Hi Beth,
Just saw your post to me made on the 4th. Been busy with out of town company! To answer your questions, right now I'm taking raspberry ketones, calcium-magnesium 2-1 ratio), B complex, Vit. c, (1000 mag a day always, more if a cold begins), and a wonderful green concoction called Green Vibrance. That has 6 billion probiotics in it per serving a day. You put the powder either in small amount of water or I have started putting it in my protein shake in the morning, with blueberries, protein powder, coconut milk, (about 2 T), and rice milk as main liquid. This Green Vibrance is wonderful for EVERYone, recommended by my chiro in Fla. before moving up here to Indiana. They sell it at Vitamin Shoppes (cheapest I've found). I also have been trying to take Curcumen in capsule form to give myself more antioxidants. It did upset my stomach so I'm kind of afraid of it right now. I've got my husband on it plus fish oil for his arthritis. At present I don't seem to have too much inflammation, thank goodness. I know all of you on medicine for the CML will be battling inflammation, so recommend this. (fish oil and curcumen) if your stomach con tolerate it. Another wonderful thing to take for inflammation and so many other things is oil of oregano. Must use 10 drops per serving in water or straight from the dropper under your tongue for it to make any difference, and 2 times a day. This helped me so much when I was on medication (gleevec) for the CML. It tastes terrible but is quite worth it. Do some research on it and y ou'll see how many things it helps!!! We are also doing the Daniel Fast for 21 days, which is vegetables and fruits only, plus grains and legumes. No white stuff, bread or pasta, or meat. We are feeling better because of it! Hope I didn't bore you all with this diatribe. My symptoms that granted disability. I think most of it was the stroke, although they also took into consideration the CML and the lack of energy I feel. I gave them so many doctor's names and phone numbers that I think it really helped. About half of them responded for me. I am fighting diabetes, CML and the stroke aftermath to get it awarded to me. So thankful, and I pray you go ahead and apply and get the same results. Only if you can live on that smaller amount than when you are working. Of course you can make up to $15K after that and not be punished for it. I will be calling Chicago today or tomorrow to set up an appt. to get another bcr/abl test and see where I'm at. We had a bunch of company over the weekend, and cooking really wiped me out. But I think part of it is that I am not exercising as much as I should. If you don't use it, you lose it, and that's me personified. Today I feel a lot stronger because I pushed myself over the weekend to do more than usual. I know you are really battling lots of issues. We are here for you, and wish you only the best! God bless and keep on persevering! 18's, Susan "Look among the nations and watch; be utterly astounded! For I will work a work in your days which you would not believe, though it were told you." Hab. 1:5 -----Original Message----- From: bkbarney <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Jan 4, 2014 11:59 pm Subject: Re: [CMLHope] Millie Susan, Happy New Year. I love reading the bantering between our dear Millie and others...I was wondering what supplements you take? I am trying to work on optimum healthy ways of eating and living to support my body. Can I ask your symptoms that granted your disability? Thanks for your ongoing sharing on this site. I wish you a wonderful year ahead!..7 years off all meds....amazing!!! my best too you. Beth -----Original Message----- From: Susan Zimmerman <[email protected]> To: cmlhope <[email protected]> Sent: Sat, Jan 4, 2014 5:30 pm Subject: Re: [CMLHope] Millie Dear Millie, Wow, that was an interesting post for everyone! So glad your primary is going to set something up. Don't let it go by and get buried in her busywork. You will probably find something out that can RELIEVE this pain, but ONLY if you pursue it. I am ELATED you are pursuing this problem!!! Thanks for all the explanation of what you cannot have, which also explains why nothing has been done thus far. I just don't want you to have to suffer, my dear one. And with what they are saying about your liver, I would not worry about getting "hooked" on anything that will help you. They will not deny you help for your pain in this lifetime, I'm sure of it!!! And I am not a person who runs to the pills. I am on very few prescription meds, only two actually. I take a lot of supplements, however. Also the hip problems....if they could be treated with shots, that would be wonderful. My husband got one shot in his shoulder for his arthritis which helped tremendously for about six months. Any relief is better than none. I know they also evaluate what it will do to your liver disease as well. If the doc says you are doing well on half a dose for CML, then Praise God and do not give it another thought. As you know, I've been off all meds for going on seven years, due to having brain bleeds when I take it. If you are doing well on half a dose, you need not worry ONE BIT about your CML. This last week I had some kind of stomach virus, which gave me a run to the toilet way too frequently. I was worried I had gone out of balance with the CBC for white, red and platelets. I went to doc (just so he would give me a CBC) and heard the news today that it was fine. HOORAY! I still need to go back to Chicago for a bcr/abl test, but can somewhat relax that I'm not out of hematological remission. I got quite a chuckle out of your grandson who is a troublemaker. I just returned from visiting my 2 and 5 yr old grandchildren for one day. That two-year old causes more trouble and frustration for everyone and I'm chalking it up to his age. The 5 yr old and I have quite a wonderful relationship. She is a girlie-girl, which suits me fine to let me paint her nails, etc. They live very far away, but came to visit my daughter (3 hrs from here) in Avon, IN so that we (both sets of grandparents) could drive down and save them six more hours on the road before they return home. All in all it was worth our trip. The happiest visit I've had with them, as it was the shortest, lol. I continue to limit my activities to anything that doesn't involve standing very long. I was awarded disability, (did I tell you that?) and am thrilled I can finally stop worrying about trying to bring in an income. Hooray! When I get my first check for that, I'll go to apply for medicaid. Any comments or suggestions from anyone out there about that? Still praying for Millie and everyone who writes on this google group. You guys are the best, and I am thrilled to be part of your group, even though none of us likes the reason we are banded together. Like Zig Ziglar says, "Attitude determines your altitude" every time!!!! Let's soar with the eagles, rather than bawk with the chickens....lol At least in our spirits!!! May you all know the joy of waking up to another day and being grateful it is here for you! 18's, Susan F. Zimmerman -----Original Message----- From: C.M. Houtz <[email protected]> To: cmlhope <[email protected]> Sent: Fri, Jan 3, 2014 12:49 am Subject: Re: [CMLHope] Millie Hi Susan, I did go to my family doctor today and talked to her about the 3 years I've been complaining about my back. I happened to mention what my Oncologist said about a Doctor that comes into our hospital that does an out patient procedure and puts some sort of spacers in your spine and that's suppose to relieve back pain. My pain isn't there, but to qualify that....I do have pain there, but they are thinking that this other portion of my back, where I'm having the worst pain, is a referred pain from the spine. I was once 6 ft tall, and now am lucky to be 5'8", so you see, I have compressed a lot. At any rate, she is also going to talk to this doctor about my hips being so bad and see if injections might work for that pain. If I had less pain, I'd be doing a lot better. It was just starting to snow when I left the house, but it was about 1/2 inch until I got home. I didn't have to wait to see her, and that was a good thing. They're calling for 5 or more inches with a lot of blowing snow. She's a great person, and I believe a good doctor. I just don't think she knew what to do about the back. You see, I can't have any surgery as I'm allergic to something they use to put me out. I can have spinals though, so had my hysterectomy with the spinal. I will let you know what develops when I do. Meanwhile, she's going to set something up in either Allentown or Bethlehem ....St Lukes has several hospitals, and we have a local one, but it's not as large. I will try my best to get to the bottom of it all. Due to having a pace maker, I can't have an MRI. Why they don't do a cat scan is beyond me too, but somewhere along the way, I know that Medicare doesn't want to pay for them unless they can rule out everything else. Who knows? I will see my Oncologist in early Feb. and then go see my Family doctor in March or before, depending on what they decide to do. I'm hoping that he can tell me more about how they plan on handling my CML at that time. I'm still on 1/2 dose and according to him, I'm still doing well. I don't retain numbers, never have and therefore I let him handle that end of it all. After 20 years, I do trust him to do everything right. He always has. Hope that your Holidays went well. Ours did, but were quiet, except for the Saturday following Christmas when my Son brought my beautiful grandchildren to see me. They are beautiful, but the middle one is bad. He's going to be 7 on his next Birthday in Sept. so, hopefully, he will improve at some point. I love him lots, but he starts fights with his older brother and his younger sister, and is able to put the blame on them most of the time. I guess there's one in every family. My son is finally seeing who starts it all, and is correcting him as much as possible. I am exhausted when they leave, but love them being here. I hope that they will come again very soon. I want to get a smoked turkey breast for them. We live in a small valley that is a farming community. The turkey farm smokes it's own turkeys and he wants one, so perhaps if I go get one, he'll have to come and pick it up....right? :>) They live about 2 1/2 hours from here, and I can no longer make the trip as they have steps to get in the house, and I can't get in. Another reason is the door way to their powder room won't accommodate my wheel chair, and the toilet is so low, that if I got on it, I'd need a few strong men to pull me off. I'm laughing at the prospects of that one. At any rate, they come to see their Nana when they can, and I always look forward to that. You take care. I didn't mean to write a book, but looks like I've got a good start on one. Hugs and prayers, Millie ----- Original Message ----- From: Susan Zimmerman To: [email protected] Sent: Thursday, December 19, 2013 11:19 PM Subject: [CMLHope] Millie Hi Millie, I'm really concerned about the pain in your side, as I know you are. Perhaps you should call your doc and discuss your inability to function because of the pain. I know your liver is compromised, but it seems the spleen may also be a factor. I'd hate for you to have to make a trip to the hospital due to it all. Especially at this time of year. Definitely praying for you, my sweet friend. Thank you for all your wonderful posts. We all want you to take care of yourself and not ignore this problem! God bless you, and keep that chin up! Earnestly concerned, Susan -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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