscribe@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- You received this message because you are subscribed to the Google >> Groups "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/groups/opt_out. >> > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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