Negative for BCR-ABL fusion,way to go Greenie! 18's,
Marty On Thu, May 15, 2014 at 4:24 PM, Myvety2k via CMLHope <[email protected]> wrote: > I Group, I just received my results back from Northwestern in Chicago and > my final diagnosis was Negative for BCR-ABL fusion transcript. So I'm good > to go for another 6 months. My PSA was on the high side, not over 4.0 but > close. Will keep a watch on it, I don't need two cancer's, one bad enough. > > Take care everyone, > > greenie > > In a message dated 5/14/2014 6:55:53 P.M. Eastern Daylight Time, > [email protected] writes: > > Hi Jeanie...I agree with Marty. You're here and that is what counts. I had > never heard of prior to your saying that you had it done. When I was > diagnosed I had a BMA to confirm what he already knew. I can't even tell > you what my white count was, because you know Millie, I leave most of the > numbers up to the doctor. When there has been something to consider, or > discuss, he always does it with me. I have trusted him with my life, and > he's done a wonderful job. He is up on everything, and if there is > something he is unsure of, he consults with the makers of whatever drug I > happen to be on. I was started off on Interferon, and then Hydroxeria > (because the interferon made me so sick, I wished I were dead) At any rate > that would never put me into remission, so when Gleevec came on the market, > he put me right on it, and when it no longer worked, we discussed Sprycel > (which I was on for a very short time). That isn't because it wasn't good, > but he didn't want to hurt my joints, etc. even more, and there were several > risks to my taking it with all of my other things I have going on. That's > when I was put on Tasigna, and so far, so good. Even at half a dose, I'm > doing okay. I'll know more in June when they'll run more tests. My doctor > just hired and excellent nurse. Josh is so sweet, and any time I have a > question over medications that I'm taking, he checks it out and gets right > back to me. I have been blessed by having these people in my life, and I'm > still here, so that is the good thing. I feel pain, but that means I'm > still alive. I'm so glad you're back with us as we need you. I hope that > you're doing okay today, Marty. I know it's a hard day for you, but if > you're still here, that's all that counts. I pray every day for some > answers to everything you need. I'm blessed to have all of you in my life. > You're like my family and make me strong. You give me the will to go on, > as that's really what I want to do, even on the bad days. Between my boys > (especially Chris), and you here on line, it puts me in a great place and it > gives me strength that I didn't know that I had. The past two days have > been difficult with my Arthritis, but I'm managing. I did lay down for > about an hour, and that helps me. You all have a wonderful evening and > I'll catch you later. > > Love, Hugs, Prayers, and 18's, > Millie > ----- Original Message ----- > From: "Marty Gartenberg" <[email protected]> > To: <[email protected]> > Sent: Wednesday, May 14, 2014 5:55 PM > Subject: Re: [CMLHope] anyone put in the hospital and had blood cleansed > when first dx? > > >> Hi Jeanie, >> >> I actually have heard of blood cleansing but on rare ocassions. Olny >> three times in all of these past twenty four years. So what does it >> matter anyway because your still here, and that is what counts. >> >> 18's, >> >> Marty >> >> On Wed, May 14, 2014 at 3:56 PM, ICANDOALLTTC via CMLHope >> <[email protected]> wrote: >>> Hi Marty, and yes, due to my son and my PCD vigilance, I got dx soon. I >>> had >>> been giving blood so I don't think I had it that long. I wonder how >>> common >>> it is to be put in the hospital and have your blood cleansed like I did. >>> They put a catheter in your neck and hook it up to a big machine. The >>> blood >>> then runs through the machine to be cleansed. >>> It takes 3-4 hours to have this done, and they do it daily. >>> I did have a symptom but don't know if this was from the leukemia; it was >>> a >>> pounding of the heart several weeks before dx. >>> >>> Yes, German shepherd knew I was in trouble; he didn't hit me hard enough >>> to >>> hurt me; it was neat. >>> >>> Blessings >>> Jeanie<3 >>> In a message dated 5/13/2014 9:05:03 P.M. Eastern Daylight Time, >>> [email protected] writes: >>> >>> Jeanie, it is not uncommon to be diagnoised the way you were. People >>> don't want to think the worst and will find excuesses not to have a >>> blood test taken. >>> >>> Yes you are quite lucky that you went to the doctor because the higher >>> your WBC and platelets go the tougher it is to get them back under >>> control. >>> >>> That dog that hit you under the chin while you were choking was trying >>> to help you. It's to bad they speak a different language then us. >>> >>> 18's, >>> >>> Marty >>> >>> On Tue, May 13, 2014 at 6:56 PM, ICANDOALLTTC via CMLHope >>> <[email protected]> wrote: >>>> That's a great story, Marty. >>>> I don't have dogs, but my daughter who lives alone with her children >>>> bought >>>> a German shepherd as a puppy. He is very protective, and I don't think >>>> anyone would want to mess with her family. >>>> When I was visiting her last year, I had a choking spell which I get >>>> sometimes if water hits the wrong spot in my throat. I couldn't catch >>>> my >>>> breath, and all of sudden the dog jumped up and bopped me on the chin. >>>> It >>>> was his way of trying to help me. It was so cute. >>>> Thanks for sharing your story on the discovery of your leukemia. >>>> Here's mine: >>>> I had flown to Ohio to be with my daughter, and I was sick while there. >>>> I >>>> thought I had eaten something bad. I got home, and was taking my usual >>>> daily walk, and I got so tired I could barely stand up. I came in and >>>> told >>>> my son how tired I was. He told me I had to go to the doctor. I said >>>> no, >>>> because I never liked going to doctors and only went in cases of >>>> emergency, >>>> however he insisted and off I went the next day. >>>> When I was waiting in the waiting room, my heart was pounding very hard >>>> and >>>> fast. The doctor who was my PCD took all my vitals and said he was >>>> going >>>> to >>>> take a blood test. I told him I really didn't need one but he insisted. >>>> Luckily he has a blood draw right in his office, so they took the blood >>>> and >>>> told me the results would be back the next day. >>>> The next day he called with the bad news. He told me my platelets and >>>> wbc >>>> were way too high to be normal and that he was making me an appointment >>>> with >>>> an onc he knew. I told him I didn't think it was serious but he had >>>> already >>>> made the appointment. >>>> So off I go to a new doctor I had never seen before. He also had a >>>> blood >>>> draw center in his office and the first thing he did was have my blood >>>> tested. It seems my platelets were in the millions and wbc way high. >>>> He wanted to do a BMA right then and there, and me not knowing anything >>>> about them, agreed. >>>> He decided right then and there that I had leukemia. >>>> I went into the office without my son, but he was waiting for me. The >>>> onc >>>> told me I sure was brave to be coming there alone. I must have been in >>>> shock because I still didn't realize what her was telling me. >>>> Then he told me I had to go right to the hospital. Now I knew things >>>> were >>>> getting serious. >>>> He said he had bad news and good news. The bad news was I had leukemia >>>> and >>>> the good news was that we now had Gleevec to treat it with. >>>> I was put in the hospital and was having my blood cleanse daily. It >>>> wasn't >>>> doing any good but they were doing it anyway. >>>> Finally I was sent home and I started on Gleevec. I was also on Hydrea >>>> and >>>> another drug, still my counts wouldn't come down. It took a while but >>>> finally they started coming down. >>>> The whole episode was a nightmare when I reflect back on it. >>>> More later-- >>>> Jeanie<3 >>>> >>>> In a message dated 5/8/2014 8:45:52 P.M. Eastern Daylight Time, >>>> [email protected] writes: >>>> >>>> Hi Millie and everyone else, >>>> >>>> Just so you know I had all of my tests this morning and am now resting >>>> at home. It really took a lot out of me but I am still doing as well >>>> as can be. My heart is still doing what it is supposed to and although >>>> they removed ten polyps from my colon the doctor will be sending them >>>> off for pathology but said that she thinks everything looked good. >>>> Hopefully she will be right. >>>> >>>> Millie I read about the dog Lucky and it brought back memories to me. >>>> I had an adorabile dog named Sniffer. She had the face of a baby >>>> raccoon, and would follow me where ever I went. She was like velcros >>>> sticking to my leg whenever I would walk her. She and I were extreamly >>>> attatched. >>>> >>>> I had adopted her from some obusive people when she was only nine >>>> months old. As soon as I opened my car door she ran in as fast as a >>>> lightening strike. She was mine and I was hers for the next fifteen >>>> years. >>>> >>>> When I had to get my bone marrow transplant I was gone for over seven >>>> months and she would cry most of the time. She knew something was >>>> wrong but didn't know where I had gone. >>>> >>>> So, after all of these month of being away from my home, when I >>>> finally got back home she was not allowed to stay near me because I >>>> had a very low immune system. I even had to have my own bath >>>> facilities and a whole bunch of other things that would not be able to >>>> infect me. >>>> >>>> This had gone on for several more months and when I was finally able >>>> to have my immune system working again, I still had to ware a mask and >>>> gloves. So I slowly went over to her and spoke in a very gentile >>>> voice. She at first was afraid to come over to me, and would run and >>>> hide under the bed. >>>> >>>> I then came to find out that since I had the bone marrow transplant my >>>> scent had changed and since I had the mask on she didn't recognise me. >>>> it took another couple of weeks for her recognise me and once she did >>>> then she was velcrose again. >>>> >>>> After she died, my heart was broken, and I looked for another dog for >>>> almost two years. Shelly and I would visit shelters every weekend and >>>> nothing... Funny how things work out. A friend of mine by the name of >>>> Jay (he is in my book) he had cancer and I would always spend time >>>> with him when his wife was at work. >>>> >>>> Well one day there is a stray german sheppard sitting across from his >>>> house. She was filthy and smelled from gasoline. She had a bad cut on >>>> the back of her rear leg with dried blood on it. Everytime I tried to >>>> approach her she would show her teeth to me and growl. >>>> >>>> She was about twenty five feet from me so I got down on my knees, >>>> clasped my hands into a cup like shape and gently started speaking to >>>> her. It took about fifteen minutes before she would come to me, and >>>> when she did she just put her snoot right into my hands. I mean this >>>> dog could have really hurt me if she wanted to but she was very gentle >>>> with me. >>>> >>>> I took her right to my vet who had to put a muzzle on her and he >>>> cleaned and dressed her wound then had her cleaned up. He also warned >>>> me that since I had small children it wouldn't be a good idea to bring >>>> her home with me. >>>> >>>> It seemed that she immeadiately bonded with me because as soon as the >>>> vet removed the muzzle from her she came right over to me and started >>>> to gently howl to me. He was simply amaized at what he saw. So, I know >>>> that animals have this sort of sense of who we are. >>>> >>>> I brought her home with me and introduced both of my young children >>>> and wife to her. We had her for 12 years and she was very protective >>>> of my wife and children. If anyone ever would try to harm any of us >>>> then she would have given her life to protect us and as it happened >>>> she did protect our home. The burglar almost lost his legs after she >>>> attacked him. If we were home at the time she would have probably >>>> killed him. >>>> >>>> So, what does this all have to do with Leukemia? Well, my first dog >>>> Sniffer would always come over to me and would smell me at my right >>>> hip. I was kind of taken back by her behavior because I didn't know >>>> what to make of it??? >>>> >>>> I later found out and then associated it. Several weeks later my right >>>> hip started to swell up and it was really hurting me very much. It got >>>> so bad that I went to a doctor who failed to take a simple CBC blood >>>> test but rather gave me pain killers and an anti inflamatory. Had he >>>> taken the blood test it would have come back with a huge white blood >>>> cell count. >>>> >>>> I went home but the pain got much worse and my hip was now twice the >>>> size it should have been. My wife Shelly was in our home in >>>> Pennsylvania because I had to work and she was off for the summer, and >>>> I would come up on the weekends. >>>> >>>> At about three am I felt as if I were dying so I called my friend to >>>> take me to the hospital. I didn't want to call 911 because we lived in >>>> a duplex and I wasn't able to climb down the stairs to be able to open >>>> the door so they would have probably have to break it down, while my >>>> friend had the keys. >>>> >>>> And that is how my Leukemia started. Now if I had only known what my >>>> dog Sniffer was doing by smelling my right hip? Animals, especially >>>> dogs have this uncanny sense that we just can't understand because we >>>> speak "different languages" I guess that in her own way she was >>>> telling me that something was wrong, it was I that just didn't >>>> understand what she was trying to tell me. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> >>>> >>>> On Wed, May 7, 2014 at 10:47 PM, houtz <[email protected]> wrote: >>>>> Thought this was worth sharing. When I first got Cancer my little >>>>> dachshund wouldn't leave my side, and when I was in the hospital, she'd >>>>> cry >>>>> her heart out when I came home. I believe that they sense things >>>>> better >>>>> then people do...Love to all, Millie >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> This really is a great story! >>>>> [image: cid:39699F9DDE2E4740963F588FF14D329A@FranPC] >>>>> *Lucky Dog.... * >>>>> >>>>> Anyone who has pets will really like this. You'll like it even if you >>>>> don't and you may even decide you need one! >>>>> Mary and her husband Jim had a dog named 'Lucky.' Lucky was a real >>>>> character. >>>>> Whenever Mary and Jim had company come for a weekend visit they would >>>>> warn >>>>> their friends to not leave their luggage open because Lucky would help >>>>> himself to whatever struck his fancy. Inevitably, someone would >>>>> forget >>>>> and something would come up missing. >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> [image: cid:7F5E61FCF1C74CE1A4018C72CE4D93FB@FranPC][image: >>>>> cid:DC0BD295928B4651B7D480B00FC2F881@FranPC] >>>>> Mary or Jim would go to Lucky's toy box in the basement and there the >>>>> treasure would be, amid all of Lucky's other favorite toys. Lucky >>> >>>>> always stashed his finds in his toy box and he was very particular that >>>>> his >>>>> toys stay in the box. >>>>> It happened that Mary found out she had breast cancer. Something >>>>> told >>>>> her she was going to die of this disease......in fact; she was just >>>>> sure >>>>> it was fatal. >>>>> She scheduled the double mastectomy, fear riding her shoulders. The >>>>> night before she was to go to the hospital she cuddled with Lucky. A >>>>> thought struck her....what would happen to Lucky? Although the >>>>> three-year-old dog liked Jim, he was Mary's dog through and through. >>>>> If I die, Lucky will be abandoned, Mary thought. He won't understand >>>>> that >>>>> I didn't want to leave him! The thought made her sadder than thinking >>>>> of >>>>> her own death. >>>>> >>>>> The double mastectomy was harder on Mary than her doctors had >>>>> anticipated >>>>> and Mary was hospitalized for over two weeks. Jim took Lucky for his >>>>> evening walk faithfully, but the little dog just drooped, whining and >>>>> miserable. >>>>> Finally the day came for Mary to leave the hospital. When she arrived >>>>> home, Mary was so exhausted she couldn't even make it up the steps to >>>>> her >>>>> bedroom. Jim made his wife comfortable on the couch and left her to >>>>> nap. >>>>> Lucky stood watching Mary but he didn't come to her when she called.. >>>>> It >>>>> made Mary sad but sleep soon overcame her and she dozed. >>>>> >>>>> When Mary woke for a second she couldn't understand what was wrong. >>>>> She >>>>> couldn't move her head and her body felt heavy and hot. But panic >>>>> soon >>>>> gave way to laughter when Mary realized the problem. She was covered, >>>>> literally blanketed, with every treasure Lucky owned! >>>>> While she had slept, the sorrowing dog had made trip after trip to the >>>>> basement bringing his beloved mistress all his favorite things in life. >>>>> *He had covered her with his love.* >>>>> Mary forgot about dying. Instead she and Lucky began living again, >>>>> walking further and further together every day. It's been 12 years >>>>> now >>>>> and Mary is still cancer-free. Lucky. He still steals treasures >>>>> and >>>>> stashes them in his toy box but Mary remains his greatest treasure. >>>>> >>>>> >>>>> >>>>> [image: cid:C705D58F084C427A8B925699F537DC71@FranPC] >>>>> Remember.....live every day to the fullest. Each minute is a blessing >>>>> from >>>>> God. And never forget....the people who make a difference in our lives >>>>> are >>>>> not the ones with the most credentials, the most money, or the most >>>>> awards. They are the ones that care for us. >>>>> >>>>> If you see someone without a smile today give them one of yours! Live >>>>> simply. Love seriously. Care deeply. Speak kindly. Leave the rest >>>>> to >>>>> God. >>>>> *A small request* >>>>> >>>>> All you are asked to do is keep this circulating. >>>>> *Dear God, I pray for the cure of cancer.* >>>>> *Amen* >>>>> >>>>> All you are asked to do is keep this circulating, even if it is only to >>>>> one >>>>> more person, in memory of anyone you know that has been struck down by >>>>> cancer or is still fighting their battle. >>>>> >>>>> [image: cid:7C648867D9824FC6BBF2FD936F5E39BB@FranPC] >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> >>>>> <http://www.avast.com/> >>>>> This email is free from viruses and malware because avast! >>>>> Antivirus<http://www.avast.com/>protection is active. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe 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