ahi Susan. Thanks for the reply. I know exactly how you feel at those reunions. We have friends that my wife's collage mates that roomed together and we attempt get together once a year. This year will be the 56th celebration of that friendship. My knowledge of Sjogrens Syndrom is that it is simuliar to CML. It is the inubator for Lupus a blood cancer. I have a sister-in-law and nieces that are living with that. My was received through a blood transfusion and is called Secondary Shogrens Syndrom. This condition is mainly found in females according to my a *rthritis* doctor which follows this condition.
Richard H. On Sunday, July 27, 2014 2:55:45 PM UTC-5, [email protected] wrote: > > Hey Richard, > > Great to hear from you again! I've been really busy with out of town > company and my 45th high scchool reunion this weekend. It's going to take > me awhile to recover....this morning when I got up I really felt like I had > sludge in my veins, lol....but had a great time. I do exactly the same as > you with going harder which takes recovering longer. Enjoy every day of no > TKI'S.....my little dose of bosulif is definitely slowing me down, but I'm > not complaining as my numbers decrease. It is still tough to concede that > others my age (reunion) are so full of piss and vinegar and can run circles > around me! Seeing old friends was great, though. > > I am now going to look up Sjogrens Syndrome to find out what it is! Be > blessed and have a wonderful five weeks!!! > > 18's, > Susan > "Look among the nations and watch; be utterly astounded! For I will work > a work in your days which you would not believe, though it were told you." > Hab. 1:5 > > > -----Original Message----- > From: Richard H <[email protected] <javascript:>> > To: cmlhope <[email protected] <javascript:>> > Sent: Sat, Jul 26, 2014 11:36 pm > Subject: [CMLHope] Just checking > > I haven't seen any new messages for about a week. I hope everyone is > doing well. We are settling into our new apartment but of have a lot of > little things to do. I can't get used to this getting older bit, so go > harder than I should making recovery longer. Fortunately, our calendar > shows no appointments for the next 5 weeks. All the doctors I have seen > this month are putting me in a holding pattern until I get results from the > CML testing. That is great news, as that wll let all of them helping to > solve whatever is happening one priority at a time. Most of us how the > TKI's side effects our livers, spleen, kidneys. Some of my Heart Meds are > also heavy duty that effect the same organs. I also learned this week that > persons with Sjogrens Syndrome have to be watchful of the drugs they take > because those drugs neutralize the TKI's. The first round of testing will > begin in Oct. and I should have results by November. > > Wishing all Warriors the best health possible. Please work on finding > the postive about your on situation. > > I will close with Marty's 18s (life). > > Richard H. > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] <javascript:> > To unsubscribe from this group, send email to > [email protected] <javascript:> > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected] <javascript:>. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
