Hi Maria, I'm sorry that your having such difficulty trying to unsubscribe from our group. Personally, I do not know how to either, and you are correct we are basically a closed group of people that are here to help each-other through our disease.
Frankly, I'm surprised that you are even receiving any of our posts because in order to do that you must have signed up at some time to begin with. If you don't want to receive or read any of our posts then in the meantime might I suggest simply hitting the deleate button on your keyboard any time that you receive any messages from us. Thank you, and 18's, Marty On Sat, Jul 12, 2014 at 12:07 AM, Maria Cashion <[email protected]> wrote: > Please help me unsubscribe from this group. I have tried everything. I do > not wish to recive any more messages, you area avery closed group and there > is really no space for anyone else. The automatic address to unsubscribe is > not working > > > On Fri, Jul 11, 2014 at 6:14 AM, <[email protected]> wrote: >> >> Today's topic summary >> >> Group: http://groups.google.com/group/cmlhope/topics >> >> Millie [6 Updates] >> Bone Pain [5 Updates] >> >> Millie >> >> [email protected] Jul 10 07:14AM -0400 >> >> Hi Marty, I'm so sorry to hear that your having these problems, hang in >> their. I have to see my Doctor this morning some minor problems. I'm >> pulling for you. >> >> greenie >> >> >> In a message dated 7/10/2014 3:57:31 A.M. Eastern Daylight Time, >> [email protected] writes: >> >> Hi Everyone, >> >> I just got home from the hospital, I usually don't complain but this >> was a terrible experience for me because I almost died. I have >> Phnomonia 0in my right lung and have been put on some very powerful >> antibiotics. The side effects are terrible and I haven't been able to >> sleep fo-r most of the days that I have been on them. My prostate has >> been giving me problems making is almost impossible to urinate so it >> looks like more surgery. My hands have terrible ticks so it is >> difficult to type. It is difficult to take deep breaths and I have >> anxiety as well as some memory loss. Hopefully it will be only >> temporarly. >> >> To top it off my kindle stopped working and it is out of warranty by >> only a week and a half. I just called Amazon and they were very >> helpful and sending me a new replacement. >> >> It is now almost 4 am and I can not sleep so I decided to get on here >> and keep you informed about what is going on. I have to constantly go >> back and correct my text but have managed to do so. I am a mess but >> still driving the bus. >> >> It is my wife Shelly that is and has been keeping me going. She is the >> star of my life just as she helped me through my bone marrow >> transplant so does she help me through this. With all the illness I >> have had she has always been there for me, although I feel really >> badly for her because of what she has been going through. >> >> 18's, >> >> Marty >> >> On Fri, Jul 4, 2014 at 11:17 PM, 'Susan Zimmerman' via CMLHope >> > Dear dear Marty, >> >> > Praying for you as well as hoping for all your issues to be cleared to >> pave >> > the way for a kidney transplant!!! You know we all love you and thank >> you >> > for your uplifts in every e-mail. Please know you've got a lot of >> people on >> >> > 18's and get well soon, >> > Susan F. Zimmerman >> > "Look among the nations and watch; be utterly astounded! For I will >> work a >> >> > I am so sorry to hear this. I guess she really drove that bus as long as >> > she did. >> >> > I just want to let everyone know that I am in the hospital with a bad >> case >> > of pneumonia in my right lung. I also have an uncontrolled heart rate >> that >> >> A support group of http://cmlhope.com >> >> ------------------------------------------------- >> >> >> You received this message because you are subscribed to the Google >> Groups >> >> --- You received this message because you are subscribed to the Google >> >> Groups "CMLHope" group. >> >> To unsubscribe from this group and stop receiving emails from it, send >> an >> > To unsubscribe from this group, send email to >> > [email protected] >> > For more options, visit this group at >> http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google >> Groups >> > To unsubscribe from this group, send email to >> > [email protected] >> > For more options, visit this group at >> http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google >> Groups >> > To unsubscribe from this group, send email to >> > [email protected] >> > For more options, visit this group at >> http://groups.google.com/group/CMLHope >> > --- >> > You received this message because you are subscribed to the Google >> Groups >> > To unsubscribe from this group and stop receiving emails from it, send >> > an >> > email to [email protected]. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> [email protected] Jul 10 03:02PM -0400 >> >> Dear Marty, >> >> You get to complain. Sounds positively miserable. i am so glad you are >> still driving the bus and that you have a Shelly by your side. Bless her. I >> am sure life handing you so much all at once is beyond exhausting and scary. >> One thing at a time would be a lot easier, but I know from experience that >> that's just not how it works some times. I feel so much for you and shall >> keep you and your family in my prayers Marty. It's one thing I can do for >> you. You are a soldier Marty, a true warrior, you have met with many health >> challenges in your life, and you have survived them, one by one, with your >> pisitive attitude, strong spirit and grace. >> >> I am so sorry you are goign through all these things at once and hope that >> something subsides so you can navigate a bit easier....not sleeping or >> urinating with ease both sound like nightmares. ...along with the side >> effects of the meds that are there to help you.... >> >> Hang in there Marty, and know you are loved and held and cared for by many >> people here. >> >> I am also sorry for the loss of your friend Millie. I know you shared a >> special bond for a long time. >> >> my best 18s >> >> Beth >> >> >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Thu, Jul 10, 2014 2:57 am >> Subject: Re: [CMLHope] Re: Millie >> >> >> Hi Everyone, >> I just got home from the hospital, I usually don't complain but this >> as a terrible experience for me because I almost died. I have >> hnomonia 0in my right lung and have been put on some very powerful >> ntibiotics. The side effects are terrible and I haven't been able to >> leep fo-r most of the days that I have been on them. My prostate has >> een giving me problems making is almost impossible to urinate so it >> ooks like more surgery. My hands have terrible ticks so it is >> ifficult to type. It is difficult to take deep breaths and I have >> nxiety as well as some memory loss. Hopefully it will be only >> emporarly. >> To top it off my kindle stopped working and it is out of warranty by >> nly a week and a half. I just called Amazon and they were very >> elpful and sending me a new replacement. >> It is now almost 4 am and I can not sleep so I decided to get on here >> nd keep you informed about what is going on. I have to constantly go >> ack and correct my text but have managed to do so. I am a mess but >> till driving the bus. >> It is my wife Shelly that is and has been keeping me going. She is the >> tar of my life just as she helped me through my bone marrow >> ransplant so does she help me through this. With all the illness I >> ave had she has always been there for me, although I feel really >> adly for her because of what she has been going through. >> 18's, >> Marty >> On Fri, Jul 4, 2014 at 11:17 PM, 'Susan Zimmerman' via CMLHope >> [email protected]> wrote: >> Dear dear Marty, >> >> Praying for you as well as hoping for all your issues to be cleared to >> pave >> the way for a kidney transplant!!! You know we all love you and thank you >> for your uplifts in every e-mail. Please know you've got a lot of people >> on >> your side from the blood brothers/sisters group!!! >> >> 18's and get well soon, >> Susan F. Zimmerman >> "Look among the nations and watch; be utterly astounded! For I will work a >> work in your days which you would not believe, though it were told you." >> Hab. 1:5 >> >> >> -----Original Message----- >> From: Myvety2k via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Fri, Jul 4, 2014 5:38 pm >> Subject: Re: [CMLHope] Re: Millie >> >> Marty, For sure I will be thinking of you and get feeling better fast, I >> need you we all need you. Bless you, >> >> greenie >> >> In a message dated 7/4/2014 4:41:32 P.M. Eastern Daylight Time, >> [email protected] writes: >> >> Dear Richard, Chris, and everyone else, >> >> I am so sorry to hear this. I guess she really drove that bus as long as >> she did. >> >> I just want to let everyone know that I am in the hospital with a bad case >> of pneumonia in my right lung. I also have an uncontrolled heart rate that >> the doctors can't seem to get down. I may not be online for a while. >> >> 18's, >> Marty >> >> > To unsubscribe from this group and stop receiving emails from it, send >> > an >> > email to [email protected]. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> - >> CMLHope] >> support group of http://cmlhope.com >> ------------------------------------------------ >> You received this message because you are subscribed to the Google Groups >> CMLHope" group. >> o post to this group, send email to [email protected] >> o unsubscribe from this group, send email to >> [email protected] >> or more options, visit this group at >> http://groups.google.com/group/CMLHope >> -- >> ou received this message because you are subscribed to the Google Groups >> CMLHope" group. >> o unsubscribe from this group and stop receiving emails from it, send an >> email >> o [email protected]. >> or more options, visit https://groups.google.com/d/optout. >> >> >> >> [email protected] Jul 10 04:12PM -0400 >> >> Marty: >> >> >> So sorry to hear that you are experiencing so many problems. Thank >> goodness for Shelly and your own determination to keep going no matter what. >> Thoughts and prayers are headed your way. >> >> >> Marcie >> >> >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Thu, Jul 10, 2014 3:57 am >> Subject: Re: [CMLHope] Re: Millie >> >> >> Hi Everyone, >> >> I just got home from the hospital, I usually don't complain but this >> was a terrible experience for me because I almost died. I have >> Phnomonia 0in my right lung and have been put on some very powerful >> antibiotics. The side effects are terrible and I haven't been able to >> sleep fo-r most of the days that I have been on them. My prostate has >> been giving me problems making is almost impossible to urinate so it >> looks like more surgery. My hands have terrible ticks so it is >> difficult to type. It is difficult to take deep breaths and I have >> anxiety as well as some memory loss. Hopefully it will be only >> temporarly. >> >> To top it off my kindle stopped working and it is out of warranty by >> only a week and a half. I just called Amazon and they were very >> helpful and sending me a new replacement. >> >> It is now almost 4 am and I can not sleep so I decided to get on here >> and keep you informed about what is going on. I have to constantly go >> back and correct my text but have managed to do so. I am a mess but >> still driving the bus. >> >> It is my wife Shelly that is and has been keeping me going. She is the >> star of my life just as she helped me through my bone marrow >> transplant so does she help me through this. With all the illness I >> have had she has always been there for me, although I feel really >> badly for her because of what she has been going through. >> >> 18's, >> >> Marty >> >> On Fri, Jul 4, 2014 at 11:17 PM, 'Susan Zimmerman' via CMLHope >> > To unsubscribe from this group and stop receiving emails from it, send >> > an >> > email to [email protected]. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email >> to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> Susan Zimmerman <[email protected]> Jul 10 08:24PM -0400 >> >> Hello sweet Marty, >> >> >> The struggle for life is sometimes overwhelming, and we love you so much >> for continuing to hang on. You are still driving the bus, and we can stop >> along the way and have many rests as we all need it. We love you and pray >> for you to rally and get back on track. Know we are all thinking about you >> for sure....Anxiety is also a tough thing to deal with, as I've had my share >> this week as well. >> >> >> 18's and blessings, >> >> Susan F. Zimmerman >> "Look among the nations and watch; be utterly astounded! For I will work a >> work in your days which you would not believe, though it were told you." >> Hab. 1:5 >> >> >> >> -----Original Message----- >> From: Marty Gartenberg <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Thu, Jul 10, 2014 3:57 am >> Subject: Re: [CMLHope] Re: Millie >> >> >> Hi Everyone, >> >> I just got home from the hospital, I usually don't complain but this >> was a terrible experience for me because I almost died. I have >> Phnomonia 0in my right lung and have been put on some very powerful >> antibiotics. The side effects are terrible and I haven't been able to >> sleep fo-r most of the days that I have been on them. My prostate has >> been giving me problems making is almost impossible to urinate so it >> looks like more surgery. My hands have terrible ticks so it is >> difficult to type. It is difficult to take deep breaths and I have >> anxiety as well as some memory loss. Hopefully it will be only >> temporarly. >> >> To top it off my kindle stopped working and it is out of warranty by >> only a week and a half. I just called Amazon and they were very >> helpful and sending me a new replacement. >> >> It is now almost 4 am and I can not sleep so I decided to get on here >> and keep you informed about what is going on. I have to constantly go >> back and correct my text but have managed to do so. I am a mess but >> still driving the bus. >> >> It is my wife Shelly that is and has been keeping me going. She is the >> star of my life just as she helped me through my bone marrow >> transplant so does she help me through this. With all the illness I >> have had she has always been there for me, although I feel really >> badly for her because of what she has been going through. >> >> 18's, >> >> Marty >> >> On Fri, Jul 4, 2014 at 11:17 PM, 'Susan Zimmerman' via CMLHope >> > To unsubscribe from this group and stop receiving emails from it, send >> > an >> > email to [email protected]. >> > For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email >> to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> Joyce Mesnarich <[email protected]> Jul 10 09:33PM -0500 >> >> Dear Marty, >> So sorry to hear of your present problems. I know how sick antibiotics can >> make a person. Just went through that myself. Seems like when it rains it >> pours, as the old saying goes. I have been on this site and reading your >> inspiring messages and that wonderful Patient's Prayer that you shared. I >> have made a copy of it and keep it handy and use it often. You are in my >> prayers and I am wishing you a speedy recovery. Stay in that driver's seat >> and let Shelly be your co-pilot. >> Joyce in IL >> >> >> >> On Jul 10, 2014, at 7:24 PM, 'Susan Zimmerman' via CMLHope wrote: >> >> >> >> >> Richard H <[email protected]> Jul 10 08:59PM -0700 >> >> I am so glad to hear that youwere released from the hospital to home care. >> That can be called progress. Of course, The prayers will keep coming your >> way for healing and comfort. I like Joyce in IL's that Shelly is in the >> co-pilot's seat. That should mean that on a long ride you can give her the >> opportunuty to drive a while so the driver's log indicates proper rest >> periods at the required check points. >> >> Richard H. >> >> On Thursday, July 10, 2014 9:33:45 PM UTC-5, grammie wrote: >> >> >> >> Bone Pain >> >> [email protected] Jul 10 04:15PM -0400 >> >> Has anyone tried acupuncture to relieve bone pain? 5+ years on Gleevec is >> really taking a toll on me and nothing, not even the hard core pain killers, >> help. I've discussed with my onc and internist and they said try the >> acupuncture but they don't think it is going to help. >> >> >> Marcie >> >> >> >> DAWN RODEGHIER <[email protected]> Jul 10 04:14PM -0700 >> >> Dear Marcie, I've been on Gleevec since it was approved in the USA. It >> took a few years before I experienced my first encounter with bone pain. I >> had read about it in this forum and immediately realized what was going on. >> It hit totally unexpected just below my left knee, kind of a strange feeling >> at first that turned into some thing to scream about in a matter of moments! >> I had my wife get some towels soaked in hot water and we have very hot >> water, but it was to no avail. The pain became worse as time passed and then >> when I wanted to give up, it simply stopped! The entire thing was about 20 >> minutes in duration. It left me sore but the severe pain suddenly quit. >> >> Just hang in there for me they came farther and farther apart as time >> passed. The pain was well worth the gain of living all these extra years, >> seeing four grandchildren born and growing up healthy. >> >> My best to you Marcie you're a warrior now, >> >> Jim Rodeghier >> >> >> >> >> >> On Thursday, July 10, 2014 3:15 PM, margood18 via CMLHope >> <[email protected]> wrote: >> >> >> >> Has anyone tried acupuncture to relieve bone pain? 5+ years on Gleevec is >> really taking a toll on me and nothing, not even the hard core pain killers, >> help. I've discussed with my onc and internist and they said try the >> acupuncture but they don't think it is going to help. >> >> Marcie >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> Susan Zimmerman <[email protected]> Jul 10 07:32PM -0400 >> >> I've used acupuncture while I was on gleevec when living in Florida. I >> felt much better afterward, for sure!!! I also was having bone pain and did >> try that for my help. It worked! Blessings to you as you check this out!!! >> >> >> 18's, >> >> Susan >> >> >> >> >> -----Original Message----- >> From: margood18 via CMLHope <[email protected]> >> To: CMLHope <[email protected]> >> Sent: Thu, Jul 10, 2014 4:15 pm >> Subject: [CMLHope] Bone Pain >> >> >> Has anyone tried acupuncture to relieve bone pain? 5+ years on Gleevec is >> really taking a toll on me and nothing, not even the hard core pain killers, >> help. I've discussed with my onc and internist and they said try the >> acupuncture but they don't think it is going to help. >> >> >> Marcie >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at >> http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> >> >> Marcie Goodman <[email protected]> Jul 10 07:55PM -0400 >> >> Thanks, Jim. That is very encouraging news. I really have done well on >> Gleevec and the only bad side effects are fatigue and bone pain, mostly in >> the knees and below. I, too, feel extremely blessed to be alive, working >> with great health care benefits and a wonderful support system of family and >> friends. Four grandchildren - what a joy for you! >> >> Marcie >> >> Sent from my iPhone >> >> >> >> >> Marcie Goodman <[email protected]> Jul 10 07:57PM -0400 >> >> Thanks, Susan. Do you still have pain? Glad to hear that you seem to be >> doing well on your new routine. Thank goodness for the accomplishments in >> treatment of CML. >> >> Marcie >> >> Sent from my iPhone >> >> >> > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
