Maria,
I hope you are still connected to us. I just read that you are in blast. One
thing you MUST do at this point is to be sure you have a hemotological
oncologist who is a SPECIALIST in CML. There are members on here who can help
you find a good one in your area. CML is a very different leukemia and many
hematologists do not fully understand it. If you are still reading, let us
know if you are needing such information and just what information you are
wanting. I PROMISE you will receive answers.
Joyce in IL
PS WE DO CARE!!!
On Jul 13, 2014, at 6:16 PM, Marty Gartenberg wrote:
> Hi Maria,
>
> First let me welcome you to our group. You mentioned that you did send
> an email but it seems that no one ever received it. If we would have
> then we would put out our hearts to you. We are a very tightly knit
> group that is dedicated to help one and other do battle to our
> disease.
>
> I did receive that email asking that you wanted out of receiving any
> more emails from us. I felt badly about that and hopefully you will
> come join us.
>
> We have been mourning the death of Millie and it really hit us very
> hard. We are just like a family each one of us caring for the others.
>
> You had mentioned that you were in blast and all that I can say is
> that you are still here for a reason. Please let us know your story
> having CML. Sometimes you will find that some of us share the very
> same things as you have been going through.
>
> I wish you 18's,
>
> Marty
>
> On Sun, Jul 13, 2014 at 6:24 PM, ICANDOALLTTC via CMLHope
> <[email protected]> wrote:
>> Hi Maria, I did find the one email that you sent and noticed that we did
>> welcome you. As I told you we were suffering the illness and death of our
>> friend Millie; seems like we were all in shock from her death and we are
>> still in grief.
>> We hope you will stay with us and as summer closes our list will pick up.
>> Please feel welcome to tell us your story and battle with Cml. Thanks
>> Blessings,
>> Jeanie<3
>>
>> In a message dated 7/13/2014 6:04:42 P.M. Eastern Daylight Time,
>> [email protected] writes:
>>
>> Hi Maria, Sorry I was on vacation for about 1 month and we have been dealing
>> with the death of a dear friend on this group. I don't remember getting an
>> email from you but if you would like to stay you are very welcome.
>> I have been fighting CML for 10 years now, and some on this list have been
>> fighting a lot longer.
>> I am on Sprycel after failing on Gleevec and Tasigna.
>> Good luck and blessings,
>> Jeanie<3
>>
>> In a message dated 7/13/2014 9:18:06 A.M. Eastern Daylight Time,
>> [email protected] writes:
>>
>> I am amazed that I have received 2 answers from you guys about unsubscribing
>> and there was no answer to my intorduction message a few weeks ago. It's
>> OK, fine. I subscribed to your group because i found it while searching for
>> a support group for CML patients. I am a CML patient, blast crisis and have
>> survived for 3 years against all odds. Bless you all and I hope that you
>> guys have a long happy life!!!!! Farwell.
>>
>> Maria I
>>
>>
>> On Sun, Jul 13, 2014 at 6:18 AM, <[email protected]> wrote:
>>>
>>> Today's topic summary
>>>
>>> Group: http://groups.google.com/group/cmlhope/topics
>>>
>>> Digest for [email protected] - 11 updates in 2 topics [3 Updates]
>>>
>>> Digest for [email protected] - 11 updates in 2 topics
>>>
>>> Marty Gartenberg <[email protected]> Jul 12 07:33AM -0400
>>>
>>> Hi Maria,
>>>
>>> I'm sorry that your having such difficulty trying to unsubscribe from
>>> our group. Personally, I do not know how to either, and you are
>>> correct we are basically a closed group of people that are here to
>>> help each-other through our disease.
>>>
>>> Frankly, I'm surprised that you are even receiving any of our posts
>>> because in order to do that you must have signed up at some time to
>>> begin with.
>>>
>>> If you don't want to receive or read any of our posts then in the
>>> meantime might I suggest simply hitting the deleate button on your
>>> keyboard any time that you receive any messages from us.
>>>
>>> Thank you, and 18's,
>>>
>>> Marty
>>>
>>>
>>>
>>>
>>> patrick <[email protected]> Jul 12 06:09AM -0700
>>>
>>> To unsubscribe directly
>>> Go to https://groups.google.com
>>> Log in (Google groups will email you your password if you have forgotten).
>>> Click on the "My groups" icon/link.
>>> Click on CML Hope.
>>> Near the upper right-hand corner of the screen, click on the button with
>>> the tiny head and torso. (A mouse-over message should say, "My settings"
>>> when your cursor is over the button.)
>>> Mouse down the pop-up menu box to "Leave this group".
>>> Click the highlighted "Leave Group" button in the confirmation box.
>>> Patrick
>>>
>>> On Friday, July 11, 2014 11:07:13 PM UTC-5, Maria Cashion wrote:
>>>
>>>
>>>
>>> Suzieq <[email protected]> Jul 12 05:11PM -0700
>>>
>>>
>>>> Marty, I do hope you get to feeling better soon. Sorry to hear of your
>>>> health problems.
>>>
>>> On a good note, I had a good report last doctor's visit. BCR-ABL came
>>> back "none detected" once again. I had a little dance! :)
>>>
>>> Course, I think the rest of my body is falling apart. LOL! Isn't that the
>>> way it happens once we get past a certain age. I can barely walk and get
>>> around. My left hip and leg gives me a lot of problems. I take a step,
>>> pain hits me in the back of the thigh, then leg weakens and I almost go
>>> down. So, I use an ol' antique cane here in the house or walking around
>>> outside, just to be on the safe side. I'm thinking that I need to go back
>>> to the Pain specialist I saw a year ago and he'll do another injection. He
>>> was wanting to "burn" those nerves on that side and I just kind of balked
>>> at that. Not sure I want to go through that. Might have to, though.
>>>
>>> Keep Looking Up,
>>>
>>> Suzieq
>>>
>>>
>>
>>
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