Thanks Marti. Yes that is exactly why my nieces have progressed from Sjogrens Sndrome to Lupis. The doctor treating me for this told me that my diagnosis was Secondary Sjogrens Syndrome as he thinks I received a transfusion that triggered mine.
Richard H.. On Sunday, July 27, 2014 6:15:14 PM UTC-5, wa2yyx wrote: > > Hi Richard, > > I did a little research about Sjögren’s syndrome, and came up with > this, I hope it helps. > > Sand in your eyes and cotton in your mouth? There’s a name for what > you might be experiencing. Sjögren’s syndrome is an autoimmune disease > that most commonly affects the lacrimal and salivary glands, which > create moisture for the eyes and mouth, respectively. Sjögren’s > syndrome causes a reduction in the production of saliva and tears, > leading to uncomfortable dryness in the mouth and eyes. > > There’s no known singular cause for Sjögren’s syndrome, but > researchers believe that a combination of environmental and genetic > factors determines who develops the disease. While there are certain > genes that increase a person’s risk for Sjögren’s syndrome, the genes > do not act alone. It is believed that in order for a person to develop > Sjögren’s, the immune system must be activated by some sort of trigger > – such as a viral or bacterial infection – that sends the immune > system into overdrive. > > Evidence also suggests that if someone in your family has Sjögren’s > syndrome, you’re at higher risk for it. In fact, approximately 12 > percent of people with Sjögren’s syndrome have one or more relatives > with the disease. It's also common for relatives of people with > Sjögren’s syndrome to develop some other type of autoimmune disease > such as lupus or hypothyroidism. > > Approximately 4 million Americans have Sjögren’s syndrome, making it > among the most prevalent autoimmune disorders. Though it can affect > people of either gender or at any age, nine out of 10 people living > with Sjögren’s syndrome are women, most of them diagnosed in their > 40s. In fact, a major risk factor for developing Sjögren’s syndrome is > being a post-menopausal woman. > > While there isn’t yet a concrete answer as to why Sjögren’s syndrome > affects women at such a higher rate than men, researchers believe the > hormone estrogen might play a role. Another risk factor for Sjögren’s > is the presence of other autoimmune diseases like rheumatoid arthritis > or lupus. In rare cases, even children can have Sjögren’s syndrome. > > 18's, > > Marty > > On Sun, Jul 27, 2014 at 7:01 PM, 'Marcie Goodman' via CMLHope > <[email protected] <javascript:>> wrote: > > Hi Richard, > > > > Like Susan, I've got out of town guests. Getting older sure isn't for > > sissies and add in CML and it is tougher. But I think everyone in our > group > > really seems to live life to the fullest extent. My boss lost his > > re/election primary and my job and great health benefits are now in > > question. I believe I'll still have my job no matter who wins in > November, > > at least reporters told me both the Dem and Rep candidates went on the > > record to say I'm intact. But who knows? > > > > I'm not going to sweat it. God and this group have carried me a long way > so > > I'm certain things will work out fine. > > > > Never heard of that syndrome. Can you share with us what it is. Best > wishes > > and prayers for great results. And congrats on the move. > > > > Marcie > > > > Sent from my iPhone > > > > On Jul 27, 2014, at 3:55 PM, "'Susan Zimmerman' via CMLHope" > > <[email protected] <javascript:>> wrote: > > > > Hey Richard, > > > > Great to hear from you again! I've been really busy with out of town > > company and my 45th high scchool reunion this weekend. It's going to > take > > me awhile to recover....this morning when I got up I really felt like I > had > > sludge in my veins, lol....but had a great time. I do exactly the same > as > > you with going harder which takes recovering longer. Enjoy every day of > no > > TKI'S.....my little dose of bosulif is definitely slowing me down, but > I'm > > not complaining as my numbers decrease. It is still tough to concede > that > > others my age (reunion) are so full of piss and vinegar and can run > circles > > around me! Seeing old friends was great, though. > > > > I am now going to look up Sjogrens Syndrome to find out what it is! Be > > blessed and have a wonderful five weeks!!! > > > > 18's, > > Susan > > "Look among the nations and watch; be utterly astounded! For I will > work a > > work in your days which you would not believe, though it were told you." > > Hab. 1:5 > > > > > > -----Original Message----- > > From: Richard H <[email protected] <javascript:>> > > To: cmlhope <[email protected] <javascript:>> > > Sent: Sat, Jul 26, 2014 11:36 pm > > Subject: [CMLHope] Just checking > > > > I haven't seen any new messages for about a week. I hope everyone is > doing > > well. We are settling into our new apartment but of have a lot of > little > > things to do. I can't get used to this getting older bit, so go harder > than > > I should making recovery longer. Fortunately, our calendar shows no > > appointments for the next 5 weeks. All the doctors I have seen this > month > > are putting me in a holding pattern until I get results from the CML > > testing. That is great news, as that wll let all of them helping to > solve > > whatever is happening one priority at a time. Most of us how the TKI's > side > > effects our livers, spleen, kidneys. Some of my Heart Meds are also > heavy > > duty that effect the same organs. I also learned this week that persons > > with Sjogrens Syndrome have to be watchful of the drugs they take > because > > those drugs neutralize the TKI's. The first round of testing will begin > in > > Oct. and I should have results by November. > > > > Wishing all Warriors the best health possible. Please work on finding > the > > postive about your on situation. > > > > I will close with Marty's 18s (life). > > > > Richard H. > > > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > <javascript:> > > To unsubscribe from this group, send email to > > [email protected] <javascript:> > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > --- > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To unsubscribe from this group and stop receiving emails from it, send > an > > email to [email protected] <javascript:>. > > For more options, visit https://groups.google.com/d/optout. > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > <javascript:> > > To unsubscribe from this group, send email to > > [email protected] <javascript:> > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > --- > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To unsubscribe from this group and stop receiving emails from it, send > an > > email to [email protected] <javascript:>. > > For more options, visit https://groups.google.com/d/optout. > > > > -- > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > <javascript:> > > To unsubscribe from this group, send email to > > [email protected] <javascript:> > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > --- > > You received this message because you are subscribed to the Google > Groups > > "CMLHope" group. > > To unsubscribe from this group and stop receiving emails from it, send > an > > email to [email protected] <javascript:>. > > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
