Your welcome Suzieq.   I fly into Chicago on May 7th  to see Dr. Altman, 
get my blood work and pick up my Gleevec.  Today I woke  up and my tail is 
between my legs.  I don't feel like doing anything.   Hoping it's just a bad 
day and tomorrow is better.  Hope it's just a  Gleevec day.
 
Every buddy take care,
 
greenie
 
 
In a message dated 4/18/2014 3:55:39 P.M. Eastern Daylight Time,  
[email protected] writes:

Hey there Greenie:  


Just read this.  Not sure what to think.  I'm like Marty....why  doesn't 
Novartis help more through their Compassion program.  Just talked  to a lady 
today whose daughter doesn't qualify for the drug companies help  with the 
cost because she's under 18.  So What????  They cannot  afford to pay the 
monthly cost co-pay of $2500.  


I, for one,  haven't felt comfortable about going completely off my  
Gleevec.  I have cut the dosage from 400mgs. to now at 100mgs. and am so  far 
staying at "none detected".  I go see my doctor the end of next month  and am 
hoping that I am still staying "none detected".  I had to take the  drug at 
400mgs. for 5 years before I managed that "none detected" all across  the 
graph.  Always before then,  it would be raised a bit here or  
there......stayed 
at .001% for ever it seemed. :)  But, I've been staying  at 0 now since 
July of '09 and I want to keep it that way.  Just too  nervous about going off 
of it completely.


Thanks for posting this Greenie.


Suzieq




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