Thanks Beth, The vinegar seems to have done the trick with the PCR, but I would love some help with the inflammation, not to mention an even lower dose of Sprycel; I am currently on 70mg. I will ponder whether to take the Sprycel, turmeric and Sprycel all at the same time, or to take the Tumeric earlier in the day.
I see my onc in a few weeks. Thanks for the info!! Blessings, Michele On Thu, Mar 20, 2014 at 2:18 PM, <[email protected]> wrote: > Hi Michele, > > I am taking a capsule form. organic...I had heard, on antother site, that > two individuals were taking it along with low dose sprycel and were > achieving complete remissions with it. This is antecdotal...but that's how > wisdom is handed down...so I spoke to my doc about it, and Carolyn, Dr. > Druker's former assistant now retired, did some research for me. She said > it uptakes on a similar path to sprycel and may enhance the effects of the > drug. She encouraged me not to take it if I was not on the TKI. And if I > was, to see, with blood work, if it had any effect. Like your Vinegar, we > are all trying to find ways to take less of the drug, and have the dose we > take be uptaked optimally...she had no idea if it would do anything...but > two patients at MD Anderson are trying this with success.. > > One day...a cure,....for now........keep on dancing ;) > > Have a great day.. > > Beth > > > -----Original Message----- > From: LearnToBallroomDanceOnline.com <[email protected]> > To: cmlhope <[email protected]> > Sent: Thu, Mar 20, 2014 3:05 pm > Subject: Re: [CMLHope] To Beth, regarding Lemon Juice > > Awwww, thanks Beth, > How are you ingesting the tumeric? I "like" it and use it in cooking, but > that is occasional. > > And thank you, dancing has been really painful lately but I am still > doing it! > > Blessings, > Michele > > > On Thu, Mar 20, 2014 at 1:03 PM, <[email protected]> wrote: > >> I think you will be jumping for joy Michelle. I am keeping you in my >> thoughts and prayers...I am trying tumeric with sprycel to see if it helps >> with the inflammatory response I have from it....I have been told by others >> that it also helps the absorption of the med fopr better BCR -abl results >> without taking more meds.....I guess we are all learning... I can still see >> you dancing.....such a beautiful image... >> >> Take good care, >> >> Beth >> >> >> -----Original Message----- >> From: LearnToBallroomDanceOnline.com <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Thu, Mar 20, 2014 1:39 pm >> Subject: Re: [CMLHope] To Beth, regarding Lemon Juice >> >> You go, Peg!!! >> >> What a great explanation! And I am so anxious to see what my results >> will be next month, as I have been taking 70 mg of Sprycel, with the >> Bragg's Vinegar for the past 3 months.My last two PCR's were negative. I >> swear if it is negative again you will feel me jumping for joy!!!! >> >> Here are the links from the previous posts: >> The Ever Increasing BCR-ABL Synopsis >> <http://www.leukemiasurvivor.co/2013/08/the-ever-increasing-bcr-abl-synopsis.html> >> Absorption; Could This be the >> Cause<http://www.leukemiasurvivor.co/2013/08/absorption-of-medication-could-this-be.html> >> Sucking Down the >> Mother's<http://www.leukemiasurvivor.co/2013/08/sucking-down-mothers.html> >> A Negative PCR, >> Really?<http://www.leukemiasurvivor.co/2013/08/a-negative-pcr-really.html> >> >> Feel free to share with others! >> >> Blessings, >> Michele >> >> >> On Fri, Mar 14, 2014 at 8:29 AM, peg <[email protected]> wrote: >> >>> Hi Beth, >>> >>> Hi Beth, >>> >>> You are right that increasing absorption of a TKI does render a higher >>> dose, and for me, yes this caused more side effects on Sprycel, but my side >>> effects in hindsight were an auto-immune reaction. Here is the thing about >>> lemon juice, vinegar, coke or anything that increases stomach acid, it is >>> possible, as gleened from personal annecdotes and my personal experience, >>> that Sprycel, and possibly other TKI's, actually cause a reduction in >>> stomach acid over time reducing the amount of absorption of a dose that >>> would otherwise be affective on our CML. There are still so many unknowns >>> about these drugs. Whether that is the case or not, at a point where a >>> dose is no longer affective, doctors have simply increased the dose, rather >>> than trying to increase the absorption! I personally think that there is >>> more control over how much you are absorbing and the toxicity of a drug by >>> simply restoring your ability to absorb a medication rather than increasing >>> the dose. If you are taking, let's say, 100mg of a drug daily, increasing >>> the absorbtion by intentionally increasing acidity still can never give you >>> more than 100mg, but if you increase that dose to 140mg, on any given day >>> you could absorb more...up to the full 140mg, as the acidity level is >>> natually affected in your stomach by what you eat. Sort of like why a >>> particular food will give you heartburn on one day but not another...due to >>> natural fluctuations in stomach acid. This is just my thought on this. >>> >>> As an interesting side note, when this vinegar topic came up here last >>> year, I had noticed that not only was my sprycel dose not as affective but >>> that every time I ate I got stomach pain and indigestion. On an >>> experiment, I tried lemon juice to ease the indigestion and stomach pain >>> and it worked. There is much anecdotal evidence of this online as an >>> indigestion aide. So to take my experiment one step further, I started >>> swigging lemon juice before my meals, and it completely put an end to my >>> indigestion! >>> >>> As far as wound healing...yes...this was my experience also on all of >>> the TKI drugs, wounds do not heal well or quickly! In the case of Sprycel, >>> my skin was extremely dry and did not heal well from any type of wound, >>> surgical or injury. I also noticed that I had an absorbtion problem from >>> medication patches...in my case estrogen...it simply did not absorb well. >>> I also had a more extreme reaction to chlorine when I was doing pool >>> therapy, but found that using a heavy mosturizer prior to contact kept me >>> from breaking out in an itchy rash. Wounds will eventually heal but must >>> be safeguarded, with extreme vigilence, from infection due to the slower >>> healing time. Hang in there! >>> >>> Hope my thoughts are able to help in some way. >>> >>> Peg >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at >>> http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google >>> Groups "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send >>> an email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >>> >> >> >> >> -- >> [email protected] >> www.LearntoBallroomDanceOnline.com<http://www.learntoballroomdanceonline.com/> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> > > > > -- > [email protected] > www.LearntoBallroomDanceOnline.com<http://www.learntoballroomdanceonline.com/> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. > -- [email protected] www.LearntoBallroomDanceOnline.com -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
