Hi Maria, I also saw your post that you wanted to leave this  group.  I'm 
so sorry you feel that way.  I've found this group over 13  years ago I went 
in for my year in Doctors appointment in Dec. of 1998 to  get my blood work 
when the Doctor told me I had CML.  I've been in a study  in Chicago on 
Gleevec that started Jan. 10th of 2000.  I am so glad I found  this group, I 
have received more information from my CML friends and caregivers  then I 
receive from all of my Doctor's in Chicago.  I hope you change your  mine and 
stay with us.  If you have any questions that you want answered  this is the 
place to come. In this group if you have a problem you just can't  pick up the 
phone and call your Doctor and he or she  will take the  time to call back 
with the information you want to here. This group if you are  having a 
problem and your worried just email us and within 24 hours or less you  will 
receive a reply.  As other CML friends in our group are sadden of the  lost of 
one of our CML friends last week it's hard on all of us.  Hoping  the best 
for you.
 
David Greenberg (greenie)
Fort Myers, FL.
 
 
 
 
In a message dated 7/13/2014 7:40:05 P.M. Eastern Daylight Time,  
[email protected] writes:

Maria,  
I am so sorry that you have not felt included in this group.  There  are 
times when some members are not active in reading the posts.  My  husband is 
the CML patient, but this site and it's people have been  indispensable to 
us.  I don't remember seeing your posts.  It may be  that you entered the 
scene at such a time.  We have been quite occupied  with the health problems of 
some of our long-standing members and perhaps that  is a reason you feel 
ignored.  This should not have happened.  It is  not an excuse....just a 
possible reason.  Please give us another chance.  Post your question or comment 
again and I PROMISE you will receive  comments and answers.  We have learned 
more from the people in this group  than we have from doctors and nurses.
        Joyce in IL




On Jul 13, 2014, at 10:31 AM, Peter wrote:


Hi Maria.
I too was taken aback by the less than friendly  welcome you have received 
here and how everybody is so quick in helping you  to unsubscribe. Quite 
frankly, I find it very disappointing. The members of  this group appear to be 
very caring and supportive, so I do not understand  this. Why don't you 
stick around for a while and see if you can find a way  to 'fit in'.




 











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