Hi Maria, I also saw your post that you wanted to leave this group. I'm
so sorry you feel that way. I've found this group over 13 years ago I went
in for my year in Doctors appointment in Dec. of 1998 to get my blood work
when the Doctor told me I had CML. I've been in a study in Chicago on
Gleevec that started Jan. 10th of 2000. I am so glad I found this group, I
have received more information from my CML friends and caregivers then I
receive from all of my Doctor's in Chicago. I hope you change your mine and
stay with us. If you have any questions that you want answered this is the
place to come. In this group if you have a problem you just can't pick up the
phone and call your Doctor and he or she will take the time to call back
with the information you want to here. This group if you are having a
problem and your worried just email us and within 24 hours or less you will
receive a reply. As other CML friends in our group are sadden of the lost of
one of our CML friends last week it's hard on all of us. Hoping the best
for you.
David Greenberg (greenie)
Fort Myers, FL.
In a message dated 7/13/2014 7:40:05 P.M. Eastern Daylight Time,
[email protected] writes:
Maria,
I am so sorry that you have not felt included in this group. There are
times when some members are not active in reading the posts. My husband is
the CML patient, but this site and it's people have been indispensable to
us. I don't remember seeing your posts. It may be that you entered the
scene at such a time. We have been quite occupied with the health problems of
some of our long-standing members and perhaps that is a reason you feel
ignored. This should not have happened. It is not an excuse....just a
possible reason. Please give us another chance. Post your question or comment
again and I PROMISE you will receive comments and answers. We have learned
more from the people in this group than we have from doctors and nurses.
Joyce in IL
On Jul 13, 2014, at 10:31 AM, Peter wrote:
Hi Maria.
I too was taken aback by the less than friendly welcome you have received
here and how everybody is so quick in helping you to unsubscribe. Quite
frankly, I find it very disappointing. The members of this group appear to be
very caring and supportive, so I do not understand this. Why don't you
stick around for a while and see if you can find a way to 'fit in'.
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