Hi Susan, My first entry into that jar.
Thank you GOD for giving me and my family this day... January 6 2014. 18's, Marty On Mon, Jan 6, 2014 at 7:51 PM, Susan Zimmerman <[email protected]> wrote: > Hey all you blood brothers and sisters, > > I have a great idea which I am implementing this year. For the New > Year, my husband and I have a "Blessings Jar" that we are putting good > things that happen to us in the jar. Since we did not have a big pickle > jar, we are using the holiday popcorn can we bought at Walmart. Write down > anything good that happens to you, and date it....keep adding all year, and > at the end of the year, re-read them and rejoice over how good your life > is. Also if you have a down day, you can bring out the jar and read the > good things! > > I'm adding my first one today. It is going to say something like this: > Jan. 6th was declared an emergency day with sub-zero temps. My hubby got > to stay home with me, and enjoy a slower pace. This was a great blessing! > > Just thought I'd share and encourage you all to join me if you'd like! > > 18's and Best to you in 2014, > > Susan > "Look among the nations and watch; be utterly astounded! For I will work > a work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message----- > From: bkbarney <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Jan 6, 2014 7:05 pm > Subject: Re: [CMLHope] Millie > > Dear MIllie, > > I think keeping Christmas up for as long as possible is a good thing..if > it pleases you and brings you joy,, wait a little while longer!!!! I am > glad you are working with your doctors and advocating for yourself around > the pain issues...Perhaps they will be able to find somethings that in > combination will help alleviate your pain to give you more quality of life. > I sure hopeso.. great news that your liver is stable as is your CML on 1/2 > a dose. Taking a nap and elevating the feet sounds like a good idea, glad > you did this today...It's mighty cold in Chicago...way cold....like -17 > with a windchill of -40...no schools open today, and I called of > work......still in my jammies....haven't done this in a very long > time....had a leisurely day...and will have a lovely night....writing > notes, talking to friends via the phone....my cml results came bacl .00063, > up from Septembers, .0004 but expected because I had to go off sprycel for > 6 weeks, then re-uptake. I asn only on the meds for 3.5 weks before we did > the blood work..so hopefully, I will be undetectable again....before I go > off for my back surgery scheduled for February 3rd. AS it gets closer, I'll > sk everyone to say a prayer that day...that I have no complications, and > all goes smoothly! I sahre this because I understand how much easier it > would be if we, all of us that struggle with multiple complex issues > besides CML...could only have one thing to focus on...instead, we rely on > our good faith, humor, and eachother to see us through...Hang in there > MIllie, > > Thinking of you and all my CML'ers out there....hope the New Year is > starting off well for all of you... > > Beth > -----Original Message----- > From: C.M. Houtz <[email protected]> > To: cmlhope <[email protected]> > Sent: Mon, Jan 6, 2014 5:27 pm > Subject: Re: [CMLHope] Millie > > .Hi Susan... and Beth, Thank you for your concern. I have been after > all of my doctors to address this pain problem for years. I did go to pain > management at one time, but it finally stopped working. Those injections > were given in the hip and back areas and just stopped working, but maybe > they will work this time. It all depends on where they put the needle. > I've had it help for months, and then again, not at all. It isn't an exact > science when it comes to the injections. After that, they just wanted me > to go onto stronger meds. and that isn't something I want to pursue because > there will come a time when I'm going to need those drugs, and if I take > them now, they probably won't work at some point. It's not because I've > left this problem go, as I have talked to all of my doctors about the pain > I'm in. Today I woke up with the same type of pain in my legs. I've > nursed them all day, and went upstairs this afternoon and laid down as I > figured that elevating them wouldn't hurt. It didn't and I believe it > helped some. > > I was going to take Christmas down today, but just couldn't do it. I'm > still enjoying it so much. Oh well, tomorrow is another day and one of > these days, I'll surprise myself and get the job done. > > There is nothing they can do for the liver. It is what it is. It > actually hasn't gotten any worse, but I've cut out a lot of things that > could have caused it. I'm on so many meds that it frightens me at times. > I have had congestive heart failure twice, so am on medication for that. I > have a thyroid condition, so take a med for that too. I have diabetes so > am on a small dose of meds for that. I have CML, so I take Tasigna for > that. I must take a great amount of vitamin D as that's depleted, and they > also have me on Calcium for my bones. I take one med for high cholesterol > and the also have me on prednison, which doesn't seem to be touching my > pain. I might wean myself off of that, but will talk to the doctors > first. If it's out there, I think I stand in line to get it :>)....I'm > laughing, but it really isn't funny. Just another way I have to deal with > things. I am a fighter, so will not give up on life. It's not what I'm > about. I promise you that I'll do everything possible to stay around. I > think I still have work to do before I go. > > You take care of yourselves, and know how much I appreciate your thoughts > and prayers. It is wonderful having you all in my corner. > > Hugs and 18's > Millie > > ----- Original Message ----- > *From:* Susan Zimmerman <[email protected]> > *To:* [email protected] > *Sent:* Saturday, January 04, 2014 6:30 PM > *Subject:* Re: [CMLHope] Millie > > Dear Millie, > > Wow, that was an interesting post for everyone! So glad your primary is > going to set something up. Don't let it go by and get buried in her > busywork. You will probably find something out that can RELIEVE this pain, > but ONLY if you pursue it. I am ELATED you are pursuing this problem!!! > Thanks for all the explanation of what you cannot have, which also > explains why nothing has been done thus far. I just don't want you to have > to suffer, my dear one. And with what they are saying about your liver, I > would not worry about getting "hooked" on anything that will help you. > They will not deny you help for your pain in this lifetime, I'm sure of > it!!! And I am not a person who runs to the pills. I am on very few > prescription meds, only two actually. I take a lot of supplements, > however. > > Also the hip problems....if they could be treated with shots, that would > be wonderful. My husband got one shot in his shoulder for his arthritis > which helped tremendously for about six months. Any relief is better than > none. I know they also evaluate what it will do to your liver disease as > well. > > If the doc says you are doing well on half a dose for CML, then Praise > God and do not give it another thought. As you know, I've been off all meds > for going on seven years, due to having brain bleeds when I take it. If > you are doing well on half a dose, you need not worry ONE BIT about your > CML. This last week I had some kind of stomach virus, which gave me a run > to the toilet way too frequently. I was worried I had gone out of balance > with the CBC for white, red and platelets. I went to doc (just so he would > give me a CBC) and heard the news today that it was fine. HOORAY! I still > need to go back to Chicago for a bcr/abl test, but can somewhat relax that > I'm not out of hematological remission. > > I got quite a chuckle out of your grandson who is a troublemaker. I > just returned from visiting my 2 and 5 yr old grandchildren for one day. > That two-year old causes more trouble and frustration for everyone and I'm > chalking it up to his age. The 5 yr old and I have quite a wonderful > relationship. She is a girlie-girl, which suits me fine to let me paint > her nails, etc. They live very far away, but came to visit my daughter (3 > hrs from here) in Avon, IN so that we (both sets of grandparents) could > drive down and save them six more hours on the road before they return > home. All in all it was worth our trip. The happiest visit I've had with > them, as it was the shortest, lol. > > I continue to limit my activities to anything that doesn't involve > standing very long. I was awarded disability, (did I tell you that?) and > am thrilled I can finally stop worrying about trying to bring in an income. > Hooray! When I get my first check for that, I'll go to apply for medicaid.* > Any comments or suggestions from anyone out there about that? * > > Still praying for Millie and everyone who writes on this google group. > You guys are the best, and I am thrilled to be part of your group, even > though none of us likes the reason we are banded together. Like Zig Ziglar > says, "Attitude determines your altitude" every time!!!! Let's soar with > the eagles, rather than bawk with the chickens....lol At least in our > spirits!!! May you all know the joy of waking up to another day and being > grateful it is here for you! > > 18's, > > Susan F. Zimmerman > > > -----Original Message----- > From: C.M. Houtz <[email protected]> > To: cmlhope <[email protected]> > Sent: Fri, Jan 3, 2014 12:49 am > Subject: Re: [CMLHope] Millie > > Hi Susan, > > I did go to my family doctor today and talked to her about the 3 years > I've been complaining about my back. I happened to mention what my > Oncologist said about a Doctor that comes into our hospital that does an > out patient procedure and puts some sort of spacers in your spine and > that's suppose to relieve back pain. My pain isn't there, but to qualify > that....I do have pain there, but they are thinking that this other portion > of my back, where I'm having the worst pain, is a referred pain from the > spine. I was once 6 ft tall, and now am lucky to be 5'8", so you see, I > have compressed a lot. At any rate, she is also going to talk to this > doctor about my hips being so bad and see if injections might work for that > pain. If I had less pain, I'd be doing a lot better. It was just starting > to snow when I left the house, but it was about 1/2 inch until I got home. > I didn't have to wait to see her, and that was a good thing. They're > calling for 5 or more inches with a lot of blowing snow. She's a great > person, and I believe a good doctor. I just don't think she knew what to > do about the back. You see, I can't have any surgery as I'm allergic to > something they use to put me out. I can have spinals though, so had my > hysterectomy with the spinal. I will let you know what develops when I > do. Meanwhile, she's going to set something up in either Allentown or > Bethlehem ....St Lukes has several hospitals, and we have a local one, but > it's not as large. I will try my best to get to the bottom of it all. Due > to having a pace maker, I can't have an MRI. Why they don't do a cat scan > is beyond me too, but somewhere along the way, I know that Medicare doesn't > want to pay for them unless they can rule out everything else. Who knows? > I will see my Oncologist in early Feb. and then go see my Family doctor in > March or before, depending on what they decide to do. I'm hoping that he > can tell me more about how they plan on handling my CML at that time. I'm > still on 1/2 dose and according to him, I'm still doing well. I don't > retain numbers, never have and therefore I let him handle that end of it > all. After 20 years, I do trust him to do everything right. He always has. > > Hope that your Holidays went well. Ours did, but were quiet, except for > the Saturday following Christmas when my Son brought my beautiful > grandchildren to see me. They are beautiful, but the middle one is bad. > He's going to be 7 on his next Birthday in Sept. so, hopefully, he will > improve at some point. I love him lots, but he starts fights with his > older brother and his younger sister, and is able to put the blame on them > most of the time. I guess there's one in every family. My son is finally > seeing who starts it all, and is correcting him as much as possible. I am > exhausted when they leave, but love them being here. I hope that they will > come again very soon. I want to get a smoked turkey breast for them. We > live in a small valley that is a farming community. The turkey farm smokes > it's own turkeys and he wants one, so perhaps if I go get one, he'll have > to come and pick it up....right? :>) They live about 2 1/2 hours from > here, and I can no longer make the trip as they have steps to get in the > house, and I can't get in. Another reason is the door way to their powder > room won't accommodate my wheel chair, and the toilet is so low, that if I > got on it, I'd need a few strong men to pull me off. I'm laughing at the > prospects of that one. At any rate, they come to see their Nana when they > can, and I always look forward to that. > > You take care. I didn't mean to write a book, but looks like I've got a > good start on one. > > Hugs and prayers, > Millie > > ----- Original Message ----- > *From:* Susan Zimmerman <[email protected]> > *To:* [email protected] > *Sent:* Thursday, December 19, 2013 11:19 PM > *Subject:* [CMLHope] Millie > > Hi Millie, > > I'm really concerned about the pain in your side, as I know you are. > Perhaps you should call your doc and discuss your inability to function > because of the pain. I know your liver is compromised, but it seems the > spleen may also be a factor. I'd hate for you to have to make a trip to > the hospital due to it all. Especially at this time of year. Definitely > praying for you, my sweet friend. Thank you for all your wonderful posts. > We all want you to take care of yourself and not ignore this problem! > God bless you, and keep that chin up! > > Earnestly concerned, > Susan > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/groups/opt_out. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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