Hi Greenie, You should put it another way... After 14 + years your still alive as I also am after 24 years.
Now you know the meaning of 18's So, 18's to you Greenie. Marty On Thu, May 15, 2014 at 6:17 PM, Myvety2k via CMLHope <[email protected]> wrote: > Thanks Marty, I'm very lucky that after 14 plus years I'm still Negative > except for one time I stopped taking Gleevec for 26 days and the cancer > cells showed up. Went right back on Gleevec, that was over 5 years ago. So > I keep my finger crossed. > > greenie > > In a message dated 5/15/2014 5:47:47 P.M. Eastern Daylight Time, > [email protected] writes: > > Negative for BCR-ABL fusion,way to go Greenie! > > 18's, > > Marty > > On Thu, May 15, 2014 at 4:24 PM, Myvety2k via CMLHope > <[email protected]> wrote: >> I Group, I just received my results back from Northwestern in Chicago and >> my final diagnosis was Negative for BCR-ABL fusion transcript. So I'm >> good >> to go for another 6 months. My PSA was on the high side, not over 4.0 but >> close. Will keep a watch on it, I don't need two cancer's, one bad >> enough. >> >> Take care everyone, >> >> greenie >> >> In a message dated 5/14/2014 6:55:53 P.M. Eastern Daylight Time, > >> [email protected] writes: >> >> Hi Jeanie...I agree with Marty. You're here and that is what counts. I >> had >> never heard of prior to your saying that you had it done. When I was >> diagnosed I had a BMA to confirm what he already knew. I can't even tell >> you what my white count was, because you know Millie, I leave most of the >> numbers up to the doctor. When there has been something to consider, or >> discuss, he always does it with me. I have trusted him with my life, and >> he's done a wonderful job. He is up on everything, and if there is >> something he is unsure of, he consults with the makers of whatever drug I >> happen to be on. I was started off on Interferon, and then Hydroxeria >> (because the interferon made me so sick, I wished I were dead) At any >> rate >> that would never put me into remission, so when Gleevec came on the >> market, >> he put me right on it, and when it no longer worked, we discussed Sprycel >> (which I was on for a very short time). That isn't because it wasn't >> good, >> but he didn't want to hurt my joints, etc. even more, and there were >> several >> risks to my taking it with all of my other things I have going on. That's >> when I was put on Tasigna, and so far, so good. Even at half a dose, I'm >> doing okay. I'll know more in June when they'll run more tests. My >> doctor >> just hired and excellent nurse. Josh is so sweet, and any time I have a >> question over medications that I'm taking, he checks it out and gets right >> back to me. I have been blessed by having these people in my life, and >> I'm >> still here, so that is the good thing. I feel pain, but that means I'm >> still alive. I'm so glad you're back with us as we need you. I hope that >> you're doing okay today, Marty. I know it's a hard day for you, but if >> you're still here, that's all that counts. I pray every day for some >> answers to everything you need. I'm blessed to have all of you in my >> life. >> You're like my family and make me strong. You give me the will to go on, >> as that's really what I want to do, even on the bad days. Between my boys >> (especially Chris), and you here on line, it puts me in a great place and >> it >> gives me strength that I didn't know that I had. The past two days have >> been difficult with my Arthritis, but I'm managing. I did lay down for >> about an hour, and that helps me. You all have a wonderful evening and >> I'll catch you later. >> >> Love, Hugs, Prayers, and 18's, >> Millie >> ----- Original Message ----- >> From: "Marty Gartenberg" <[email protected]> >> To: <[email protected]> >> Sent: Wednesday, May 14, 2014 5:55 PM >> Subject: Re: [CMLHope] anyone put in the hospital and had blood cleansed >> when first dx? >> >> >>> Hi Jeanie, >>> >>> I actually have heard of blood cleansing but on rare ocassions. Olny >>> three times in all of these past twenty four years. So what does it >>> matter anyway because your still here, and that is what counts. >>> >>> 18's, >>> >>> Marty >>> >>> On Wed, May 14, 2014 at 3:56 PM, ICANDOALLTTC via CMLHope >>> <[email protected]> wrote: >>>> Hi Marty, and yes, due to my son and my PCD vigilance, I got dx soon. I >>>> had >>>> been giving blood so I don't think I had it that long. I wonder how >>>> common >>>> it is to be put in the hospital and have your blood cleansed like I did. >>>> They put a catheter in your neck and hook it up to a big machine. The >>>> blood >>>> then runs through the machine to be cleansed. >>>> It takes 3-4 hours to have this done, and they do it daily. >>>> I did have a symptom but don't know if this was from the leukemia; it >>>> was >>>> a >>>> pounding of the heart several weeks before dx. >>>> >>>> Yes, German shepherd knew I was in trouble; he didn't hit me hard enough >>>> to >>>> hurt me; it was neat. >>>> >>>> Blessings >>>> Jeanie<3 >>>> In a message dated 5/13/2014 9:05:03 P.M. Eastern Daylight Time, >>>> [email protected] writes: >>>> >>>> Jeanie, it is not uncommon to be diagnoised the way you were. People >>>> don't want to think the worst and will find excuesses not to have a >>>> blood test taken. >>>> >>>> Yes you are quite lucky that you went to the doctor because the higher >>>> your WBC and platelets go the tougher it is to get them back under >>>> control. >>>> >>>> That dog that hit you under the chin while you were choking was trying >>>> to help you. It's to bad they speak a different language then us. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Tue, May 13, 2014 at 6:56 PM, ICANDOALLTTC via CMLHope >>>> <[email protected]> wrote: >>>>> That's a great story, Marty. >>>>> I don't have dogs, but my daughter who lives alone with her children >>>>> bought >>>>> a German shepherd as a puppy. He is very protective, and I don't think >>>>> anyone would want to mess with her family. >>>>> When I was visiting her last year, I had a choking spell which I get >>>>> sometimes if water hits the wrong spot in my throat. I couldn't catch >>>>> my >>>>> breath, and all of sudden the dog jumped up and bopped me on the chin. >>>>> It >>>>> was his way of trying to help me. It was so cute. >>>>> Thanks for sharing your story on the discovery of your leukemia. >>>>> Here's mine: >>>>> I had flown to Ohio to be with my daughter, and I was sick while there. >>>>> I >>>>> thought I had eaten something bad. I got home, and was taking my usual >>>>> daily walk, and I got so tired I could barely stand up. I came in and >>>>> told >>>>> my son how tired I was. He told me I had to go to the doctor. I said >>>>> no, >>>>> because I never liked going to doctors and only went in cases of >>>>> emergency, >>>>> however he insisted and off I went the next day. >>>>> When I was waiting in the waiting room, my heart was pounding very hard >>>>> and >>>>> fast. The doctor who was my PCD took all my vitals and said he was >>>>> going >>>>> to >>>>> take a blood test. I told him I really didn't need one but he >>>>> insisted. >>>>> Luckily he has a blood draw right in his office, so they took the blood >>>>> and >>>>> told me the results would be back the next day. >>>>> The next day he called with the bad news. He told me my platelets and >>>>> wbc >>>>> were way too high to be normal and that he was making me an appointment >>>>> with >>>>> an onc he knew. I told him I didn't think it was serious but he had >>>>> already >>>>> made the appointment. >>>>> So off I go to a new doctor I had never seen before. He also had a >>>>> blood >>>>> draw center in his office and the first thing he did was have my blood >>>>> tested. It seems my platelets were in the millions and wbc way high. >>>>> He wanted to do a BMA right then and there, and me not knowing anything >>>>> about them, agreed. >>>>> He decided right then and there that I had leukemia. >>>>> I went into the office without my son, but he was waiting for me. The >>>>> onc >>>>> told me I sure was brave to be coming there alone. I must have been in >>>>> shock because I still didn't realize what her was telling me. >>>>> Then he told me I had to go right to the hospital. Now I knew things >>>>> were >>>>> getting serious. >>>>> He said he had bad news and good news. The bad news was I had leukemia >>>>> and >>>>> the good news was that we now had Gleevec to treat it with. >>>>> I was put in the hospital and was having my blood cleanse daily. It >>>>> wasn't >>>>> doing any good but they were doing it anyway. >>>>> Finally I was sent home and I started on Gleevec. I was also on Hydrea >>>>> and >>>>> another drug, still my counts wouldn't come down. It took a while but >>>>> finally they started coming down. >>>>> The whole episode was a nightmare when I reflect back on it. >>>>> More later-- >>>>> Jeanie<3 >>>>> >>>>> In a message dated 5/8/2014 8:45:52 P.M. Eastern Daylight Time, >>>>> [email protected] writes: >>>>> >>>>> Hi Millie and everyone else, >>>>> >>>>> Just so you know I had all of my tests this morning and am now resting >>>>> at home. It really took a lot out of me but I am still doing as well >>>>> as can be. My heart is still doing what it is supposed to and although >>>>> they removed ten polyps from my colon the doctor will be sending them >>>>> off for pathology but said that she thinks everything looked good. >>>>> Hopefully she will be right. >>>>> >>>>> Millie I read about the dog Lucky and it brought back memories to me. >>>>> I had an adorabile dog named Sniffer. She had the face of a baby >>>>> raccoon, and would follow me where ever I went. She was like velcros >>>>> sticking to my leg whenever I would walk her. She and I were extreamly >>>>> attatched. >>>>> >>>>> I had adopted her from some obusive people when she was only nine >>>>> months old. As soon as I opened my car door she ran in as fast as a >>>>> lightening strike. She was mine and I was hers for the next fifteen >>>>> years. >>>>> >>>>> When I had to get my bone marrow transplant I was gone for over seven >>>>> months and she would cry most of the time. She knew something was >>>>> wrong but didn't know where I had gone. >>>>> >>>>> So, after all of these month of being away from my home, when I >>>>> finally got back home she was not allowed to stay near me because I >>>>> had a very low immune system. I even had to have my own bath >>>>> facilities and a whole bunch of other things that would not be able to >>>>> infect me. >>>>> >>>>> This had gone on for several more months and when I was finally able >>>>> to have my immune system working again, I still had to ware a mask and >>>>> gloves. So I slowly went over to her and spoke in a very gentile >>>>> voice. She at first was afraid to come over to me, and would run and >>>>> hide under the bed. >>>>> >>>>> I then came to find out that since I had the bone marrow transplant my >>>>> scent had changed and since I had the mask on she didn't recognise me. >>>>> it took another couple of weeks for her recognise me and once she did >>>>> then she was velcrose again. >>>>> >>>>> After she died, my heart was broken, and I looked for another dog for >>>>> almost two years. Shelly and I would visit shelters every weekend and >>>>> nothing... Funny how things work out. A friend of mine by the name of >>>>> Jay (he is in my book) he had cancer and I would always spend time >>>>> with him when his wife was at work. >>>>> >>>>> Well one day there is a stray german sheppard sitting across from his >>>>> house. She was filthy and smelled from gasoline. She had a bad cut on >>>>> the back of her rear leg with dried blood on it. Everytime I tried to >>>>> approach her she would show her teeth to me and growl. >>>>> >>>>> She was about twenty five feet from me so I got down on my knees, >>>>> clasped my hands into a cup like shape and gently started speaking to >>>>> her. It took about fifteen minutes before she would come to me, and >>>>> when she did she just put her snoot right into my hands. I mean this >>>>> dog could have really hurt me if she wanted to but she was very gentle >>>>> with me. >>>>> >>>>> I took her right to my vet who had to put a muzzle on her and he >>>>> cleaned and dressed her wound then had her cleaned up. He also warned >>>>> me that since I had small children it wouldn't be a good idea to bring >>>>> her home with me. >>>>> >>>>> It seemed that she immeadiately bonded with me because as soon as the >>>>> vet removed the muzzle from her she came right over to me and started >>>>> to gently howl to me. He was simply amaized at what he saw. So, I know >>>>> that animals have this sort of sense of who we are. >>>>> >>>>> I brought her home with me and introduced both of my young children >>>>> and wife to her. We had her for 12 years and she was very protective >>>>> of my wife and children. If anyone ever would try to harm any of us >>>>> then she would have given her life to protect us and as it happened >>>>> she did protect our home. The burglar almost lost his legs after she >>>>> attacked him. If we were home at the time she would have probably >>>>> killed him. >>>>> >>>>> So, what does this all have to do with Leukemia? Well, my first dog >>>>> Sniffer would always come over to me and would smell me at my right >>>>> hip. I was kind of taken back by her behavior because I didn't know >>>>> what to make of it??? >>>>> >>>>> I later found out and then associated it. Several weeks later my right >>>>> hip started to swell up and it was really hurting me very much. It got >>>>> so bad that I went to a doctor who failed to take a simple CBC blood >>>>> test but rather gave me pain killers and an anti inflamatory. Had he >>>>> taken the blood test it would have come back with a huge white blood >>>>> cell count. >>>>> >>>>> I went home but the pain got much worse and my hip was now twice the >>>>> size it should have been. My wife Shelly was in our home in >>>>> Pennsylvania because I had to work and she was off for the summer, and >>>>> I would come up on the weekends. >>>>> >>>>> At about three am I felt as if I were dying so I called my friend to >>>>> take me to the hospital. I didn't want to call 911 because we lived in >>>>> a duplex and I wasn't able to climb down the stairs to be able to open >>>>> the door so they would have probably have to break it down, while my >>>>> friend had the keys. >>>>> >>>>> And that is how my Leukemia started. Now if I had only known what my >>>>> dog Sniffer was doing by smelling my right hip? Animals, especially >>>>> dogs have this uncanny sense that we just can't understand because we >>>>> speak "different languages" I guess that in her own way she was >>>>> telling me that something was wrong, it was I that just didn't >>>>> understand what she was trying to tell me. >>>>> >>>>> 18's, >>>>> >>>>> Marty >>>>> >>>>> >>>>> >>>>> On Wed, May 7, 2014 at 10:47 PM, houtz <[email protected]> wrote: >>>>>> Thought this was worth sharing. When I first got Cancer my little >>>>>> dachshund wouldn't leave my side, and when I was in the hospital, >>>>>> she'd >>>>>> cry >>>>>> her heart out when I came home. I believe that they sense things >>>>>> better >>>>>> then people do...Love to all, Millie >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> This really is a great story! >>>>>> [image: cid:39699F9DDE2E4740963F588FF14D329A@FranPC] >>>>>> *Lucky Dog.... * >>>>>> >>>>>> Anyone who has pets will really like this. You'll like it even if you >>>>>> don't and you may even decide you need one! >>>>>> Mary and her husband Jim had a dog named 'Lucky.' Lucky was a real >>>>>> character. >>>>>> Whenever Mary and Jim had company come for a weekend visit they would >>>>>> warn >>>>>> their friends to not leave their luggage open because Lucky would >>>>>> help >>>>>> himself to whatever struck his fancy. Inevitably, someone would >>>>>> forget >>>>>> and something would come up missing. >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> [image: cid:7F5E61FCF1C74CE1A4018C72CE4D93FB@FranPC][image: >>>>>> cid:DC0BD295928B4651B7D480B00FC2F881@FranPC] >>>>>> Mary or Jim would go to Lucky's toy box in the basement and there the >>>>>> treasure would be, amid all of Lucky's other favorite toys. Lucky >>>> >>>>>> always stashed his finds in his toy box and he was very particular >>>>>> that >>>>>> his >>>>>> toys stay in the box. >>>>>> It happened that Mary found out she had breast cancer. Something >>>>>> told >>>>>> her she was going to die of this disease......in fact; she was just >>>>>> sure >>>>>> it was fatal. >>>>>> She scheduled the double mastectomy, fear riding her shoulders. The >>>>>> night before she was to go to the hospital she cuddled with Lucky. >>>>>> A >>>>>> thought struck her....what would happen to Lucky? Although the >>>>>> three-year-old dog liked Jim, he was Mary's dog through and through. >>>>>> If I die, Lucky will be abandoned, Mary thought. He won't understand >>>>>> that >>>>>> I didn't want to leave him! The thought made her sadder than thinking >>>>>> of >>>>>> her own death. >>>>>> >>>>>> The double mastectomy was harder on Mary than her doctors had >>>>>> anticipated >>>>>> and Mary was hospitalized for over two weeks. Jim took Lucky for >>>>>> his >>>>>> evening walk faithfully, but the little dog just drooped, whining and >>>>>> miserable. >>>>>> Finally the day came for Mary to leave the hospital. When she >>>>>> arrived >>>>>> home, Mary was so exhausted she couldn't even make it up the steps to >>>>>> her >>>>>> bedroom. Jim made his wife comfortable on the couch and left her to >>>>>> nap. >>>>>> Lucky stood watching Mary but he didn't come to her when she called.. >>>>>> It >>>>>> made Mary sad but sleep soon overcame her and she dozed. >>>>>> >>>>>> When Mary woke for a second she couldn't understand what was wrong. >>>>>> She >>>>>> couldn't move her head and her body felt heavy and hot. But panic >>>>>> soon >>>>>> gave way to laughter when Mary realized the problem. She was >>>>>> covered, >>>>>> literally blanketed, with every treasure Lucky owned! >>>>>> While she had slept, the sorrowing dog had made trip after trip to the >>>>>> basement bringing his beloved mistress all his favorite things in >>>>>> life. >>>>>> *He had covered her with his love.* >>>>>> Mary forgot about dying. Instead she and Lucky began living again, >>>>>> walking further and further together every day. It's been 12 years >>>>>> now >>>>>> and Mary is still cancer-free. Lucky. He still steals treasures >>>>>> and >>>>>> stashes them in his toy box but Mary remains his greatest treasure. >>>>>> >>>>>> >>>>>> >>>>>> [image: cid:C705D58F084C427A8B925699F537DC71@FranPC] >>>>>> Remember.....live every day to the fullest. Each minute is a blessing >>>>>> from >>>>>> God. And never forget....the people who make a difference in our >>>>>> lives >>>>>> are >>>>>> not the ones with the most credentials, the most money, or the most >>>>>> awards. They are the ones that care for us. >>>>>> >>>>>> If you see someone without a smile today give them one of yours! >>>>>> Live >>>>>> simply. Love seriously. Care deeply. Speak kindly. Leave the >>>>>> rest >>>>>> to >>>>>> God. >>>>>> *A small request* >>>>>> >>>>>> All you are asked to do is keep this circulating. >>>>>> *Dear God, I pray for the cure of cancer.* >>>>>> *Amen* >>>>>> >>>>>> All you are asked to do is keep this circulating, even if it is only >>>>>> to >>>>>> one >>>>>> more person, in memory of anyone you know that has been struck down by >>>>>> cancer or is still fighting their battle. >>>>>> >>>>>> [image: cid:7C648867D9824FC6BBF2FD936F5E39BB@FranPC] >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> >>>>>> <http://www.avast.com/> >>>>>> This email is free from viruses and malware because avast! >>>>>> Antivirus<http://www.avast.com/>protection is active. >>>>>> >>>>>> -- >>>>>> -- >>>>>> [CMLHope] >>>>>> A support group of http://cmlhope.com >>>>>> ------------------------------------------------- >>>>>> >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups >>>>>> "CMLHope" group. >>>>>> To post to this group, send email to [email protected] >>>>>> To unsubscribe from this group, send email to >>>>>> [email protected] >>>>>> For more options, visit this group at >>>>>> http://groups.google.com/group/CMLHope >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups >>>>>> "CMLHope" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>>> an >>>>>> email to [email protected]. >>>>>> For more options, visit https://groups.google.com/d/optout. >>>>> >>>>> -- >>>>> -- >>>>> [CMLHope] >>>>> A support group of http://cmlhope.com >>>>> ------------------------------------------------- >>>>> >>>>> You received this message because you are subscribed to the Google >>>>> Groups >>>>> "CMLHope" group. >>>>> To post to this group, send email to [email protected] >>>>> To unsubscribe from this group, send email to >>>>> [email protected] >>>>> For more options, visit this group at >>>>> http://groups.google.com/group/CMLHope >>>>> 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