Thanks David and great to hear from you.  Are you on Gleevec or other  meds?
I am on Sprycel after the others failed me.
I am doing really good on Sprycel.
Blessings,
Jeanie<3
 
 
In a message dated 7/14/2014 7:52:16 A.M. Eastern Daylight Time,  
[email protected] writes:

Hi Maria, I also saw your post that you wanted to leave this  group.  I'm 
so sorry you feel that way.  I've found this group over  13 years ago I went 
in for my year in Doctors appointment in Dec. of  1998 to get my blood work 
when the Doctor told me I had CML.  I've  been in a study in Chicago on 
Gleevec that started Jan. 10th of 2000.  I  am so glad I found this group, I 
have received more information from my CML  friends and caregivers then I 
receive from all of my Doctor's in  Chicago.  I hope you change your mine and 
stay with us.  If you have  any questions that you want answered this is the 
place to come. In this group  if you have a problem you just can't pick up the 
phone and call your  Doctor and he or she  will take the time to call back 
with the  information you want to here. This group if you are having a 
problem and your  worried just email us and within 24 hours or less you will 
receive a  reply.  As other CML friends in our group are sadden of the lost of 
one  of our CML friends last week it's hard on all of us.  Hoping the best 
for  you.
 
David Greenberg (greenie)
Fort Myers, FL.
 
 
 
 
In a message dated 7/13/2014 7:40:05 P.M. Eastern Daylight Time,  
[email protected] writes:

Maria,   
I am so sorry that you have not felt included in this group.  There are 
times when some members are not active in reading the posts.  My husband is the 
CML patient, but this site and it's people have been  indispensable to us.  
I don't remember seeing your posts.  It may  be that you entered the scene 
at such a time.  We have been quite  occupied with the health problems of 
some of our long-standing members and  perhaps that is a reason you feel 
ignored.  This should not have  happened.  It is not an excuse....just a 
possible 
reason.  Please  give us another chance.  Post your question or comment 
again and I  PROMISE you will receive comments and answers.  We have learned 
more  from the people in this group than we have from doctors and nurses.
        Joyce in IL




On Jul 13, 2014, at 10:31 AM, Peter wrote:


Hi Maria.
I too was taken aback by the less than friendly  welcome you have received 
here and how everybody is so quick in helping  you to unsubscribe. Quite 
frankly, I find it very disappointing. The  members of this group appear to be 
very caring and supportive, so I do not  understand this. Why don't you 
stick around for a while and see if you can  find a way to 'fit in'.




 











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